Just wondering whether this is ataxia related - presumably sensory or peripheral neuropathy - or not (essentially do I ask now or wait and bring it up when I next have a routine neurology appt).
For years I’ve had impaired sensation in my hands and forearms and I’ve put it down to calloused, desensitised skin because I cut and burn myself so frequently. When I burn myself cooking I do 10 mins under running water because rationally I know what the consequences are, not because It hurts.
Last time I had the wrong bit of my arm under running water (the resulting wound not pretty) and this week I’ve cut my fingertips twice (it’s only Tuesday...) chopping veg, but not realised until I see blood in the bowl.
When I’ve seen a neurologist in the past (UK) I’ve been stabbed with the little pin with nothing flagged, but I think they mainly stab you on the feet? The little pin and big tuning fork make me laugh in cerebellar exams. Way more fun than your run-of-the-mill medical appt 🤪
Hi Mary 🙂 If your Neurologist isn’t already aware that you’ve given yourself injuries, it’s probably time to clear the air. I don’t know what can be done about it, but clearly it’s becoming a problem. At the moment reviews and appointments are likely to be done by phone or Skype, and it could be a while till your next one. You could ring your Neurologists Secretary and explain why you need advice, it might be possible to have a call back.
Thank you wobblybee. Good tip about ringing the neurologists secretary, I assumed I’d have to go through my GP x