Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for April 2018

Oncology Prescribing Tied to Drugmaker Payouts

NOT specific to CLL buy then again..??? (Reuters Health) - Some oncologists may be more likely to prescribe certain cancer medicines when they receive...

NOT specific to CLL buy then again..??? (Reuters Health) - Some oncologists may...

Cllcanada

Dumb question

I forgot to take a dose of my Ibrutinib yesterday- what is the rule - do I take as soon as I remember which is the next morning (my regular dose is at night)...

I forgot to take a dose of my Ibrutinib yesterday- what is the rule - do I take ...

SunnyCA

•6 years ago

14 Replies

Greetings

Greetings this fine spring morning to all my fellow sufferers of CLL , It has been a while since I posted anything other than a few replies. I know we have...

Greetings this fine spring morning to all my fellow sufferers of CLL , It has be...

BlueGillfisherman

•6 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Looking for info on:

Does anyone have information on having Chronic lymphocytic leukemia or MBL and also been diagnosed with autoimmune hepatitis (AIH)?

Does anyone have information on having Chronic lymphocytic leukemia or MBL and a...

4Patricia

•6 years ago

2 Replies

Starving Cancer with Methionine Restriction -

Hello, This short video explains that cancers require Methionine to grow. Methionine is an Essential Amino Acid that only comes from food. It is in the...

Hello, This short video explains that cancers require Methionine to grow. Methi...

Hoffy

•6 years ago

21 Replies

Bone marrow aspirate and trephine

I had the above procedure yesterday with sedation. The nurse had to really bear down on the bone to get the “corkscrew” type implement in. As I am on the FLAIR...

I had the above procedure yesterday with sedation. The nurse had to really bear ...

Mandy56

•6 years ago

4 Replies

Gardening with Neutropenia??

Can someone with Neutropenia ( .8) currently, work in the garden? My husband with CLL has had neutropenia for almost 4 months....lowest was .2. He just started...

Can someone with Neutropenia ( .8) currently, work in the garden? My husband wit...

kathymac52

•6 years ago

43 Replies

Hearing Loss

I have posted recently while still in hospital. My diagnose for hearing loss is due to virus infection? I went to hospital with balance problems and...

I have posted recently while still in hospital. My diagnose for hearing loss is ...

Geta

•6 years ago

4 Replies

wondering about ibrutinib

I am back. My husband's full remission after his initial 6-month chemotherapy lasted a mere 14 months, and his blood counts are rapidly rising. They are...

I am back. My husband's full remission after his initial 6-month chemotherapy la...

Hidden

•6 years ago

17 Replies

CLL & Biologics for Arthritis

I am curious if there is anyone in the CLL community who is using a biologic for their rheumatoid or Psoriatic arthritis ? I am on W&W and am dealing with some...

I am curious if there is anyone in the CLL community who is using a biologic for...

garrick66

•6 years ago

10 Replies

THE GOOD THE BAD AND THE UGLY

Hi everyone. I have some recent results I wanted to share with you regarding the clinical trial I'm on with IB and Venetoclax. The good news is my numbers...

Hi everyone. I have some recent results I wanted to share with you regarding the...

BCTexas

•6 years ago

63 Replies

Evidence used for my decision process with (IMO)

In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and...

In answer to your questions (continued) I have no insurance (for the last two ye...

Robgump

•6 years ago

Be the first to reply

Egg

Is egg safe for CLL?

leilei

•6 years ago

17 Replies

Happy Coincidence or ...

Even though I have Stage 1 CLL I have been pretty ill this year and finding it hard to keep going. The support of this group has been important to me. Over...

Even though I have Stage 1 CLL I have been pretty ill this year and finding it h...

Steffi50

•6 years ago

11 Replies

Mum with CLL

Hi guys, I’ve never used a support website before but I thought I would give it a go. My mum was diagnosed with CLL 5 years ago at the age of 43, doctors have...

Hi guys, I’ve never used a support website before but I thought I would give it ...

Doyle12

•6 years ago

9 Replies

Started taking Imbruvica March 2018

Hi, I started taking Imbruvica and was wondering if it will help with a stuffy runny nose that I have had for 4 months. I am very tired of blowing my nose and...

Hi, I started taking Imbruvica and was wondering if it will help with a stuffy r...

RobertClearwaterFL

•6 years ago

62 Replies

CAR-T coming to OSU Medical Center

Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the first tangible hints that CAR-T (Chimeric Antigen Receptor – T cell) therapy...

Hi All, Having just returned from my 12 week Clinical Trial monitoring I got the...

ThreeWs

•6 years ago

13 Replies

Just Wondering

Two months now with SLL and some swelling of nodes on the right side of my neck. My question is I am beginning to have headaches on the right side of my...

Two months now with SLL and some swelling of nodes on the right side of my neck....

Gildford

•6 years ago

2 Replies

Side Effects of Long Term use of acyclovir when on Ibrutinib+venetoclax

I am new to this site and hello to all of my CLL comrades. I am on a clinical trial of ibrutinib (for two months) and then adding venetoclax until I achieve...

I am new to this site and hello to all of my CLL comrades. I am on a clinical tr...

Mansy

•6 years ago

18 Replies

Bone marrow biopsy

Hi I had my bone marrow biopsy last week and are still sore, has any one had same thing?

Hi I had my bone marrow biopsy last week and are still sore, has any one had sa...

581959

•6 years ago

9 Replies

If 2 year baby neutrophils are 0 in cbc report. And lft and other test is ok. What can I do?

Cancer

Zeesh

•6 years ago

2 Replies

CLL confused

Hi everyone, I need some help. My husband who is now 82 was diagnosed 8 yrs ago and has been on watch and wait. He now needs chemo and will be offered...

Hi everyone, I need some help. My husband who is now 82 was diagnosed 8 yrs ago ...

Pablo123

•6 years ago

46 Replies

BLURRY VISION

Many thanks to all the kind people who responded to my question on this topic: Cllcanada, -Newdawn, maggiewillow, GMa27, Haileybury, ankisterguy, JMSBD2,...

Many thanks to all the kind people who responded to my question on this topic: ...

Marlene9

•6 years ago

5 Replies

ET

A friend of mine has just been diagnosed with Essential Thrombocythemia a blood cancer, (or pre cancer). Does anyone know how, if at all, this relates to CLL...

A friend of mine has just been diagnosed with Essential Thrombocythemia a blood ...

RogerPinner

•6 years ago

2 Replies

Evidence used for my decision process with (IMO)

In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and...

In answer to your questions (continued) I have no insurance (for the last two ye...

Robgump

•6 years ago

8 Replies

planning to start Imbruvica treatment

Good day to everybody, I am a CLL survivor. after two year since FR chemotherapy, my doctor is planning to start Imbruvica, since my lymph node are still...

Good day to everybody, I am a CLL survivor. after two year since FR chemotherap...

tropicsurvivor

•6 years ago

7 Replies

Question about Sll/CLL

I am trying to figure out what the life expectancy is with Sll and CLL I’m 46 and was told I have sll a few weeks ago I have no symptoms. I have seen on the...

I am trying to figure out what the life expectancy is with Sll and CLL I’m 46 an...

Ironj

•6 years ago

21 Replies

I am now in the next phase of the Captivate Imbruvica plus Venetoclax trial. I have been Ramdomized!!!

Hello, After taking both drugs for about the last year - as shown in the picture. I am now on the next phase being randomized today for either imbruvica or a...

Hello, After taking both drugs for about the last year - as shown in the pictu...

Hoffy

•6 years ago

29 Replies

New to this site

Hi everyone, Just found out about this site and I’m so happy to know I’m not alone. I was diagnosed with CLL sept 2016. Very early not even stage one but I was...

Hi everyone, Just found out about this site and I’m so happy to know I’m not alo...

Pizzaboy

•6 years ago

7 Replies

Elevated Neutrophils on Ibrutinib

Hi: After 6 months on iBrutinib my WBC seems to hover around 10-15, ALC 9-10, platelets 104-108 but my Neutrophils have taken a jump from 3 to 6.12. I know...

Hi: After 6 months on iBrutinib my WBC seems to hover around 10-15, ALC 9-10, p...

naddude

•6 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2018

Oncology Prescribing Tied to Drugmaker Payouts

Dumb question

Greetings

Looking for info on:

Starving Cancer with Methionine Restriction -

Bone marrow aspirate and trephine

Gardening with Neutropenia??

Hearing Loss

wondering about ibrutinib

CLL & Biologics for Arthritis

THE GOOD THE BAD AND THE UGLY

Evidence used for my decision process with (IMO)

Egg

Happy Coincidence or ...

Mum with CLL

Started taking Imbruvica March 2018

CAR-T coming to OSU Medical Center

Just Wondering

Side Effects of Long Term use of acyclovir when on Ibrutinib+venetoclax

Bone marrow biopsy

If 2 year baby neutrophils are 0 in cbc report. And lft and other test is ok. What can I do?

CLL confused

BLURRY VISION

ET

Evidence used for my decision process with (IMO)

planning to start Imbruvica treatment

Question about Sll/CLL

I am now in the next phase of the Captivate Imbruvica plus Venetoclax trial. I have been Ramdomized!!!

New to this site

Elevated Neutrophils on Ibrutinib

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive