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CLL Support

23,253 members•39,949 posts

All posts for May 2021

Pfizer Vaccine/Ibrutinib

Hi everyone. Has anyone on Ibruitinib had the Pfizer vaccine and did any of you produce an antibody response to one or both? Just asking as I have seen a...

Hi everyone. Has anyone on Ibruitinib had the Pfizer vaccine and did any of you ...

shellsb

•3 years ago

8 Replies

Please take a look, I'd really appreciate any help!! 💜

Hello everyone, I've been struggling with so much for years. I'll try to sum it up. It started with me loosing weight, about 75lbs within 6 months,...

Hello everyone, I've been struggling with so much for years. I'll try to sum it ...

Lovemyfamily05

•3 years ago

15 Replies

Please share your LLS Study Results on this thread-Thanks!

Please share your LLS Study Results on this thread! Thanks!

Txkate

•3 years ago

41 Replies

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Travel Insurance with CLL (UK based)

I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare...

I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any...

Stretch47

•3 years ago

15 Replies

WM

Does anyone on here have WM, or am I on the wrong site?

Clubhouse

•3 years ago

8 Replies

96% Brits develop antibodies after Covid Vac

Over 8000 people in this study. Interestingly antibodies might not develop until month after shot, Pfizer or AZ. It’s not broken down to people with pre...

Over 8000 people in this study. Interestingly antibodies might not develop until...

YelvertonDevon

•3 years ago

2 Replies

Doctor wants to start Venetoclax today but recent blood work shows evidence of AIHA but Doctor still says start Ven

shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 months ago now 10.7 Haptoglobin less than 31 LDH almost 700 Doctor says still...

shouldn't AIHA be treated first? hemoglobin dropping weekly down from 14.7 2 mon...

Palmetto

•3 years ago

9 Replies

Dr. John Byrd: Monitoring Vaccination Effectiveness for Preventing SARS-CoV-2 Infection & COVID-19 Syndrome in CLL

CLL Society's new Opinion Page: Dr. John Byrd on Monitoring Vaccination Effectiveness for Preventing SARS-CoV-2 Infection and COVID-19 Syndrome in CLL: A...

CLL Society's new Opinion Page: Dr. John Byrd on Monitoring Vaccination Effectiv...

bkoffman

CLL CURE Hero•3 years ago

9 Replies

Chronic Lymphocytic Leukemia - CLL: When Being Fully Vaccinated for Covid-19 Doesn’t Mean Fully Protected

[This is an UNLOCKED post so it is searchable for both non-members and members of Health Unlocked’s CLL Support. Here is the identical locked post for...

[This is an UNLOCKED post so it is searchable for both non-members and members...

KatieBlue

•3 years ago

This is huge!

Now it appears a rapid T-cell test has been developed that determines whether one has a longer (relative to antibodies) term immunity against COVID. So this is...

Now it appears a rapid T-cell test has been developed that determines whether on...

Luap001

•3 years ago

19 Replies

Roundup

I have a claim and there will be a settlement. No real hard proof is necessary. You do need to show medical treatment, in my case ibrutinib. I also had a...

I have a claim and there will be a settlement. No real hard proof is necessary....

barger1951

•3 years ago

16 Replies

Antibody results just said “yes,” not level

Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies....

Last week I had an antibody test at my dermatologist’s (who has a vested interes...

Myfavoritecat

•3 years ago

8 Replies

Any suspected causes of CLL?

ImGrammy

•3 years ago

2 Replies

Spike antibody test query

Can anyone confirm if its sensible to get a Spike antibody test privately and if so, which is the right type. I've had the Astra Zenica x 2 vaccine, more than...

Can anyone confirm if its sensible to get a Spike antibody test privately and if...

Jake_Bullet

•3 years ago

8 Replies

Dental care

Has anyone else been told that they cannot receive routine dental inspection, clean and polish, because of COVID? I have emailed my practice with up to date...

Has anyone else been told that they cannot receive routine dental inspection, cl...

Pinkdark2018

•3 years ago

14 Replies

Possible cause of CLL

I think that mine was caused from my nearly 3 million miles of air travel, almost always seated at the window. I traveled for business coast-to-coast every...

I think that mine was caused from my nearly 3 million miles of air travel, almos...

Waterskier

•3 years ago

7 Replies

Is there anybody with CIFIDS/ME on ibrutinib?

I am very anxious to speak with someone who can validate my experiences on ibrutinib. People with chronic fatigue immune deficiency syndrome can be more...

I am very anxious to speak with someone who can validate my experiences on ibrut...

denmanjemima

•3 years ago

8 Replies

Lookibg for CLL SPECIALIST

I presently go to a hematologist/oncologist. Want to see a Cll Specialist. Can anyone advise me. I live in ct. I could travel to New York city

I presently go to a hematologist/oncologist. Want to see a Cll Specialist. Ca...

Pokerplayer1

•3 years ago

13 Replies

New CDC guidance re Masks

In the USA, the CDC seems to have shot itself in the foot or at least thrown kids, CLL'ers, and other immune-compromised under the bus. It has decided that...

In the USA, the CDC seems to have shot itself in the foot or at least thrown kid...

whmk

•3 years ago

41 Replies

Monoclonal Antibodies: April 18, 2021

Excellent Summary Published in USA Today. Search: 'Like somebody gave me a happy pill': Monoclonal antibodies help Americans most at risk for COVID-19...

Excellent Summary Published in USA Today. Search: 'Like somebody gave me a happ...

Yuck

•3 years ago

3 Replies

MRD ACHIEVED

My face to face on Friday went amazingly well, after FCRas part of the flair trial, finished end of January BMB, CT, BLOODS, consultation confirmed MRD has...

My face to face on Friday went amazingly well, after FCRas part of the flair tri...

Wiganmc

•3 years ago

13 Replies

Living with CLL

I was diagnosed with CLL in 2006 by a surgeon following an operation he said there something wrong with you blood and referred me to the haematology depart,...

I was diagnosed with CLL in 2006 by a surgeon following an operation he said th...

2gizzy

•3 years ago

3 Replies

Obinutumab plus venetoclax in cll

My father got diagnosed cll october 2009,was on wait and watch till mid 2014,then given R-bendamustine and was on remission till october 2016,then started...

My father got diagnosed cll october 2009,was on wait and watch till mid 2014,the...

Rameshchag

•3 years ago

3 Replies

CLL Society Webinar May 27th! Get Maximum Benefit from Your Doctor Appointments!

Get Maximum Benefit from Doctor Appointments! On Thursday, May 27th join CLL Society for our upcoming webinar, Becky McAlpin, a Nurse Practitioner with many...

Get Maximum Benefit from Doctor Appointments! On Thursday, May 27th join CLL Soc...

bkoffman

CLL CURE Hero•3 years ago

Be the first to reply

Second COVID vaccine after negative antibody test

My serology came back negative after the Pfizer vaccine. Has anyone gotten a non-mRNA vaccine after a negative serology? Did it make a difference

My serology came back negative after the Pfizer vaccine. Has anyone gotten a no...

NormanNewYork

•3 years ago

3 Replies

Tophaceous Gout and CLL Drugs

I have had CLL for nine years and have been in nearly constant treatment except for about 30 months in the 2016-2018 time frame. In the past several month I...

I have had CLL for nine years and have been in nearly constant treatment except ...

KevinCLLITP

•3 years ago

1 Reply

Dr Byrd's Post

Brian Koffman posted an excellent piece by Dr Byrd on Covid vaccination and CLL :...

Brian Koffman posted an excellent piece by Dr Byrd on Covid vaccination and CLL ...

ikahan

•3 years ago

4 Replies

Any one know

Hi Goodmorning, Any one heard how the trials were going for an alternative to the current vaccines for immunocompromised people , I know they started it a few...

Hi Goodmorning, Any one heard how the trials were going for an alternative to th...

stewie

•3 years ago

4 Replies

Looking for a CLL specialist. Suggestions anyone?

Have been reading lots of posts about going to a CLL specialist. Unfortunately in India, we don’t have any. If someone can suggest me a CLL specialist who...

Have been reading lots of posts about going to a CLL specialist. Unfortunately i...

Soultouch

•3 years ago

17 Replies

Is 5.6 x 10^9 lymphocytes high?

Through a routine blood work, results showed my lymphocytes exceeded the normal range of 3.5. Based off the report and the pathologists notes, it says...

Through a routine blood work, results showed my lymphocytes exceeded the normal ...

simit

•3 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2021

Pfizer Vaccine/Ibrutinib

Please take a look, I'd really appreciate any help!! 💜

Please share your LLS Study Results on this thread-Thanks!

Travel Insurance with CLL (UK based)

WM

96% Brits develop antibodies after Covid Vac

Doctor wants to start Venetoclax today but recent blood work shows evidence of AIHA but Doctor still says start Ven

Dr. John Byrd: Monitoring Vaccination Effectiveness for Preventing SARS-CoV-2 Infection & COVID-19 Syndrome in CLL

Chronic Lymphocytic Leukemia - CLL: When Being Fully Vaccinated for Covid-19 Doesn’t Mean Fully Protected

This is huge!

Roundup

Antibody results just said “yes,” not level

Any suspected causes of CLL?

Spike antibody test query

Dental care

Possible cause of CLL

Is there anybody with CIFIDS/ME on ibrutinib?

Lookibg for CLL SPECIALIST

New CDC guidance re Masks

Monoclonal Antibodies: April 18, 2021

MRD ACHIEVED

Living with CLL

Obinutumab plus venetoclax in cll

CLL Society Webinar May 27th! Get Maximum Benefit from Your Doctor Appointments!

Second COVID vaccine after negative antibody test

Tophaceous Gout and CLL Drugs

Dr Byrd's Post

Any one know

Looking for a CLL specialist. Suggestions anyone?

Is 5.6 x 10^9 lymphocytes high?

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