Nutrition advice: Hello everyone, I'm a 50 year... - Ataxia UK

Ataxia UK

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Nutrition advice

StandByMe2 profile image
7 Replies

Hello everyone,

I'm a 50 year old male and have recently been diagnosed with Ataxia due to hereditary SPG7. Has anyone got any advice about what I should eat or avoid eating and what supplements I could try? Many thanks

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StandByMe2 profile image
StandByMe2
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7 Replies
wobblybee profile image
wobblybee

🙂 Unless someone has been specifically advised otherwise..this is general advice..

ataxia.org/wp-content/uploa...

🤔If you’re on Facebook…there are specific SPG7 Support Groups.

StandByMe2 profile image
StandByMe2 in reply to wobblybee

Many thanks

ReluctantShopper profile image
ReluctantShopper

Hi I have just read your post and I am looking for 'guinea pigs' before I launch myself on the unsuspecting paying public as I will hopefully qualify as a naturopathic nutritional therapist by the end of November. My husband has idiopathic ataxia and change in his diet has reduced his fatigue considerably but his balance is stubbornly not improving. Though I will be reviewing his supplement regime once I have finished studying. A nutrional therapist not only advises on dietary changes but also how to implement such changes which argueably is the hardist bit. Best wishes

StandByMe2 profile image
StandByMe2 in reply to ReluctantShopper

Thank you and good luck.

StandByMe2 profile image
StandByMe2

Thank you

7151 profile image
7151

Hi in thé beging pf THIS horreur i spent too much money on so much stuff THAT basicaly did nothing so i stick with omega 3 fish oil,spiraline , magnésium vitamine b., b 12 ! Iron ! Calcium d and Will soo take vit c ( when thé summer is over ) after years of many blood tests loads of scans ( we know there are 8 forms of antakia ! In january i had à puncture lumber , i now have à médical name polynerite that changes nothing there is no cure only physiothérapie that i go to à wonderful clinique once à week ,unfortuatly not only do i have balance problems i now have difficulty swollowing so basicaly live on complément foods i sometimes feel i chocking all good fun but i m enjoying life can no longer go shoping have 2 wonderful home helps..to be able to go to à concert i have à wheel chaire luckily i can still drive but i know my limite only very small distances getting harder to undress in thé everning i live on my own and refusé to leave my little house dont give up and battle on there are worse illness Good luck keep happy and active i save dogs and cats XX

StandByMe2 profile image
StandByMe2 in reply to 7151

Thank you

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