Neuro Psychologist

[lottiejemma]

Hi all, --- Hope you are all enjoying the sunshine, Here in Scotland Hillside Montrose, it has ben very warm , sunshine all day--- wonderful, I got to sit outside for a while.

I seen-- ordered by my Neurologist to see a Neuro Psychologist < I seen one before years ago when I was going through " what I would call a nervous breakdown", my memory at the time was not good, and they said I had ( something ) I cannot remember what, well the result of that was ---- The DVLA Revoked my driving licence --reason was my memory and co-ordination was not good, from the results from the Neurologist. I never had a problem with driving, everyone I knew, plus family could not believe it, as they all said , and I agree ,( not meaning to be proud ) that I was a great driver, never ever had as much as a scratch !!!!, well , as I had turned 70 ---- that was 7 years ago !!!, I just accepted that ( After a lot of tears and heartbreak ) No more driving.

I also had Neuropathy, and as it got worse, and no feeling in my legs, my daughter took me to see our G.P., who sent me to see the Neurologist, wonderful, ---I got the same one from years ago !!! Well, after examining me, usual tests, she said it was my Ataxia !! wow, that was a new one for me !!! she asked if I would go into hospital for a week to get lots of tests, I asked her , Would it make any difference , she said NO, but we might find a gene !!!!, so I declined going to stay in hospital, I got an M R I and CT scans AGAIN !!!l lots of blood taken, then I got a letter to say that Doctor White the Neurologist had asked for me to be seen by the Neuro Psychologist , back to where I started !!! well she said that I did much better than the last time I saw her---- GOOD !!!!, --- now the surgery has phoned to say that I have an appointment to see the Neuro psychologist again, " to discuss her findings !!!! trouble is it is a way down in Dundee, one and a half hours drive from here, WHY can't she just send me a letter of her findings ????? I do not know if I should go or not, seems daft to me, Plus, I never am good at taking things the doctors say in, and I shall just leave it to my daughter to digest it all. What do my family of Ataxia's think, -- would appreciate a chat with you, I feel puzzled, What has drawing pictures, and answering questions, and trying to remember a short story she tells ( which I am hopeless at) have to do with Ataxia . Love to all, Take care, one day at a time ----Lottie

[TedTom]

First off, am not sure anyone can order anybody to see any health professional, it is an individual choice. At the time my friend with Ataxia was diagnosed about 12 years ago no opportunity to go to an Ataxia specialist clinic was offered, I did some research on internet and the choice was between Sheffield and London. Neither was near here , but we have been travelling to Sheffield once or twice a year ever since. Her father has consistently criticised this with his view of well if it isn’t going to make you better why bother? Friends view is that every test she does, every scan that’s done might just help, if not herself then via the information the neurologist gains , someone else might benefit from some potential future cure. That is her choice and her view.

[lottiejemma in reply to TedTom]

Hi TedTom

I did not mean the way it sounded about HAVING to go to Dundee for to see my Neuro physiologist, it was a post about how frustrated I felt, about having to go through the tests again , it is for my own good, I have more wrong with me than Ataxia, and the physiologists needful, and I am grateful for the care I am getting, sorry if I sounded like I was being forced!!!

[Happyfacexx]

Hi, I would request a telephone consultation with the neurologist to find out the results that S/he has found. I wouldn’t have any invasive tests done now, but any noninvasive tests I’m happy to have and any appointments I would go to ( or have by phone) just in case something useful is said . As every case of ataxia is different they can’t say that nothing can be done ,because maybe in your case they might find something unique to you. Good luck