Tasigna (Nilotinib) as a treatment/cure for FA?

[Wheelboy010]

Hello dear,

I read that a few years ago there was conducted a medical study regarding Tasigna nilotinib and hereditary ataxia. I have heard many positive experiences from people with hereditary ataxia who have used the medication. I myself have Friedreich ataxia.

* Friedreich's ataxia is an inherited, rare cause of ataxia. People with ataxia have trouble coordinating their movements. Ataxia occurs in a variety of conditions and diseases. Some symptoms that may occur are:

Muscle weakness in arms and legs

Coordination issues

Limited eyesight

Hearing loss

Slurred Speech

scoliosis

Diabetes mellitus

Cardiac disorders (atrial fibrillation, cardiomyopathy)

I am very interested in Tasigna nilotinib.

I would like to know whether this medication will also have positive effects for me?

Thank you in advance!

[wobblybee]

Omaveloxolone.. is the current treatment for Friedreichs Ataxia. It is approved in Europe..but not yet in the U.K.

skyclarys.com

investors.biogen.com/news-r...

There are no results for this trial

clinicaltrials.gov/search?c...

[Tiggywinkles in reply to wobblybee]

It's got approved (Skyclarys) in the EU in February but still waiting for it in the UK.

[wobblybee in reply to Tiggywinkles]

🙂Thank you…sincere apologies for the previous post.

investors.biogen.com/news-r...

[Tiggywinkles in reply to wobblybee]

No problem, I have FA so know EXACTLY (!) what is happening with the drug approval 🙂