How fast does Ataxia normally progress?

[HhahahaaHaha]

Hi all

I am having ataxia symptom since around age of 21, was only get it diagnose around age 26, this year i am 32 by the way. My doctor could not diagnose what kind of ataxia i have, hence she just say this is idiopathic ataxia.

For me, the ataxia have been progress slowly but steadily worse. I am not able to run, but still can do alot of walking and even going to the gym for strength and balance training. Currently i am still working and my colleague didn't even know that i have ataxia as the symptom does not show when i am walking on flat and nice surface.

I would like to have a child, however i am worry that with the progress of ataxia, i am not able to take care of my child, any advise in this matters?

[wobblybee]

Generally speaking..it isn’t possible for a Neurologist to predict the exact progress of any type of ataxia.

In the UK….a certain amount of genetic testing is done after an initial appointment..but finding the cause is sometimes evasive.

If you did have genetic testing done, and a link with a specific type was found….it would be possible to have Predictive Testing on eggs..to eliminate the chance of passing the gene on..similar to IVF.

🙂Lots of people do go on to have a family..and they cope. Obviously it does depend on the specific type diagnosed, some types are notably more progressive and disabling than others. In the case of someone being Idiopathic… it will be a case of ‘wait and see how symptoms progress’.

I’m Idiopathic myself..my symptoms started when my youngest child was age 6..at the time I was in my mid 40s. Now..I’m 73, still walking..but I cope with progressive Vestibular issues and need a rollator for safety.