WM

[Clubhouse]

Does anyone on here have WM, or am I on the wrong site?

[AussieNeil Partner Administrator]

We do have some members with Waldenström's macroglobulinemia, as CLL shares treatment drugs with WM, so we also share side effect experiences. Unfortunately, we can't provide specific support for WM, but given it is a close cousin of CLL and quite rare, I expect it will be hard to find much specific support elsewhere. So welcome, but do keep in mind that much that is shared is CLL specific.

Neil

[Clubhouse in reply to AussieNeil]

Yes, I’ve been finding people’s comments and experiences interesting and quite parallel in many ways. Thank you for your response.

[cllady01 Former Volunteer in reply to Clubhouse]

Also, Clubhouse, since you do not have CLL, but still may want to ask a question in regard to a treatment, it helps us if you mention that you have WM in any post.

[Clubhouse in reply to cllady01]

Thank you everyone!

[lankisterguy Volunteer]

Hi Clubhouse, -

As the other replies from AussieNeil and cllady01 say, we have a "big tent" and welcome those with similar blood cancers like WM, MZL, FL but are not always aware of when those deserve different answers from our CLL experiences.

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It will help us if you fill in your profile here healthunlocked.com/user/Clu... and use EDIT profile to provide your location / country etc, but especially fill in your diagnosis and treatment history in the upper area that now says "Hi! I’m Clubhouse"

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You can find more pointers about how best to work with us in this "Pinned Post"

healthunlocked.com/cllsuppo....

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Welcome to our group.

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Len

[Clubhouse in reply to lankisterguy]

Thank you!

[Phil4-13]

You are welcome and hope this forum can give you some insight on how to manage your healthcare. You are sent best wishes! Sandra😊

[Clubhouse in reply to Phil4-13]

Yes, it’s been interesting so far; especially hearing comments about ibrutinib. Thank you!