Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for August 2016

Paperwork

I am due to see my doctor again in mid September. I have a couple of questions before I go. For the past couple of months I have developed strange bumps on the...

I am due to see my doctor again in mid September. I have a couple of questions b...

Clsmith

•8 years ago

3 Replies

Finding a Cll specialist in South Wales, UK

Please could I have some names of Cll specialists that people would recommend I have tried to email Chris Fegan but have not heard anything so I assume he is...

Please could I have some names of Cll specialists that people would recommend I...

Bonnie-5

•8 years ago

17 Replies

Distressed

Hi I was diagnosed earlier this week with CLL. The hematologist stressed that my CLL is slow growing and not to be frightned; however, in reading my flow...

Hi I was diagnosed earlier this week with CLL. The hematologist stressed that m...

Ned1

•8 years ago

18 Replies

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Should I be concerned

I saw on my blood results "occasional" anisocytosis, poikilocytosis, burr cells, ovalocytes and schistocytes. Is this normal for CLL or is this sign of...

I saw on my blood results "occasional" anisocytosis, poikilocytosis, burr cells,...

Jill4

•8 years ago

2 Replies

Finding a CLL specialist in Scotland

Does anyone know if there is a CLL specialist in Edinburgh ?

perfecteverytime

•8 years ago

2 Replies

Terry Evans Discusses his Evolution as a CLL Patient and Advocate

It has been incredibly busy since I returned stateside at LAX late last Monday after leaving Nairobi on Sunday. Between the jet lag and catching up with work...

It has been incredibly busy since I returned stateside at LAX late last Monday a...

bkoffman

CLL CURE Hero•8 years ago

9 Replies

Hematologist visits.

How often do you see your hematologist? I am due for a visit on Monday and have my blood work done and then see him every three months. I am WW stage 0, and...

How often do you see your hematologist? I am due for a visit on Monday and have ...

meemsdream

•8 years ago

20 Replies

Question about wax and wane

Hi All, I've been enjoying a nice remission for about 2 years. Now I have a cluster of swollen nodes in my neck and a strange large cluster of nodes in my...

Hi All, I've been enjoying a nice remission for about 2 years. Now I have a clus...

springie

•8 years ago

2 Replies

Rare infiltration of CLL resulting in brain lesions

I was diagnosed CLL 2 years ago. From early diagnosis I experienced a tingling in my face. This developed gradually to affect other parts. Four months ago my...

I was diagnosed CLL 2 years ago. From early diagnosis I experienced a tingling i...

perfecteverytime

•8 years ago

10 Replies

WHAT NEXT?

Hello Friends I am an 80 year old male based in the UK ,about to require treatment having suffered a relapse following B+R treatment 5 years ago.I am unsure...

Hello Friends I am an 80 year old male based in the UK ,about to require treatm...

DJANGO

•8 years ago

12 Replies

Common lumps and bumps on and under the skin: what are they?

With a diagnosis of SLL/CLL comes a heightened awareness of any new lumps and bumps; is our CLL becoming aggressive, do we have Richter's Transformation, or is...

With a diagnosis of SLL/CLL comes a heightened awareness of any new lumps and bu...

AussieNeil

Administrator•8 years ago

6 Replies

A mother with CLL

My mother was diagnosed with CLL before 10 months. Doctors have no given her any medication yet.. I wanted to communicate with people who went through a...

My mother was diagnosed with CLL before 10 months. Doctors have no given her any...

lily2016

•8 years ago

4 Replies

Adding additional chemo

I am being treated for CLL for the second time after being in remission for 9 years...which is a blessing. I am currently taking oral Imbruvica... My most...

I am being treated for CLL for the second time after being in remission for 9 ye...

lyn26041

•8 years ago

29 Replies

Pregnancy and cll/sll

My daughter was diagnosed in May 2015 at 29 years old. She is currently on watch and wait,being seen NYC every 4 mos and her numbers are steady and the first...

My daughter was diagnosed in May 2015 at 29 years old. She is currently on wat...

DPhillips

•8 years ago

16 Replies

OSU Trial Cycle 3, Week 2

Hi everyone, I just got back from OSU for my second venetoclax escalation, which once again required an inpatient stay. It was a repeat of exactly what...

Hi everyone, I just got back from OSU for my second venetoclax escalation, which...

thompsonellen

•8 years ago

5 Replies

sweats

Hi can anyone tell me can you get drenching sweats through the day as well as night do these count as B symptom.I sweat at night but not drenching they happen...

Hi can anyone tell me can you get drenching sweats through the day as well as ni...

buzzybab

•8 years ago

12 Replies

What the nap apps can really tell you about your sleep

'Did you sleep well last night? If your answer is “no”, there could be an app or a gadget that could help you with that. But are they any good? Do they...

'Did you sleep well last night? If your answer is “no”, there could be an app or...

AussieNeil

Administrator•8 years ago

4 Replies

Jaw pain anybody ?

My haematologist doesn't seem to think my jaw pain has anything to do with my nodes as they are not too remarkable. Also bit of shooting pain in temple area...

My haematologist doesn't seem to think my jaw pain has anything to do with my no...

kitcat49

•8 years ago

13 Replies

Health Check: does green mucus mean you’re infectious and need antibiotics?

While this article is written for the general public, not for those with CLL, I found the description of how our mucal secretions vary through the normal...

While this article is written for the general public, not for those with CLL, I ...

AussieNeil

Administrator•8 years ago

8 Replies

Idelalisib & 17p deletion

Is anybody else on my "whacky" journey with this most difficult prognosis.. It'd be good to share experiences and thoughts... Positivity all the way!

Is anybody else on my "whacky" journey with this most difficult prognosis.. It'...

spud2212

•8 years ago

13 Replies

How to tell if CLL sweats or Menopausal hot flushes?

Hi, Angie here - 55 years old and 7 years with CLL, in the UK - for the past couple of months ive started having hot flushes during the day (nothing bothering...

Hi, Angie here - 55 years old and 7 years with CLL, in the UK - for the past cou...

AnjiP

•8 years ago

20 Replies

Interesting

I came upon this article this morning...

Swissnology

•8 years ago

6 Replies

Nuvigil---- WOW

I have been fighting the weary to the bone fatigue for months now. I got so tired of being just a lump laying in the house. I'd just go to the store and come...

I have been fighting the weary to the bone fatigue for months now. I got so tire...

bobbatt

•8 years ago

18 Replies

Free Services For Cancer Patients Thursday, Jun 16, 2016 by Brian English

Some of these services are disease or gender specific, but this list should provide a great head start for finding volunteer organizations. This list is by no...

Some of these services are disease or gender specific, but this list should prov...

SouthFloridaLady

•8 years ago

Be the first to reply

4 weeks post FCR

Hi All, been a tough last 10days, 2 hospital visits with one of them an overnight stay. Temperature has been spiking at 39 and still continues to do so....

Hi All, been a tough last 10days, 2 hospital visits with one of them an overnigh...

jackhammer

•8 years ago

4 Replies

Where antibiotics come from - and news of a possible new antibiotic from right under our noses!

'Humans have a microbiome that covers the body’s entire surface area, inside and out, and numbers around 10-100 trillion symbiotic microbial cells. The...

'Humans have a microbiome that covers the body’s entire surface area, inside and...

AussieNeil

Administrator•8 years ago

3 Replies

New Therapeutic Strategies for the Practicing Clinician - Dr Jeff Jones, Ohio State Uni

Clinical Options hour long video from a live meeting with Jeffrey A. Jones, MD, MPH, as he presents key concepts related to disease management and...

Clinical Options hour long video from a live meeting with Jeffrey A. Jones, MD,...

AussieNeil

Administrator•8 years ago

2 Replies

Idelalisib & 17p deletion

Some advice needed! I was diagnosed 18months ago at the age of 50 with CLL plus 17p deletion and have been on Idelalisib since last October (CALIBRE trial) I...

Some advice needed! I was diagnosed 18months ago at the age of 50 with CLL plus ...

spud2212

•8 years ago

3 Replies

Cycle 3, Day 1 and 2 of Obin, Ibrutinib, Venetoclax Trial

I'm back from Columbus again. Cycle 3 is when they start administering the third drug, venetoclax, to the trial participants. They required those of us deemed...

I'm back from Columbus again. Cycle 3 is when they start administering the thir...

thompsonellen

•8 years ago

4 Replies

One day at a time

Just diagnosed with cll andsll. I have just returned from Mdanderson after having a bone marrow biopsy. I just received the results this week. I really...

Just diagnosed with cll andsll. I have just returned from Mdanderson after hav...

Sallyurnotal

•8 years ago

13 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2016

Paperwork

Finding a Cll specialist in South Wales, UK

Distressed

Should I be concerned

Finding a CLL specialist in Scotland

Terry Evans Discusses his Evolution as a CLL Patient and Advocate

Hematologist visits.

Question about wax and wane

Rare infiltration of CLL resulting in brain lesions

WHAT NEXT?

Common lumps and bumps on and under the skin: what are they?

A mother with CLL

Adding additional chemo

Pregnancy and cll/sll

OSU Trial Cycle 3, Week 2

sweats

What the nap apps can really tell you about your sleep

Jaw pain anybody ?

Health Check: does green mucus mean you’re infectious and need antibiotics?

Idelalisib & 17p deletion

How to tell if CLL sweats or Menopausal hot flushes?

Interesting

Nuvigil---- WOW

Free Services For Cancer Patients Thursday, Jun 16, 2016 by Brian English

4 weeks post FCR

Where antibiotics come from - and news of a possible new antibiotic from right under our noses!

New Therapeutic Strategies for the Practicing Clinician - Dr Jeff Jones, Ohio State Uni

Idelalisib & 17p deletion

Cycle 3, Day 1 and 2 of Obin, Ibrutinib, Venetoclax Trial

One day at a time

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