back in April 2020 i had covid the first time (that was early before we knew anything) since then when i get a cold (head cold, sinus infection, common cold) i notice that i feel bad for like 3-5 days but i will have a lingering cough for like a 5-10 days afterwards. i was blaming it on covid and the vax but is this common with CLL patients?
has anyone else experienced that?
to give you an idea, i recently had a cold the week before father's day, i was sick and didn't feel well for like 5 days. cough, congestion, stuffy nose/head but after the 5 days i felt fine but i am still having a lingering cough like 8-10 days later. mostly it effects me in the morning
i was diagnosed about a year ago but my white blood cell count has been going up since 2021
luckily it's stable the last 3 blood tests and not showing/experiencing any other symptoms
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pete-paz
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This seems to be a very common issue for a lot of us. My rule is - if any fever, contact your GP or A&E - depending on your bloods you might need antibiotics and a blood test. If no fever and no improvement a week later, see your GP. Once your cold continues after a week, it can be a secondary bacterial infection developing. I usually get a course of antibiotics (a 2 week course of Co-Amoxiclav) if I get any upper respiratory infection which isn't improving after a week. Swabs/sputum sample. This is only after my immunologist got involved as my GP had a tendency to follow the same rules he was applying when dealing with his "normal healthy" patiens my age.
I'm not a doctor and I also always prefer to be safe than sorry. I felt "fine" when I had sepsis, just spiked a fever and an hour later no fever at all. It's always better to get checked, it can be nothing - that is possible too. No one will blame you that you are wasting their time. All the best. Let us know what they advise you to do.
Before CLL, if I felt "something" coming on, I could often avoid getting sick by getting to bed, pushing fluids, bundling up to raise my body temp. I can't recall being really ill like influenza since college. Post CLL, things take longer to recover from, even bruises and skin problems. Let alone the known respiratory issues CLL folk are known to get. A group of my friends & I prefer to mask most everywhere now; one friend said he noticed his "yearly crud" he used to get didn't occur during Covid and hasn't since he now masks in places like work or the grocery store when everyone around him is coughing/sneezing out in the open.
Covid is known to damage the immune system in a number of people to varying degrees.
Since you are now immune compromised, as well as post Covid infection, it's not surprising things aren't the same. As we age we also tend to lose immunity, some more than others.
So you have a number of things going on making it more difficult to "bounce back" compared to the you of a decade ago. Happy to hear you are managing to avoid a bacterial infection setting in on top of whatever bug you catch, that you can still clear it up.
i got vaxed in 2021 (not my choice, i was healthy and had natural immunity) but had to get vaxed due to the fact i work in NY a lot and it was mandated. with that said since getting vaccinated i had a spurt of blood in my urine (gone and ok now), found 2 spots on my lungs that i have to get scanned each year, and a year ago diagnosed with CLL all of which may or may not have had to do with the vax
Like you I had Covid early (March 2020-April 2020) and was hospitalized. I've also had it twice since, but those infections were nothing like the alpha variant. I've had the same lingering cough which my doctor said is typical. Not sure if it's caused by the virus, the CLL (diagnosed Feb 24) or the damaged Covid lungs as confirmed in recent CT scans. Did you by chance have night sweats post Covid? I had them for 4 days straight in the fall of 2020. Months after I recovered. Haven't had one since, but now I have CLL. Coincident?
fortunately no night sweats, no other symptoms. covid for me , thankfully was a breeze. i was sick for like 5 days. it was like a head cold then i was fine but i had it two other times after being vaccinated, same result, mild head cold gone in like 3-5 days but those two other times the cough lingered a little. generally i only get sick like once a year and usually in the winter or early spring as the weather changes. i have 4 grandkids, two are younger and are always getting something (little kids are like walking petri dishes..haha) so they were recently sick and i caught it. truthfully most times i don't catch it even though it goes through the family. i take a crap load of vitamins and exercise regularly so i generally stay pretty healthy....other than getting cancer🙄
I too had C-19 before it was a thing and since then have had multiple colds, upper respiratory infections which ultimately lead to my diagnosis in Feb. of 2024. I had 3 consecutive white blood counts way above the normal 10. Before these "colds" I was the girl that went multiple winters w/o any colds. Now I add extra C to my daily regiment and my whites are staying pretty regular. (between high teens to high 20's) I am thinking about adding Ivermectin. Any thoughts about adding the Ivermectin?
i take a crap load of vitamins. multi, D, E, K2, queciten, zinc that seems to have kept me safe except for cancer/CLL, just my luck. normally just get like on cold a year not bad but like i said seems that the past 3 years i get through the cold quick and easy but have a lingering cough
Ivermectin has shown an effect in animal cell-line testing as an adjunct to other caner drugs but not on it own. It's not being pursued as the required dose is very high and may have neurotoxic effects.
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