I just saw Con Tam at the Peter Mac in Melbourne today - I asked him when he thinks the trial of ibrutinib plus Venetoclax will open here for CLL patients (it's open for MCL and they're all doing well) and he said it's opening for treatment naieve in 3 months. Anyone approaching treatment here really should get a referral to him - I'm thinking of the likes of you Aussie Neil!!! This is a great combo and I wish I'd been able to access it. Meanwhile I'm on cycle 11 of my Venetoclax plus obinutuzimab trial and still commuting to London. My bloods all great and MRD 2 months ago was 0.01 percent (it was 81 percent at my sickest). Next BMB sept after a trip to Oslo to speak at a conference at the Oslo Cancer Hub (how lucky am I?). Con says he thinks I'll get to MRD negative and if I do choose to come off the drugs at that point I should be able to expect at least a 2 year remission. I'm now back at work full time and loving having my life back.
Best wishes to everyone here
dx Dec 2011 at 38, SLL Stage IV, del 6q, unmutated, rapidly progressed to CLL Stage 3. Three rounds of FCR Jan 2013 -MRD+ remission, relapsed Jan 2015 - clinical trial of ABT-199 plus Obinutuzimab started Nov 2015 - blog: abtandme.com