Keeping yourself and others safe on HealthUnlo... - CLL Support

CLL Support

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Keeping yourself and others safe on HealthUnlocked - Reporting Posts and Private Messages (Chat)

AussieNeil profile image
AussieNeilAdministrator
12 Replies

To Report inappropriate Private Messages, posts or replies, just select 'Report' at the bottom right of the PM, post or reply.

Please note that reported posts and replies go to the community admins for review and appropriate action, but reported Private Messages go to HealthUnlocked. If HealthUnlocked agree that the reported PM is against HU guidelines, they may ban the sender from all 700+ HU communities.

Your community administrators are listed in our Community About page: healthunlocked.com/cllsuppo...

You can either send a PM to one of our admin team or use the [Contact us] blue button to contact all the administrators or a selection of them.

Other Online Security Tips:

healthunlocked.com/cllsuppo...

Neil

Last updated 10th January 2022

12 Replies

Hi Neil or Good day

I'm surprised people would send inappropriate private messages this is a support site after all not a dating agency................Ok I will stop doing it ;)

Jules

6ft 1in 16st ish dark hair dark eyes likes Cycling

SouthFloridaLady profile image
SouthFloridaLady

This is very good to know and be reminded of. I was an administrator of a NHL cancer support page of about 4,500 people on Facebook, and there were many strange things going on. Besides offering support and watching the activities, my main concern was to scrutinize the profile of the new requests to approve. I put my 'heart and soul' into It, as I see that Aussie Neil does and I thank him greatly for his time and efforts! 😍

AussieNeil profile image
AussieNeilAdministrator in reply to SouthFloridaLady

On behalf of my fellow administrator HAIRBEAR and the volunteers that keep us all safe (with Newdawn deserving particular mention), thanks SouthFloridaLady. Spammers know when to target communities, but thanks to that shared vigilance, our community is kept safe around the clock.

Neil

AussieNeil profile image
AussieNeilAdministrator

Bump of this post; given yesterday's inappropriate action by a now banned past member of HealthUnlocked.

Neil

KL2018 profile image
KL2018

Sunday I had two new CLL friends to dinner with me and my husband. I told my heme-onc and was sternly told “to be careful, that crazy people get cancer too!” It gave me a giggle as they are lovely people, but I suppose he has a point.

Newdawn profile image
NewdawnAdministrator

Good reminder Neil. My observation would be...if you receive an unwelcome or unsavoury private message (pm/chat), please report it to HU using the dots at the bottom as described by Neil. This is a better strategy than engaging with the unwelcome ‘chatter’ because once a member has been in pm contact with you, they can continue to do so even if they are restricted from another community. Only a total HU ban takes the person off the HU site completely.

There’s always chancers and opportunists around and sadly some scammers will actively target what they view as more vulnerable members such as people with cancer.

Don’t get into private conversation with them, simply report to HU and if any distress is caused, alert one of the Administrators.

Regards,

Newdawn

AussieNeil profile image
AussieNeilAdministrator

Just bumping this post into Newsfeed to remind everyone how to report inappropriate content.

Neil

Canuck901 profile image
Canuck901

Who was banned and why ? Just. Curios

AussieNeil profile image
AussieNeilAdministrator in reply to Canuck901

2 years ago? My memory isn't that good :)

Jm954 profile image
Jm954Administrator in reply to Canuck901

No one has been banned recently (the previous comment was 2 years old), it’s just a reminder of how to deal with this type of thing that we post from time to time.

Jackie

AussieNeil profile image
AussieNeilAdministrator

If you read something posted to our community which you believe is dangerously misleading, please report it.

From a study published online on July 22 in the Journal of the National Cancer Institute, "One in three of the most popular news and feature articles on social media about the treatment of the four leading cancers in the United States contains misinformation, and the majority of those have the potential to harm patients, according to a new analysis.

Of the 200 most popular articles (50 each for prostate, lung, breast, and colorectal cancer), about a third (32.5%, n = 65) contained misinformation.

Among these articles containing misinformation, 76.9% (50/65) contained harmful information.

“The Internet is a leading source of health misinformation,” the study authors wrote. This is “particularly true for social media, where false information spreads faster and more broadly than fact-checked information,” they said, citing other research.

:

The ideas and claims in such articles can be very influential, Jennifer L. Lycette, MD, suggested in a recent blog post.

“After 18 years as a cancer doctor, it sadly doesn’t come as a surprise anymore when a patient declines treatment recommendations and instead opts for ‘alternative’ treatment,” she wrote.

:

The misinformation was described as misleading (title not supported by text or statistics/data do not support conclusion, 28.8%), strength of the evidence mischaracterized (weak evidence portrayed as strong or vice versa, 27.7%) and unproven therapies (not studied or insufficient evidence, 26.7%).

Notably, the median number of engagements, such as likes on Twitter, for articles with misinformation was greater than that of factual articles (median, 2,300 vs. 1,600; P = .05)."

mdedge.com/hematology-oncol...

Neil

AussieNeil profile image
AussieNeilAdministrator

HealthUnlocked have just banned a new member from the entire site, after several admins reported them for following an excessive number of members and asking for contact details via Chat. Sadly, we currently need to maintain a heightened awareness of potential online threats, so please report any suspicious posts, replies or Chats/PMs per the processes outlined in the post above.

Neil

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