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Ataxia UK

4,044 members • 4,594 posts

All posts for March 2017

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SueMillman

Partner•7 years ago

3 Replies

Assessment

Went for my pip Assessment yesterday not all what I thought it was going to be very informal, made me feel at ease, & knew of Friedreichs Ataxia & the impact...

Went for my pip Assessment yesterday not all what I thought it was going to be ...

murcia

•7 years ago

15 Replies

Oral Ingestion of Trehalose. A human clinical trial!!!

Ladies and Gentelman, I am sorry that this study has not been published on every ataxia, huntington, parkinson, etc forum, but this morning I found what I...

Ladies and Gentelman, I am sorry that this study has not been published on ever...

JP66

•7 years ago

14 Replies

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Strange scarring

My name is Alex, im still unsure of the type of ataxia i have but hope to find out soon. I have some vertical scarring at the top of my thighs that I noticed...

My name is Alex, im still unsure of the type of ataxia i have but hope to find o...

Alex100

•7 years ago

3 Replies

Last Post - Two Years Ago

It's been two years since my last post - possibly more. Suffice to say time does pass quick when your memory is not working 100% and even simple things like...

It's been two years since my last post - possibly more. Suffice to say time does...

Hidden

•7 years ago

13 Replies

Help

Does anyone have seizure type symptons an feel drunk and problems with sitting upright etc

Does anyone have seizure type symptons an feel drunk and problems with sitting u...

220289

•7 years ago

13 Replies

Long diagnosis journey? Urgent assistance required

We've been asked by The Neurological Alliance if we can come up with a case study by the end of tomorrow of someone who's diagnosis of ataxia took a very long...

We've been asked by The Neurological Alliance if we can come up with a case stud...

SueMillman

Partner•7 years ago

14 Replies

Vertigo v, dizziness

Are vertigo and dizziness the same thing? MY PT says they are but I don't think so nor does my neurologist. As I explained to someone, as an Ataxian, I have...

Are vertigo and dizziness the same thing? MY PT says they are but I don't think ...

neta

•7 years ago

26 Replies

Fractured pelvis

I managed to slip a few weeks ago. Thinking I was badly bruised, I continued walking with a walker, painful at times. My Mother is dying so intended to...

I managed to slip a few weeks ago. Thinking I was badly bruised, I continued wa...

berejena

•7 years ago

21 Replies

complimentry medicine

I have been diagnosed with Ataxia do yoiu know of any complimentry therapies or medicine that would help Also does Mindfulness help ?

I have been diagnosed with Ataxia do yoiu know of any complimentry therapies or...

ra1nb0w

•7 years ago

8 Replies

Shortness of breath

My name is sue I have cerebellar ataxia SCA1 I starting to get shortness of breath it very painful I seeing my GP Monday. Any one have these problem

My name is sue I have cerebellar ataxia SCA1 I starting to get shortness of brea...

brummie62

•7 years ago

10 Replies

Controversy here

I am glad that someone has weighed in again on the Trehalose issue. Well either its great or its not. Ms. Millman is entitled to speak her mind but so is the...

I am glad that someone has weighed in again on the Trehalose issue. Well either ...

neta

•7 years ago

25 Replies

Spillnot mug holder

I have just yesterday received the above from the US (it is very expensive in the UK for some reason) and just wanted to share how brilliant it is. For the...

I have just yesterday received the above from the US (it is very expensive in th...

violasrbest

•7 years ago

7 Replies

Trehelose

The latest Ataxia UK update email I just received makes interesting reading. Seems Trehelose pretty much stopped SCA 3 in its tracks during the latest...

The latest Ataxia UK update email I just received makes interesting reading. See...

Stanleyclan

•7 years ago

21 Replies

Todd

I think this is a repeat, but not sure. I have severe ataxia from a stroke I'm in a wheelchair, I have unlimited use of my arms, I have poor speech and vision....

I think this is a repeat, but not sure. I have severe ataxia from a stroke I'm i...

Toddemallard

•7 years ago

14 Replies

Todd

I have severe ataxia. I have difficulty speaking and seeing. I am in a wheelchair and I have minimal use of my arms. My ataxia is from a stroke. I am on no...

I have severe ataxia. I have difficulty speaking and seeing. I am in a wheelchai...

Toddemallard

•7 years ago

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2017

A new HealthUnlocked app is now available for iPhone

Assessment

Oral Ingestion of Trehalose. A human clinical trial!!!

Strange scarring

Last Post - Two Years Ago

Help

Long diagnosis journey? Urgent assistance required

Vertigo v, dizziness

Fractured pelvis

complimentry medicine

Shortness of breath

Controversy here

Spillnot mug holder

Trehelose

Todd

Todd

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive