Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for May 2019

Neuro Psychologist

Hi all, --- Hope you are all enjoying the sunshine, Here in Scotland Hillside Montrose, it has ben very warm , sunshine all day--- wonderful, I got to sit...

Hi all, --- Hope you are all enjoying the sunshine, Here in Scotland Hillside M...

•5 years ago

Which wheelchair?

Can anyone recommend the best wheelchair to suit my needs. I currently use a rollator outside. On walks it would be good to be able to have a light weight...

Can anyone recommend the best wheelchair to suit my needs. I currently use a ro...

•5 years ago

Helpful links from DR UK

Below are some links that may help everyone. Please repost if you are registered on other forums. The more the merrier :) The Care Quality Commission...

Below are some links that may help everyone. Please repost if you are registered...

•5 years ago

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Balance P.N.?? Ataxia ??

Hello again, ----- I am very depressed, agitated, mixed up in my mind feelings, I wrote a message a short while ago, and I think I have mistakenly deleted it...

Hello again, ----- I am very depressed, agitated, mixed up in my mind feelings,...

•5 years ago

THANK YOU!

For all you ataxians. My husband has started the radical treatment...Tired, washed out, but after 5 weeks in the hospital diagnosed with iffy stuff, but...

For all you ataxians. My husband has started the radical treatment...Tired, wash...

•5 years ago

Dose a gluten free diet help

Anyone with ataxia and found that a gluten free diet has helped there symptoms from progressing?

Anyone with ataxia and found that a gluten free diet has helped there symptoms f...

GlutenLadYorkshire

•5 years ago

Hello to hope. Thank you for this forum

This forum kept we awake way past a reasonable bedtime as I could not stop reading all the posts and replies. As a new member and newly diagnosed ataxia...

This forum kept we awake way past a reasonable bedtime as I could not stop readi...

•5 years ago

THANK YOU all ataxians for your MORAL support

MY HUSBAND WAS DIAGNOSED YESTERDAY, serious enough, but treatable. Plan of action drawn up...He and we all are sort of relieved...Prognosis is good and he used...

MY HUSBAND WAS DIAGNOSED YESTERDAY, serious enough, but treatable. Plan of actio...

•5 years ago

This paper is what the response to tasigna in genetic patient

This paper is an investigation into the response of Tasigna to hereditary cerebellar atrophy in Korea https://clinicaltrials.gov/ct2/show/NCT03932669

This paper is an investigation into the response of Tasigna to hereditary cerebe...

•5 years ago

Sca unknown

What’s more annoying, knowing you have sca or not knowing which one you have?

What’s more annoying, knowing you have sca or not knowing which one you have?

•5 years ago

wondering again

I am a bit confused ---- today, I am walking fine around the house, and my balance feels good , it is like I m back to normal --- is this normal with Ataxia...

I am a bit confused ---- today, I am walking fine around the house, and my bala...

•5 years ago

Ears

My ears r always stuffed. Like when ur in plane. I Went to ENT and they didn't know y. Anyone else experiencing this

My ears r always stuffed. Like when ur in plane. I Went to ENT and they didn't ...

•5 years ago

urine problem

Hi all, ME AGAIN !!! just wondering if anyone can help please ? I am not passing very much urine in the day or night, I have had swollen feet for Months now,...

Hi all, ME AGAIN !!! just wondering if anyone can help please ? I am not passin...

•5 years ago

wheelchair or Scooter

Hello all, Hope most are keeping well, I am up and down , Think I shall call myself Yo Yo, As I cannot get around the same as I did once !!!!!!!!!!, I am...

Hello all, Hope most are keeping well, I am up and down , Think I shall call mys...

•5 years ago

Shoes

Hello all, I am having trouble finding shoes I can wear in the spring/summer with a skirt. I have good boots for winter, sketchers to wear with trousers and...

Hello all, I am having trouble finding shoes I can wear in the spring/summer wit...

•5 years ago

A great day for Ataxia and other disorders.

I have long lamented the fact that little research was likely to happen if there was no money to be made. Well, today I have been proven wrong. A university...

I have long lamented the fact that little research was likely to happen if there...

•5 years ago

Greeting from Pakistan

Hi, its M 43. I got diagnosed 5 years back while having some balance disorder (SCA). It is genetic thing from my mother and its progressive. I joined the...

Hi, its M 43. I got diagnosed 5 years back while having some balance disorder (...

•5 years ago

Hallucinations

Has anyone experienced hallucinations in ataxia?

Has anyone experienced hallucinations in ataxia?

GlutenLadYorkshire

•5 years ago

Getting a diagnosis

What test do the neurologist do to see if you have ataxia? What do they need to prove that you have this condition? Thanks for reading

What test do the neurologist do to see if you have ataxia? What do they need to...

GlutenLadYorkshire

•5 years ago

Can ataxia improve to hardly any symptoms?

Last year I had slurred speech and an “ataxia gait” after a couple of months these symptoms vanished completely, I had an mri twice and there was no abnormal...

Last year I had slurred speech and an “ataxia gait” after a couple of months the...

GlutenLadYorkshire

•5 years ago

What’s dose ataxia feel like ?

I’m asking what dose ataxia feel like as I have suspected gluten ataxia I can do most things normally except I struggle with tandem walking, I have a normal...

I’m asking what dose ataxia feel like as I have suspected gluten ataxia I can do...

GlutenLadYorkshire

•5 years ago

CAUTIOUSLY OPTIMISTIC

The awaiting for a result ONLY TILL FRIday, another bank hol coming quick and fast and nothing gets done (consultants elusive, docs as well) all the working...

The awaiting for a result ONLY TILL FRIday, another bank hol coming quick and fa...

•5 years ago

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