Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2021

Thanks for your attention

Your responses are appreciated. I've discussed with G.P. (with blood work)and now am on to the oncologist. To be continued....

Your responses are appreciated. I've discussed with G.P. (with blood work)and no...

desti

•3 years ago

1 Reply

Antihistamine Use for Insect Bites

I thought it was about time I posted, and first explain I’m on the home straight of my journey through the 7 year FLAIR trial, with my last review due this...

I thought it was about time I posted, and first explain I’m on the home straight...

Ernest2

•3 years ago

27 Replies

Should I Have Taken The Infusion Anyway

I posted yesterday about my recent experience with getting a bad cold, having four Grandchildren (and their parents) living temporarily with us and two...

I posted yesterday about my recent experience with getting a bad cold, having fo...

wizzard166

•3 years ago

21 Replies

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Checking lymph glands

My haematologist has now moved to telephone consultation following the pandemic. I am fine with this, except that in face-to-face consultation he/she would...

My haematologist has now moved to telephone consultation following the pandemic....

WoonG

•3 years ago

3 Replies

Blood donation

Can I give blood before heamotology appointment?

Safel

•3 years ago

15 Replies

Treatment for those who don’t have antibodies

Hi all I saw this today and wonder if others in the UK have heard about it too. Donald Trumps cure Ronapreve is to be given to those of us who can’t make covid...

Hi all I saw this today and wonder if others in the UK have heard about it too. ...

Cheltman

•3 years ago

5 Replies

Feeling dehydrated even with drinking 2-3 liters per day

Has anyone been troubled with dehydration with CLL? My CLL was diagnosed in July as result of hospital admission for acute sigmoidal diverticulitis (never...

Has anyone been troubled with dehydration with CLL? My CLL was diagnosed in Ju...

peacethruthestorm

•3 years ago

15 Replies

Antibody treatment, UK

Just on the ITV news, UK gov has secured enough antibody treatments to supply hospitals around the UK. Another step forward, specific talk of immuno...

Just on the ITV news, UK gov has secured enough antibody treatments to supply ho...

Belfastbees

•3 years ago

16 Replies

Recent Covid Scare

I had an experience over these last three days that I wanted to share with our group. It was a scare about possibly having COVID, and what it taught me with...

I had an experience over these last three days that I wanted to share with our g...

wizzard166

•3 years ago

18 Replies

3rd Vaccine (UK)

Has anyone in the UK received their 3rd vaccine as a result of the recent government announcement? Do you think there might be any wriggle room on the 6...

Has anyone in the UK received their 3rd vaccine as a result of the recent gover...

RobertCLL

•3 years ago

8 Replies

Rib Pain associated with CLL or Ibrutinib therapy?

I am experiencing pain in my rib cage which has persisted for about 3 weeks. It was localized at first but seems more diffuse now. I am 88 years of age and...

I am experiencing pain in my rib cage which has persisted for about 3 weeks. It ...

desti

•3 years ago

4 Replies

T-Cell response to Covid vaccine in the immunocompromised (MS, but potentially good news?)

I came across this recent article on T-Cell response to the Covid vaccine this morning, which finds that people with multiple sclerosis on a B-Cell depleting...

I came across this recent article on T-Cell response to the Covid vaccine this m...

BettinaB

•3 years ago

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Hematologic disorders and the Sun, Saunas, Spa's

Hi all, Does anyone know if you are more at risk of Skin Cancer for all Hematologic disorders including CLL or is it just CLL ? Living in Australia and near...

Hi all, Does anyone know if you are more at risk of Skin Cancer for all Hematolo...

Billy_Oz

•3 years ago

5 Replies

Liquid blood biopsies in UK clinical trial

Several members of my family - with the ATM mutation (my CLL 11q is ATM related) will be joining a clinical trial at Penn - to develop a more accurate (CA19-9)...

Several members of my family - with the ATM mutation (my CLL 11q is ATM related)...

db601

•3 years ago

2 Replies

Infusion Centers in USA that infuse Regen-COV- see interactive map at https://covid.infusioncenter.org/

Another member posted today about having difficulty accessing the Regen-COV antibody treatments after an exposure to COVID-19 - wizzard166 posted this info 11...

Another member posted today about having difficulty accessing the Regen-COV anti...

lankisterguy

Volunteer•3 years ago

21 Replies

Covid - regeneron

I was exposed to Covid (outbreak at my grandson’s kindergarten, say him Monday afternoon when he had no symptoms, fever started on Wednesday) and even though...

I was exposed to Covid (outbreak at my grandson’s kindergarten, say him Monday a...

RuthBorch

•3 years ago

20 Replies

Hubby positive for COVID. Will get Regeneron today.

I tested positive for COVID early this week (probably had it 3-4 days earlier). My husband has CLL, is just off Venclexta which he took for 3 years. Currently...

I tested positive for COVID early this week (probably had it 3-4 days earlier). ...

Dice70

•3 years ago

10 Replies

Troublingly super high b12, anyone else? Thoughts?

Maybe a bit off-topic, but related and many of you have such great medical knowledge. Tuesday at my 4 month visit (back to 6 months now), I happened to ask to...

Maybe a bit off-topic, but related and many of you have such great medical knowl...

Vlaminck

•3 years ago

5 Replies

Richter’s Transformation - updated

Hi everyone. I would like to update all the data that we all provide and summarize it. Last week I had a meeting with a CLL teacher and we discussed Ricther's...

Hi everyone. I would like to update all the data that we all provide and summar...

Priss69

•3 years ago

18 Replies

UK: Shielding programme ends for most vulnerable

The government has agreed to end the requirement for shielding guidance for people previously considered to be clinically extremely vulnerable....

The government has agreed to end the requirement for shielding guidance for peop...

zaax

•3 years ago

19 Replies

They won’t go away!

I broke out 6 weeks ago with itchy sores all over my body. I even got one on my tongue! I’ve tried steroids and after 10 days that helped but as soon as I got...

I broke out 6 weeks ago with itchy sores all over my body. I even got one on my ...

Cfarrar

•3 years ago

17 Replies

3rd Dose in UK Anyone had it yet?

I was just wondering when this 3rd dose will be turning up? Or should I have heard by now? Shld I chase it up with my GP? It seems we are eligible anyway....

I was just wondering when this 3rd dose will be turning up? Or should I have hea...

Research123

•3 years ago

29 Replies

UK'S BIG VACCINE SURPLUS - YET NO ONE IS SAFE!

Ponder this. COVID VACCINES - DOSES ORDERED BY UK GOV, USED OR AVAILABLE Astrazeneca: 100 million Pfizer-BNT: 135 million Moderna: 17 million Janssen:...

Ponder this. COVID VACCINES - DOSES ORDERED BY UK GOV, USED OR AVAILABLE Astra...

bennevisplace

•3 years ago

7 Replies

Third Pfizer, No Detectable Spike Antibodies

Had third vaccine August 22nd, been on ibrutinib for last 16 months. Tested yesterday for spike antibodies. Received negative result today. Well there it...

Had third vaccine August 22nd, been on ibrutinib for last 16 months. Tested ye...

Davidcara

•3 years ago

16 Replies

England: COVID-19: Who will be first to get a COVID booster jab - and when will they get them?

https://news.sky.com/story/covid-19-what-is-the-case-for-booster-coronavirus-jabs-12406982

https://news.sky.com/story/covid-19-what-is-the-case-for-booster-coronavirus-jab...

zaax

•3 years ago

13 Replies

LLS Ciitizen: Emerging Research on COVID-19 and Blood Cancer on Thursday, September 30 at 1:00PM ET. UPDATE Research Now webinar,

Thank you for joining the LLS National Patient Registry and playing such an important role in our efforts to support blood cancer patients during the...

Thank you for joining the LLS National Patient Registry and playing such an im...

lankisterguy

Volunteer•3 years ago

1 Reply

Booster antibodies publication coming soon

I met with my specialist today (Prof. Yair Herishanu, Israel) who said that they saw good results to the booster (We knew that anecdotally) and that he has...

I met with my specialist today (Prof. Yair Herishanu, Israel) who said that they...

Youngen

•3 years ago

5 Replies

Cll watch and wait with shortness of br3ath

Has anyone experienced shortness of breath due to CLL. Diagnosed 2years ago

Kitty

•3 years ago

15 Replies

COVID antibodys

I am sure that I did not make it clear the last time I posted a few days ago. There were 2 people on the site where I did not get there names,but after 2...

I am sure that I did not make it clear the last time I posted a few days ago. Th...

studi

•3 years ago

4 Replies

Massage query

Hi just checking is it ok to have a de stress massage? My niece has booked a spa away day for us all and you can have facial and a massage. Some say it’s ok...

Hi just checking is it ok to have a de stress massage? My niece has booked a spa...

robertsw

•3 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2021

Thanks for your attention

Antihistamine Use for Insect Bites

Should I Have Taken The Infusion Anyway

Checking lymph glands

Blood donation

Treatment for those who don’t have antibodies

Feeling dehydrated even with drinking 2-3 liters per day

Antibody treatment, UK

Recent Covid Scare

3rd Vaccine (UK)

Rib Pain associated with CLL or Ibrutinib therapy?

T-Cell response to Covid vaccine in the immunocompromised (MS, but potentially good news?)

Hematologic disorders and the Sun, Saunas, Spa's

Liquid blood biopsies in UK clinical trial

Infusion Centers in USA that infuse Regen-COV- see interactive map at https://covid.infusioncenter.org/

Covid - regeneron

Hubby positive for COVID. Will get Regeneron today.

Troublingly super high b12, anyone else? Thoughts?

Richter’s Transformation - updated

UK: Shielding programme ends for most vulnerable

They won’t go away!

3rd Dose in UK Anyone had it yet?

UK'S BIG VACCINE SURPLUS - YET NO ONE IS SAFE!

Third Pfizer, No Detectable Spike Antibodies

England: COVID-19: Who will be first to get a COVID booster jab - and when will they get them?

LLS Ciitizen: Emerging Research on COVID-19 and Blood Cancer on Thursday, September 30 at 1:00PM ET. UPDATE Research Now webinar,

Booster antibodies publication coming soon

Cll watch and wait with shortness of br3ath

COVID antibodys

Massage query

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