Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for August 2016

What does this mean?

Hello, I'm a 23 year old male, and just had my blood tested today and came back with the following results: Lymphocytes 49.7% (norm. 25-40%) Neutrphils...

Hello, I'm a 23 year old male, and just had my blood tested today and came back ...

Nduman

•8 years ago

3 Replies

FCR stopped after cycle 5

What joy I was told at haematology clinic on Monday that I would not be having cycle 6 of FCR because there was no need. I had responded well and why put more...

What joy I was told at haematology clinic on Monday that I would not be having ...

Hidden

•8 years ago

8 Replies

Untreated Aussies needing treatment - great clinical trial just for you

I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients...

I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thi...

Debinoz

•8 years ago

16 Replies

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FCR Cycle 1

Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, great and if yes then how long did it take for hair loss to occur? Thank you

Hi, My dad is on day 2 of cycle 1 of FCR. Should he expect hair loss? If not, g...

Lena2016

•8 years ago

5 Replies

Medicines to treat side effects of other medicines? Sometimes less is more beneficial

'The evidence for the benefit of many medicines is less clear for older patients as randomised controlled trials generally study younger populations with no...

'The evidence for the benefit of many medicines is less clear for older patients...

AussieNeil

Administrator•8 years ago

2 Replies

Can't get rid of fevers and picking up colds and chesty

Hi I was only diagnosed 3 weeks ago and still waiting for results on cells and immune system. I have had the flu jab but can't seem to shake this tight chest...

Hi I was only diagnosed 3 weeks ago and still waiting for results on cells and i...

ABloor

•8 years ago

9 Replies

Health Check: do cough medicines work?

Sadly, due to our compromised immune system with CLL, coughs and colds can last much longer, which can be very fatiguing and set us up for dangerous secondary...

Sadly, due to our compromised immune system with CLL, coughs and colds can last ...

AussieNeil

Administrator•8 years ago

5 Replies

The difference between Leukemia and Lymphoma

Saw this on youtube for those of you wish to know. Fast forward to the 20 min mark. Dr. Najeeb is lecturing to MD students, but it is very easy to follow....

Saw this on youtube for those of you wish to know. Fast forward to the 20 min m...

nkferg

•8 years ago

8 Replies

Back from the hematologist, counts slowly rising.

Just got back from my visit with the hematologist. I am 55 years old. I was initially diagnosed in March 2015. WBC 15.5 ALC 10.0. I have 13q and mutated....

Just got back from my visit with the hematologist. I am 55 years old. I was i...

jjaarons

•8 years ago

12 Replies

Mosquito bites

I have never ever been bitten by a mozzy in my life. This year i took up lake fishing which is obviously still water so the little sods have set up camp...

I have never ever been bitten by a mozzy in my life. This year i took up lake fi...

grizzlebear

•8 years ago

2 Replies

Understanding Ibrutinib and dosing rationale

Dosing of Ibrutinib has come up for discussion on a number of forums and is on the minds of many patients. To further the discussion on this subject, Chris’s...

Dosing of Ibrutinib has come up for discussion on a number of forums and is on t...

ThreeWs

•8 years ago

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Firm diagnosis

Hi everyone. I've finally seen the specialist here and have had a firm diagnosis of cll stage II. My spleen is enlarged. If my platelets drop, I am told I...

Hi everyone. I've finally seen the specialist here and have had a firm diagnosi...

halfdiamond

•8 years ago

2 Replies

Healing period-waiting time to see good blood counts

I just wonder how long we have to wait to see that Imbruvica is working in the whole body. We are now 1 month time, and there is no signal in the blood...

I just wonder how long we have to wait to see that Imbruvica is working in the ...

chimini

•8 years ago

3 Replies

Ibrutinib

Has anyone ever had bleeding problems with ibrutinib?

Laurag78

•8 years ago

8 Replies

Aussie CLL

Hubby has had cll for 4 years, he's 45 yrs old and becoming symptomatic. Can anyone give me some information on drugs available in Melbourne Victoria?...

Hubby has had cll for 4 years, he's 45 yrs old and becoming symptomatic. Can any...

Fofow

•8 years ago

4 Replies

New in forum

New in the group. Husband diagnosed age 45, 2014. Started treatment after 2 months. GA101 and Bendamustine. 6 treatments. In remission now.

New in the group. Husband diagnosed age 45, 2014. Started treatment after 2 mont...

Wifecll

•8 years ago

4 Replies

Memory loss with Ibrutinib?

I was diagnosed with CLL In 2012. I was put on Ibrutinib until I was declared in remission in December 2015. Since then I have been made aware of several major...

I was diagnosed with CLL In 2012. I was put on Ibrutinib until I was declared in...

fish61

•8 years ago

19 Replies

Update, "best" and "worse"

Sorry that I have not posted an update re my Pancreatic Cancer diagnosis on top of my CLL, but it has been a very traumatic few weeks, and I have come to...

Sorry that I have not posted an update re my Pancreatic Cancer diagnosis on top ...

Ednarose

•8 years ago

16 Replies

White blood count doubled since March with CLL

I had a routine blood test this week at my doctors and my WBC has doubled from 25.1 to 51.7. I live in Greece and my Hematologist is in Athens (240km) from me...

I had a routine blood test this week at my doctors and my WBC has doubled from 2...

sukiskye6

•8 years ago

4 Replies

MRD Negative - no sweeter words!

There are harder things that waiting for biopsy results, hoping that you have managed to achieve remission after chemotherapy. Even if, as with our cancer, it...

There are harder things that waiting for biopsy results, hoping that you have ma...

KateEvaLen

•8 years ago

56 Replies

Vaccine for strep throat and rheumatic fever to be trialled in humans

'Infection with group A streptococcus bacteria (strep A) leads to a wide array of diseases. These range from uncomplicated infections such as strep throat...

'Infection with group A streptococcus bacteria (strep A) leads to a wide array o...

AussieNeil

Administrator•8 years ago

5 Replies

Imbruvica maintenance

This is the second time I have had CLL... I had it 9 years ago, and after a cocktail of infusion chemo with Rituxin and 2 other drugs....I went into remission...

This is the second time I have had CLL... I had it 9 years ago, and after a cock...

lyn26041

•8 years ago

17 Replies

Severe anemia

Since diagnosis at the beginning of May I have completed three rounds of FCR treatments. The first cycle went well and before second cycle my blood counts were...

Since diagnosis at the beginning of May I have completed three rounds of FCR tre...

Elremsetay

•8 years ago

11 Replies

Green Tea / Turmeric - Does it reduce ALC?

I was diagnosed 5/2016 with CLL. Currently in Watch and Wait. I am looking for a recommendation on the amount of Green Tea and Turmeric people are using per...

I was diagnosed 5/2016 with CLL. Currently in Watch and Wait. I am looking for a...

joebag55

•8 years ago

4 Replies

Development of infusion-related reactions in patients with CLL treated with obinutuzumab

This paper looks to try and understand infusion reactions from Gazyvaro (obinutuzumab)... study is on going... As external validation was limited and...

This paper looks to try and understand infusion reactions from Gazyvaro (obinutu...

Cllcanada

Recent Studies improve our understanding of how our spleen and liver 'Quality Check' our red blood cells and dispose of them respectively

Our spleen is where our tired old red blood cells have always been considered to be removed from our blood stream and the iron in the haemoglobin recycled....

Our spleen is where our tired old red blood cells have always been considered to...

AussieNeil

Administrator•8 years ago

3 Replies

CLL/Imbruvica question

I was diagnosed with CLL for the second time in 10 years. It is in my bones.... I have been taking 3 Imbruvica daily, and am experiencing some side effects......

I was diagnosed with CLL for the second time in 10 years. It is in my bones.... ...

lyn26041

•8 years ago

8 Replies

The Risk & Reward of Green Tea

I just replied to kathypawpaw's post from a few days back on her doctor's concern about her liver and decided I'd post it separately here as well. By...

I just replied to kathypawpaw's post from a few days back on her doctor's concer...

gemit2000

•8 years ago

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Rashes during chemo

Hello, My father has CLL for about 15 years now and had first round of chemo with bentamustine & rituximab 2 years ago when his WBC went too high. In Sept....

Hello, My father has CLL for about 15 years now and had first round of chemo wit...

yccymj

•8 years ago

8 Replies

Jumping for Joy

As promised, AmericanRonin's cheeky post has inspired this one. I just finished my third week of ibrutinib (and third week off of travel to OSU's clinical...

As promised, AmericanRonin's cheeky post has inspired this one. I just finished...

thompsonellen

•8 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2016

What does this mean?

FCR stopped after cycle 5

Untreated Aussies needing treatment - great clinical trial just for you

FCR Cycle 1

Medicines to treat side effects of other medicines? Sometimes less is more beneficial

Can't get rid of fevers and picking up colds and chesty

Health Check: do cough medicines work?

The difference between Leukemia and Lymphoma

Back from the hematologist, counts slowly rising.

Mosquito bites

Understanding Ibrutinib and dosing rationale

Firm diagnosis

Healing period-waiting time to see good blood counts

Ibrutinib

Aussie CLL

New in forum

Memory loss with Ibrutinib?

Update, "best" and "worse"

White blood count doubled since March with CLL

MRD Negative - no sweeter words!

Vaccine for strep throat and rheumatic fever to be trialled in humans

Imbruvica maintenance

Severe anemia

Green Tea / Turmeric - Does it reduce ALC?

Development of infusion-related reactions in patients with CLL treated with obinutuzumab

Recent Studies improve our understanding of how our spleen and liver 'Quality Check' our red blood cells and dispose of them respectively

CLL/Imbruvica question

The Risk & Reward of Green Tea

Rashes during chemo

Jumping for Joy

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