Hallucinations : Has anyone experienced... - Ataxia UK

Ataxia UK

4,037 members4,576 posts

Hallucinations

GlutenLadYorkshire profile image

Has anyone experienced hallucinations in ataxia?

Written by
GlutenLadYorkshire profile image
GlutenLadYorkshire
To view profiles and participate in discussions please or .
11 Replies

Hi Bally1982!

This information is related with PSP:

"Delusions, hallucinations at times; may be disoriented and not know where they are. Hallucinations may be related to infections in the urine. Hallucinations have also been described in the case of infection before the onset of fever. Also with low acetylcholine levels and acetylcholine (muscarinic) receptors as well as drugs that are out of balance, too strong, etc."

Hoping to be useful.

Hug and luck.

Luis

GlutenLadYorkshire profile image
GlutenLadYorkshire in reply to LuisRodicioRodicio

Thanks for that

wobblybee profile image
wobblybee in reply to GlutenLadYorkshire

🤔 Do you have Episodic Ataxia.. People have reported vivid nightmarish dreams, and Deja vu..I’ve had both myself in the past.

GlutenLadYorkshire profile image
GlutenLadYorkshire in reply to wobblybee

There not sure if I do have ataxia I have had symptoms and have coeliac disease, I was severely stressed last year and had an ear infection, I started to slur my speech and walk unbalanced after numerous test nothing was found abnormal I also had an mri and nothing was found, this all left me very anxious and I didn’t get hardly any sleep with worry that I’d loose my house with not working fortunately I still have my house, my hallucinations may of been caused by sleep deprivation, I don’t have any of these symptoms of ataxia now. People have said that ataxia is a progressive disease so I’m not sure what is going on, I don’t have any hallucinations anymore and I only had two I’m off to Sheffield ataxia centre in about three weeks so hopefully they might shed some light into it.

wobblybee profile image
wobblybee in reply to GlutenLadYorkshire

🤔 Because you’re Celiac, it’s just possible you may have Gluten Ataxia. If so, you’re going to the very best place, Sheffield is world class when it comes to diagnosing Gluten Ataxia 🙂 xB

GlutenLadYorkshire profile image
GlutenLadYorkshire in reply to wobblybee

Thanks for your post I really hope that I don’t have gluten ataxia

claire01 profile image
claire01 in reply to wobblybee

I also have Eposodic Ataxia and also experienced nightmarish dreams can I ask do you get very bad headache 🤔

GlutenLadYorkshire profile image
GlutenLadYorkshire in reply to claire01

Only once in a blue moon do I get headaches maybe 1 or two a year that I can’t shift with normal paracetamol

wobblybee profile image
wobblybee in reply to claire01

🙂 I haven’t experienced bad headaches, but I’ve read posts from people who do. I’ve had BPPV (a type of vertigo) and I’m prescribed a new medication that seems to give relief.

Guyb profile image
Guyb

Yes I have very severe was while in hospital having been taken there continuously fitting and high temperature and sweats

GlutenLadYorkshire profile image
GlutenLadYorkshire in reply to Guyb

It’s scary stuff I only had it last year a couple of times, it’s not good