Posts - CLL Support | HealthUnlocked

CLL Support

23,138 members • 39,744 posts

All posts for April 2018

Will someone please repost the link from Feb. 14 re: risk assessment and screening for hereditary cancer provided by Sloan Kittering?

Can someone provide the link from Sloan to determine hereditary cancer risk factors?

Can someone provide the link from Sloan to determine hereditary cancer risk fact...

Yuck

•6 years ago

4 Replies

Curcurmin and poor quality reagents undermining experiments

Scientists unite to warn against flawed chemical. A band of more than 50 scientists has created a website to help biologists avoid poor-quality chemical...

Scientists unite to warn against flawed chemical. A band of more than 50 scien...

Steffi50

•6 years ago

Be the first to reply

Traveling with Ibrutinib

Has anyone had any trouble with traveling with ibrutinib, like being stopped at airports, or had them stolen?

Has anyone had any trouble with traveling with ibrutinib, like being stopped at ...

zaax

•6 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Bgb3111

Can anyone tell me if the new drug bgb 3111 approved for the pbs? If not does anyone know how much it costs?

Can anyone tell me if the new drug bgb 3111 approved for the pbs? If not does an...

Clydel

•6 years ago

6 Replies

Hi, I'm new,

Hi, I'm new here, just informed about my CLL 30 days ago, Viet Nam veteran 68-69, agent orange. I posted a question earlier but I had not completed the...

Hi, I'm new here, just informed about my CLL 30 days ago, Viet Nam veteran 68-69...

Test_Tech

•6 years ago

6 Replies

Venetoclax

Has anyone out there tried Venetoclax? Any insights or advice? My Oncologist said it can be a little dicey the first 4-6 weeks as compels the release of...

Has anyone out there tried Venetoclax? Any insights or advice? My Oncologist sa...

GlobalScouttoo

•6 years ago

19 Replies

Will I Be Treated for My CLL

I was diagnosed with CLL 30 days ago, the VA oncologist told me I was level 0 and since my Lymphocytosis has yet to reach >5K, I would not be treated. I also...

I was diagnosed with CLL 30 days ago, the VA oncologist told me I was level 0 an...

Test_Tech

•6 years ago

12 Replies

Newbie

Hi, Freshly diagnosed,and trying to get my head around things at the minute.

craig1

•6 years ago

11 Replies

CLL Ireland Information Day for Patients and Carers 5 May 2018 in Dublin.

It's just 3 weeks to CLL Ireland’s National CLL Information Day for Patients and Carers. On in Dublin on 5 May 2018, demand this year for places has been very...

It's just 3 weeks to CLL Ireland’s National CLL Information Day for Patients and...

CLLIreland

•6 years ago

Be the first to reply

involuntary catch or "shuddering" breath intake- just a survey

I was wondering if anyone else has experienced this, kind of like when a small child has been crying/sobbing and is recovering and they have a shuddering,...

I was wondering if anyone else has experienced this, kind of like when a small c...

Robgump

•6 years ago

6 Replies

What is the best first-line treatment combination for CLL?

I’m taking the liberty of cross posting this post I wrote from the UK CLL Facebook group. I’m trying to get my own head round what are the best first line...

I’m taking the liberty of cross posting this post I wrote from the UK CLL Faceb...

AdrianUK

•6 years ago

9 Replies

Finished breaking and started fixing: MRD - in the blood after CAR-T therapy

Hi, It was been an intensely dark and painful journey (see https://cllsociety.org/car-t-blog/ for some of the details), but after two hospitalizations and 3...

Hi, It was been an intensely dark and painful journey (see https://cllsociety.or...

bkoffman

CLL CURE Hero•6 years ago

45 Replies

Monoclonal B Cell Lymphocytosis

Seeking some input on starting with MBL and then becoming CLL. Recent blood tests led to a diagnosis of MBL, and my count was 4,800. The Hematologist said a...

Seeking some input on starting with MBL and then becoming CLL. Recent blood test...

wizzard166

•6 years ago

10 Replies

CLLSA May Meeting in Birmingham

CLLSA have just published details of the May 24th meeting. Link below takes you to the website for more details....

CLLSA have just published details of the May 24th meeting. Link below takes you...

Oleboyredw-uk

•6 years ago

6 Replies

Flair Trial

I was diagnosed with cll just before Christmas 2017 and have just had the second appointment with my haematologist and am now borderline for starting treatment...

I was diagnosed with cll just before Christmas 2017 and have just had the second...

dandelup

•6 years ago

15 Replies

CLL Society patient support group meeting in New York City on Sunday April 22

There is a CLL Society patient support group meeting on Sunday April 22 in New York City and at our last meeting I believe we had 5 patients taking......

There is a CLL Society patient support group meeting on Sunday April 22 in New Y...

lankisterguy

Volunteer•6 years ago

Be the first to reply

How harmful is take two Cortisone injections...

I have had tendonitis... and the shoulder doctor prescribed a cortisone shot six weeks ago... it did help, and I went back today to get a second shot.... TOO...

I have had tendonitis... and the shoulder doctor prescribed a cortisone shot six...

Butitisme

•6 years ago

8 Replies

Alcohol and SLL

With Sll / CLL can you go to a party and have several beers more the 6 ? I don’t want to sound like a druck and am not one. I’m newly diagnosed with SLL and...

With Sll / CLL can you go to a party and have several beers more the 6 ? I don’t...

Ironj

•6 years ago

6 Replies

Evidence used for my decision process with (IMO)

In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and...

In answer to your questions (continued) I have no insurance (for the last two ye...

Robgump

•6 years ago

3 Replies

Platelet Count

Platelet Count low what can be done 140

kingston3

•6 years ago

2 Replies

Don't want to know

I'm soon going to be 79, I feel pretty good and creatively productive. I have my first 6 month vist coming up. If things don't look so good I don't want to...

I'm soon going to be 79, I feel pretty good and creatively productive. I have m...

flugel1

•6 years ago

9 Replies

Has anyone experienced leg swelling?

Hi I've been on imbruvica for 3 1/2 months and am experiencing a swollen left foot ankle and leg. My GP, oncologist and ID doctors are not sure what is...

Hi I've been on imbruvica for 3 1/2 months and am experiencing a swollen left fo...

ImGrammy

•6 years ago

33 Replies

Any Insight on This Diagnosis?

My first post was almost a month ago, when I was wondering if I was overreacting to seeing a Hematologist with WBC around 18,000. I truly appreciate all of...

My first post was almost a month ago, when I was wondering if I was overreacting...

wizzard166

•6 years ago

2 Replies

cracked fingers with Imbruvica

Hi everyone I think I may have come across a product that may help us suffering from the finger cracks while on Imbruvica. Two years ago when I was...

Hi everyone I think I may have come across a product that may help us suffering ...

Corkyrissa

•6 years ago

8 Replies

Are immunity levels regularly checked for CLL, and when are the results given to patients?

Following on to my 'lowered immunity' which I think I have, and the useful replies from several kind people, I have to admit that in the past 17 years of a...

Following on to my 'lowered immunity' which I think I have, and the useful repli...

catmad1

•6 years ago

8 Replies

Alkaline ionized water

One of my friend introduced me Alkaline ionized water, any info for this, does it help? Thanks!

One of my friend introduced me Alkaline ionized water, any info for this, does i...

leilei

•6 years ago

6 Replies

fxdx1-Thank you

Thank you for your advice. Asking, listening, running her errands...I am more than willing to do. There is nothing I wouldn't do for her. :)

Thank you for your advice. Asking, listening, running her errands...I am more t...

donmar1

•6 years ago

3 Replies

Mouth Sores

Just wondering. I am on/in a clinical trial with Ibrutinib and Venentaclax .I has exceeded my wildest dreams( i.e.when I started, my WBC was 414,000 and is now...

Just wondering. I am on/in a clinical trial with Ibrutinib and Venentaclax .I ha...

pwebster

•6 years ago

17 Replies

CLL Ireland patient information day

Hello We're pleased to announce that CLL Ireland's 2018 National CLL Information Day for Patients and Carers will be on Saturday 5 May 2018 Where? Spencer...

Hello We're pleased to announce that CLL Ireland's 2018 National CLL Information...

Irishcll

•6 years ago

Be the first to reply

Lowered Immunity?

I have been on watch and wait for 17 years and the lymphocytes remain around 20, so no action would seem to be required yet, but I have had a couple of...

I have been on watch and wait for 17 years and the lymphocytes remain around 20,...

catmad1

•6 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2018

Will someone please repost the link from Feb. 14 re: risk assessment and screening for hereditary cancer provided by Sloan Kittering?

Curcurmin and poor quality reagents undermining experiments

Traveling with Ibrutinib

Bgb3111

Hi, I'm new,

Venetoclax

Will I Be Treated for My CLL

Newbie

CLL Ireland Information Day for Patients and Carers 5 May 2018 in Dublin.

involuntary catch or "shuddering" breath intake- just a survey

What is the best first-line treatment combination for CLL?

Finished breaking and started fixing: MRD - in the blood after CAR-T therapy

Monoclonal B Cell Lymphocytosis

CLLSA May Meeting in Birmingham

Flair Trial

CLL Society patient support group meeting in New York City on Sunday April 22

How harmful is take two Cortisone injections...

Alcohol and SLL

Evidence used for my decision process with (IMO)

Platelet Count

Don't want to know

Has anyone experienced leg swelling?

Any Insight on This Diagnosis?

cracked fingers with Imbruvica

Are immunity levels regularly checked for CLL, and when are the results given to patients?

Alkaline ionized water

fxdx1-Thank you

Mouth Sores

CLL Ireland patient information day

Lowered Immunity?

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive