Continued Journey : I’ve had the Bone Marrow... - CLL Support

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Continued Journey

FiArt12X profile image
7 Replies

I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2.

When you start treatment (chemo) for BMT they count the days like a count down -5, -4, -3… until the BMT is day 0 (zero) then it begins +1, +2 etc. I’m in day plus +2. So far fairly restful days. Although there have been meds and an injection to lower my white blood cells, most of my other counts have even lower as well. Platelets from 265 to 97 as an example. As a result I’m starting to feel slower, less vim and vigor! This is all intended effect for the initial days of chemo.

starting tomorrow and for 3 days I get another regiment of chemo intended to dramatically eliminate my immune system. Chemo: Cyclophosphamide +3,+4, Tacrolimus +5 & Mycophenolate

After Day +5 it’s anticipated to be fairly rough for awhile. At least to days+11 to +14. I’ll let you know.

Last note: my Bone Marrow Biopsy after the O CHOP revealed CD19CD20 and a few other markers were not present. The large cell (Richters) had been eliminated. There was still some CD5, meaning CLL still present. Hopefully this all will be the ticket to clean bill of health, BMT!

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FiArt12X
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7 Replies
Spark_Plug profile image
Spark_Plug

What a slog, that you can report this out to us is a testament to your fortitude.

Jm954 profile image
Jm954Administrator

Well done! I hope your recovery is smooth and uneventful.

Jackie

Poodle2 profile image
Poodle2

All the best! Can't wait to hear good news! Petra

Snakejaw profile image
Snakejaw

Keep going forward, you’re doing amazing.

PurpleRonny profile image
PurpleRonny

Sending you hugs 🤗

nvp815 profile image
nvp815

Thanks for sharing your progress!! All the best to you going forward.

Nan

Angie4now profile image
Angie4now

You’re a trooper! Praying 🙏 for a smooth recovery. 🤗

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