Please share your LLS Study Results on this th... - CLL Support

CLL Support

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Please share your LLS Study Results on this thread-Thanks!

Txkate profile image
Txkate

Please share your LLS Study Results on this thread! Thanks!

41 Replies

Yesterday I received my test results but had no idea what the number meant. My daughter and I did some research and it looks like 250. 0 in one study is some kind of a normal benchmark. I predict the LLS Study will be running additional tests in the future to see if there is a drop in the antibody amount over time. For me an important understanding is that the antibodies are what teach our B & T cells to recognize invaders for future attacks. I know this is a simplistic understanding of the process, but it helps me understand that the number isn’t the tell all as others have said because our immune systems are so complex. So, I look at the vaccine as providing a group of teachers for my cells, with no guarantee the students will learn, just hoping they do! Stay Safe!

2016Longevity profile image
2016Longevity in reply to Txkate

48.7

2016Longevity profile image
2016Longevity in reply to Txkate

how many weeks or months after your second jab did you take the LLS study antibody test? my husband 4-half wks after 2nd Pfizer shot (48.7) ..

Txkate profile image
Txkate in reply to 2016Longevity

Thanks for sharing!

lankisterguy profile image
lankisterguyVolunteer

My LabCorp Portal Screen shot 101.70

LabCorp Portal Screen shot

how many weeks or months after your second jab did you take the LLS study antibody test?

lankisterguy profile image
lankisterguyVolunteer in reply to 2016Longevity

3 weeks after the 2nd Pfizer shot

Txkate profile image
Txkate in reply to lankisterguy

Thanks for posting!

28.11 for me and 250 for my wife, both positive but a significant difference. Tests were taken two months after our second Pfizer jab.

Txkate profile image
Txkate in reply to SlowCLL

Wow-my husband didn’t have his done but it would be nice to know the difference.

I had my last Moderna on 3/4/21. Had my LLS Study tests on 5/13. Hoping they do another in a month.

J&J shot, 100 score

Pin57 profile image
Pin57 in reply to Pin57

J&J stab 3/6...And LLS study LabCorp stab 4/20.

Txkate profile image
Txkate in reply to Pin57

Thanks for posting!

Mine is 1.0 - Six weeks after second Moderna vaccine.

mine was 6.97 two months after my Moderna shots

ElMaga profile image
ElMaga in reply to ElMaga

my best friend who does not have CLL nor any known disease received a zero on her antibody test; go figure

Four weeks after my second Pfizer shot, my spike protein antibody level was > 250. I have been “ watch and wait” since dx in 2009. I hope the LLS study does retest at four snd dux months to see if we retain our original level of protection.

Txkate profile image
Txkate in reply to dkay

They would give them the best info and would also pick up people that are developing anti’s later. There seems to be no known time for developing them from what I read yesterday so some people at 0 or lower numbers may actually still be in process. CBS morning yesterday ran a piece on a Doctor that had had a transplant and he was a 0 because of the meds he takes and when they did a 3rd shot it finally boosted him enough to start making them. I will see if I can find that video and will post.

Mine was >250, 3 weeks after second Moderna shot. I have been on Ibrutinib for 16 months.

Txkate profile image
Txkate in reply to Mprm

Wow-that’s awesome!

On Ibrutinib for 2 years. Had gazyva for 6 months when I started treatment. I had no antibodies to the Moderna vaccine per the LLS test through Labcorp in early May. 2nd vaccine was at end of Feb.

Justasheet1 profile image
Justasheet1 in reply to Mako625

You sound exactly like me. 🙁

Mako625 profile image
Mako625 in reply to Justasheet1

I’m hoping that my T-cells will give me some protection. Was deflated by my results. I work in healthcare and was hoping to get back to some semblance of normalcy at my job

Justasheet1 profile image
Justasheet1 in reply to Mako625

Mako,

If everyone around you is vaccinated and you have access to the antibody infusion, that helps.

Remember, ventilation is key so if you’re cooped up inside, you’re at risk.

Jeff

Mako625 profile image
Mako625 in reply to Justasheet1

I provide anesthesia in an operating room. Haven’t taken call since all of this started as most covid patients end up getting intubated after hours. Even with a papr I’m not wanting to take that risk. I do still work and provide anesthesia for patients that are tested within 24 hours of surgery. All of my family members are vaccinated, coworkers are another story though.

Txkate profile image
Txkate in reply to Mako625

Have you heard anything about a 3rd shot (creating a boost)? Thank you for your service in healthcare!

Mako625 profile image
Mako625 in reply to Txkate

I have not. I spoke with my specialist and there are no recommendations for a 3rd shot. I will, however get whatever booster is offered this fall.

4 years on ibrutinib, 19.24 score 4 weeks after 2nd Pfizer shot.

147.30. Three weeks and five days following second dose of Pfizer. Watch and wait since 2017

4 years on Imbrutinib-LLS test 0.04

Thank you all for sharing your results. This is a really hot topic in the news right now as so many states are un-masking. There was a celebratory feeling after the vaccines and again after the CDC change, BUT in their celebration (which I get) they forgot there are still quite a few people waiting on the bus that can’t get off at this stop! The hardest part is when others, that you know personally, refuse to vaccinate to also help protect others. I think this needs to be promoted more, just as wearing a mask protects not only the wearer but also those with compromised immune systems. It is not a political issue, but a caring humane issue. We have to be better by doing better by each other.

W&W greater than 250.....Pat

Pfizer 2nd dose February 12. LLS antibody test April 28. Result: ">250.00"

213.50 watch and wait since 2010

Txkate profile image
Txkate in reply to bbreeland

W&W Twinsie !

I’ve had 2 LLS tests. First (in late March) was with less sensitive test (max >250) and my spike antibodies measured >250. Today I got results of second more sensitive test (max >2500) and I measured 276. I was hoping for something closer to the >2500, but you get what you get. At least I have a decent response to vaccine as far as antibodies. But docs still say they don’t know what it means. Someday they will. But who knows when.

LLS Test result received today: 22.3Pfizer - 6 weeks after second dose

W&W - diagnosed in November 2019

No response...4 weeks after Moderna...on Ibrutinib

First lls labcorp results were >250 in March. Just got my second lls labcorp results and I’m thrilled to report the result was >2500. Found out last night a new grandchild is on the way so the good news keeps coming. Very relieved and grateful.

So happy for you and congrats! This is good to know. Did they email you about doing a 2nd test. I was hoping they would do one.

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