MDS World Awareness Day today 25th October 2015

[Gforce1]

Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here mdspatientsupport.org.uk. Best regards Glyn

[Cllcanada Top Poster CURE Hero]

Thanks for the link... MDS/AML is a rare complication in CLL/SLL and I agree that there is scant information about it on this support group...

Chaya Venkat, has an informative article on it, and while it is a bit old, the fundimentals are the same...

updates.clltopics.org/2126-...

I noted that that the Shingles vaccine, a live vaccine is not recommended for

MDS patients... similar to CLL/SLL.

~chris

[Gforce1 in reply to Cllcanada]

Thanks for responding Chris - I'd never heard of it either until they told me I had it but not before every possible test had been done. My GP didn't know what it was either & then when I developed this pesky fungal thing (Aspergillus) he'd heard of it but had never treated anyone with it in 40 yrs (?) - guess there's still lots to learn in the medical world. Best G

[Cllcanada Top Poster CURE Hero in reply to Gforce1]

The frustratating thing to my mind, is that MDS is not one thing, but a group of 'syndromes' many without known causes...

Here is a link from the US that explains it.

mds-foundation.org/what-is-...