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CLL Support

23,139 members • 39,744 posts

All posts for September 2021

Enlarged neck node

I am almost 5 years in to w&w. I have had a chronically enlarged lymph node on the right side of my neck since day 1. In the last week it has enlarged to the...

I am almost 5 years in to w&w. I have had a chronically enlarged lymph node on t...

Rebuild_4

•3 years ago

2 Replies

Anyone had the 3rd vaccine for covid in the UK?

I have tried my GP and my specialist nurse to ask about the 3rd vaccine that has been approved by the JCVI but neither had any information to give me. Has...

I have tried my GP and my specialist nurse to ask about the 3rd vaccine that has...

jendur

•3 years ago

23 Replies

Booster jab

Can anyone tell me the people that have had an AZ 3rd booster and found they have anti bodies,are they on treatment for cell ie ibrutinib etc Thanks Trafford...

Can anyone tell me the people that have had an AZ 3rd booster and found they hav...

studi

•3 years ago

1 Reply

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IMMUNO DEFICIENCY UK

My husband received a letter from his immunologist with an attachment from the above. In general, it was about keeping safe. But one quote caught my eye. We...

My husband received a letter from his immunologist with an attachment from the a...

very

•3 years ago

7 Replies

Dry skin while on calquence

Can anyone suggest a good emollient for dry skin. I have been on calquence for 2 weeks now and have to apply Vaseline nightly. Even with that my skin is still...

Can anyone suggest a good emollient for dry skin. I have been on calquence for 2...

200185

•3 years ago

22 Replies

Shingrex, while on Acalabrutinib ?

Hey all, like the sign says, has anyone received Shingrex while on Acala? I need to get it and my GP and Oncologist says to get it. Just wondering what...

Hey all, like the sign says, has anyone received Shingrex while on Acala? I need...

chirish

•3 years ago

19 Replies

Inflammatory process with CLL/SLL

I was diagnosed with SLL/CLL 7/2021 and am on W&W. I generally feel well and stay very active walking 4-6 miles per day in addition to other activities. Four...

I was diagnosed with SLL/CLL 7/2021 and am on W&W. I generally feel well and st...

peacethruthestorm

•3 years ago

4 Replies

Different IGHV mutation tests?

Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is...

Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test repo...

nuji

•3 years ago

18 Replies

Confused

On 31 August my doctor told me he was 99% certain I have CLL and sent an urgent referal for a heamotology appointment requiring a 2 day response. This got...

On 31 August my doctor told me he was 99% certain I have CLL and sent an urgent ...

Safel

•3 years ago

7 Replies

Anyone else have Moderna booster with side effects 6 months after 2nd shot?

I decided to go ahead and get the Moderna booster since they opened it up for immune compromised people, and my healthcare system sent me a notice that I...

I decided to go ahead and get the Moderna booster since they opened it up for im...

Myfavoritecat

•3 years ago

8 Replies

How long does it take to feel better after coming off acalabrutnib for fatigue.

Stopping acalabrutnib due to fatigue and muscle aches

Mackiec1108

•3 years ago

3 Replies

Antibodies Go Missing After COVID-19 Vaccination in Some Blood Cancer Patients

If this US study / site link has done the rounds apologies- If not it makes interesting reading ... as indeed does the rest of the site... :-) “About 1 in 4...

If this US study / site link has done the rounds apologies- If not it makes int...

Juliette02

•3 years ago

2 Replies

Are people with CLL and on watch and wait receiving a third vaccine in the UK in September?

Government website implies that it is for people under treatment and/or under follow-up. I am unclear if watch and wait is counted as "under follow-up".

Government website implies that it is for people under treatment and/or under fo...

g684

•3 years ago

28 Replies

Advice sought: on four day high dose dexamethasone

I'm about to start four days of 40mg dexamethasone. Any advice as to how to best deal with this drug experience would be appreciated. What should I eat, not...

I'm about to start four days of 40mg dexamethasone. Any advice as to how to best...

E-Lynn

•3 years ago

19 Replies

Does CLL make your lower legs swell ?

I have had ultrasounds on my legs this month for severe swelling from knees down. Everything keeps coming back normal . Could CLL do this ?

I have had ultrasounds on my legs this month for severe swelling from knees down...

NannyDe

•3 years ago

9 Replies

Night sweats and when they are bad enough ?

Waking up with sweat in creases of legs , neck, arms , breast . I have never been able to sweat like this ! My cancer doctor says it is not bad enough unless...

Waking up with sweat in creases of legs , neck, arms , breast . I have never bee...

NannyDe

•3 years ago

14 Replies

Update on Venclexta/Gazyva month 5

Hi all, have been replying to some others who are on this combination in the past few months and at one point thought I had to admit my concerns about my...

Hi all, have been replying to some others who are on this combination in the pa...

Palmetto

•3 years ago

5 Replies

An interesting paper on diet and CLL progression

Attached is an interesting publication on diet and CLL progression....

nuji

•3 years ago

53 Replies

Neutropenia/low ANC and Ibrutinib/BTK Inhibitors

Wondering if anyone knows what the usual treatment is for neutropenia related to ibrutinib. I know there is neuplasta. But I thought I saw somewhere that...

Wondering if anyone knows what the usual treatment is for neutropenia related to...

Davidcara

•3 years ago

7 Replies

Australia and booster Covid Vaccines

A very disheartening piece in newspaper this morning -...

YelvertonDevon

•3 years ago

15 Replies

Covid (3rd) Booster Shot Side Effects

Hi all, I received my 3rd Covid Vaccine last Thursday 9/2 @ 4pm. I had no reaction to the first vaccine in January. The second vaccine in February, I was sick...

Hi all, I received my 3rd Covid Vaccine last Thursday 9/2 @ 4pm. I had no reacti...

Cgolen99

•3 years ago

11 Replies

Cytogenetics interpretation help needed

First time to post my profile and a question. I was diagnosed during a separate procedure in November 2019 and was on W&W until May 2021 when a scan showed a...

First time to post my profile and a question. I was diagnosed during a separate ...

Dawson21

•3 years ago

6 Replies

Bone Marrow Lesion

I was diagnosed with CLL in 2016. Have been on Watch and wait for five years. My WBC is 55.0 and lymphocyte count is 88.0. I recently had an MRI on my...

I was diagnosed with CLL in 2016. Have been on Watch and wait for five years. ...

Rhythmauthor1

•3 years ago

12 Replies

Moderna Booster compared to 1st and 2nd shot Moderna vaccines

May this message find everyone coping well. Good Morning, Is there a difference in the components used between the Moderna booster (3rd shot) and the...

May this message find everyone coping well. Good Morning, Is there a difference ...

learning2021

•3 years ago

27 Replies

hives with moderna booster?

I got hives after second dose of moderna and am wondering if the same thing will happen if I get the moderna booster. Has anyone else out there experienced...

I got hives after second dose of moderna and am wondering if the same thing will...

Vacationmountaintop

•3 years ago

3 Replies

Little bruises

I wanted to see if anyone knew what these little bruises are I just woke up with them ??? Help please

I wanted to see if anyone knew what these little bruises are I just woke up with...

Kleelove1

•3 years ago

1 Reply

Here Is A Good Article About Covid Antibody Levels. Explains In Simple Terms Why We Vaccinated "CLL'ers" Have Covid Protection....

https://www.msn.com/en-us/health/medical/what-to-know-about-antibody-tests-in-a-post-vaccine-world/ar-AAMwGO2

https://www.msn.com/en-us/health/medical/what-to-know-about-antibody-tests-in-a-...

DanBro1

•3 years ago

4 Replies

Sinus and inner ear

Does anyone have sinus problems that affects there balance when I get up in stumble and can't think straight my head feels heavy and I feel weird had this for...

Does anyone have sinus problems that affects there balance when I get up in stum...

Keswickcres6

•3 years ago

3 Replies

REGENERON FREE CLINICS IN FLORIDA

We have had many posts recently, one of which I started, about Monoclonal Antibody Infusions or Shots, and these treatments can be the difference between life...

We have had many posts recently, one of which I started, about Monoclonal Antibo...

wizzard166

•3 years ago

12 Replies

Upcoming CLL Society COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected is taking place Friday, September 24th

Upcoming CLL Society COVID-19 Event COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected is taking place Friday, September 24th at 9:00...

Upcoming CLL Society COVID-19 Event COVID-19 Virtual Community Meeting: The Del...

bkoffman

CLL CURE Hero•3 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2021

Enlarged neck node

Anyone had the 3rd vaccine for covid in the UK?

Booster jab

IMMUNO DEFICIENCY UK

Dry skin while on calquence

Shingrex, while on Acalabrutinib ?

Inflammatory process with CLL/SLL

Different IGHV mutation tests?

Confused

Anyone else have Moderna booster with side effects 6 months after 2nd shot?

How long does it take to feel better after coming off acalabrutnib for fatigue.

Antibodies Go Missing After COVID-19 Vaccination in Some Blood Cancer Patients

Are people with CLL and on watch and wait receiving a third vaccine in the UK in September?

Advice sought: on four day high dose dexamethasone

Does CLL make your lower legs swell ?

Night sweats and when they are bad enough ?

Update on Venclexta/Gazyva month 5

An interesting paper on diet and CLL progression

Neutropenia/low ANC and Ibrutinib/BTK Inhibitors

Australia and booster Covid Vaccines

Covid (3rd) Booster Shot Side Effects

Cytogenetics interpretation help needed

Bone Marrow Lesion

Moderna Booster compared to 1st and 2nd shot Moderna vaccines

hives with moderna booster?

Little bruises

Here Is A Good Article About Covid Antibody Levels. Explains In Simple Terms Why We Vaccinated "CLL'ers" Have Covid Protection....

Sinus and inner ear

REGENERON FREE CLINICS IN FLORIDA

Upcoming CLL Society COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected is taking place Friday, September 24th

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