Infusion Centers in USA that infuse Regen-COV-... - CLL Support

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Infusion Centers in USA that infuse Regen-COV- see interactive map at https://covid.infusioncenter.org/

lankisterguy profile image
lankisterguyVolunteer
21 Replies

Another member posted today about having difficulty accessing the Regen-COV antibody treatments after an exposure to COVID-19

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wizzard166 posted this info 11 days ago

covid.infusioncenter.org/

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You can go to that website and insert your zip code to see all the centers within 30 miles (or as I did for the screen shot above, reduce the distance to 10 miles).

The experiences from others seem that it may be possible to get the infusions without a prescription from your doctor, by answering simple questions about exposure to someone with COVID-19 symptoms or a positive test.

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Len

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lankisterguy profile image
lankisterguy
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21 Replies
DebKat999 profile image
DebKat999

Thank you so much Len.

If you happen to know, what does it mean on some of the sites where it says "Unclaimed"? A few of them near to me say that, most do not.

Debbie

lankisterguy profile image
lankisterguyVolunteer in reply to DebKat999

I think that is a Google Maps feature where someone at the specific business needs to enter information like operating hours, etc. Apparently those "UnClaimed" locations have not responded to Google Maps. Len

DebKat999 profile image
DebKat999 in reply to lankisterguy

Thank you.

cajunjeff profile image
cajunjeff

In addition to infusion centers, these infusions can be done with most any home health care company that wants this sort of business.

I had an infusion this morning at 8 am in my living room. The whole thing took about 45 minutes, the infusion part only about 20 minutes. I was at work by 9.30, hopefully brimming with covid killing mabs.

A person may not know if it can be done this way if he or she does not ask. My doctor was setting me up for an infusion clinic visit when I asked for home health care. He scratched his head for a second and said "sure, why not".

As it turns out the COO of the home health company is a girl who lived down the street from us and was on a swimming relay team with my daughter. You get lots of that living in a small town. She sent me a great nurse and it was all easy as pie.

Jonquiljo profile image
Jonquiljo in reply to cajunjeff

Did you need a test to get home health care to come?

cajunjeff profile image
cajunjeff in reply to Jonquiljo

No, the new emergency use authorization allows high risk people to get mab infusions without a positive diagnosis is they have been exposed to covid.

I had a guy I played golf with tell me he tested positive for covid three days after our match. I told my doctor about the exposure and he ordered mabs for me. He took me at my word for the exposure, no proof was required. I think it helped him by me explaining to him that I have failed three vaccines and that mortality rates are very high for people who cant make antibodies. If he would not have ordered the test for me, I would have found someone who would. I figure we have to advocate for ourselves.

The doctors orders was all the home healthcare company needed to treat me.

Jonquiljo profile image
Jonquiljo in reply to cajunjeff

Am looking for home health care around here - but no luck so far.

Stanford says a home test is OK if positive, but I need to have a negative PCR if only exposed.

That's what I get for living in the wonderful technology filled Bay Area! Thanks.

Ladydi49 profile image
Ladydi49 in reply to cajunjeff

So Home Healthcare Agencies have the mab on hand?

cajunjeff profile image
cajunjeff in reply to Ladydi49

I suppose that depends on the home heath agency. Most are set up to deliver any sort of infusion that can be done outside a hospital setting. I assume the way it works is that the doctor gives the agency a prescription and they acquire the meds they need to bring to the house from a pharmacy or specialty pharmacy. Its a simple infusion to give for a skilled home health care nurse.

Pin57 profile image
Pin57 in reply to cajunjeff

Interesting Jeff, thanks for sharing that potential option.

Jonquiljo profile image
Jonquiljo

The big problem I am having is to find a place to do COVID testing before I need an infusion.

I live in the north San Francisco bay area and this place is a total medical wasteland. Rapid Covid tests are hard to find and there is a long wait for an appointment if you can even find them.

I can get the infusion at Stanford — they are really well set up to do them. But rapid testing is not rapid. I have a couple of “Binax now” home tests, but I doubt Stanford will take them as a real positive test.

Has anyone had experience about getting infusions if you just have had exposure to Covid? Do they ask for proof of exposure? If not I can lie about it.

The whole process of testing and infusion is flawed. Once you find an infusion center - it seems that rapid tests are few and far between in many places in the US. Our government really blew it on that one - testing is not easy to get!

Any suggestions? I can go to Stanford for an infusion, but it is 1 1/2 hrs drive there and a two hour drive back. Thats a long drive with Covid symptoms unless you are to get an infusion. To do that (after a few day wait for an appointment) to get a 24-48 hr test is really not optimal.

Whats wrong with this country? We have tons of everything but testing!

lankisterguy profile image
lankisterguyVolunteer in reply to Jonquiljo

I don't believe you will need a test, just claiming to have been exposed should be enough.

I used the link covid.infusioncenter.org/ and specified Marin, CA (I lived on the other side of the 580 Marin Richmond bridge for 8 years) and found

mymarinhealth.org/locations...

phone (415) 925-7000

MarinHealth Medical Center

250 Bon Air Rd

Kentfield, CA 94904

covid.infusioncenter.org/FH...

Infusion sites NorCal
Ladydi49 profile image
Ladydi49

I can’t access locales…put in city/ state/zip but it keeps spinning around. I’m in Spring Hill, Florida?

Bikram21 profile image
Bikram21 in reply to Ladydi49

Same here. Call your local hospitals.

lankisterguy profile image
lankisterguyVolunteer in reply to Bikram21

Put in zip only or city & state

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If you enter all three the site fails

Bikram21 profile image
Bikram21 in reply to lankisterguy

I did. Unfortunately I don’t think all of the locations are listed. I have two options – one within 5 miles and another within 10 miles that are not listed on the site.

lankisterguy profile image
lankisterguyVolunteer

It says City, State OR Zip I put in Springhill, FL and got this

SpringHill FL
Ladydi49 profile image
Ladydi49 in reply to lankisterguy

Wow just tried before I saw this and got nothing just 2 circles searching and I’m on my new iPhone

wizzard166 profile image
wizzard166

Len

There is another web site I found, in addition to the one you just posted, and here it is

protect-public.hhs.gov/page...

Carl

Pin57 profile image
Pin57

A “Life saving post” Len.

Thank you and Wizzard166 too!

Ladydi49 profile image
Ladydi49

The link takes me to a page that says something about redirect

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