Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2018

Noob question

I keep seeing the term “fish “. I am sure that doesn’t mean one who lives in the water! Would someone enlighten me on this. One question of many. Thanks in...

I keep seeing the term “fish “. I am sure that doesn’t mean one who lives in the...

•6 years ago

Mild pains in areas of head

Ever since I was diagnosed with CLL (over a year ago) I have had mild pains in various areas of my head. I thought it was probably sinus related, but...

Ever since I was diagnosed with CLL (over a year ago) I have had mild pains in v...

•6 years ago

Clinical Trials for Blood Cancers: Webinar Wednesday, April 18, 2018 12:00 pm to 1:00 pm Eastern Time USA

How Can Participating in a Clinical Trial Help Me?...

How Can Participating in a Clinical Trial Help Me?...

Volunteer•6 years ago

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Evidence used for my decision process with (IMO)

In answer to your questions (continued) I have no insurance (for the last two years), so I keep lines of communication open with current researchers and...

In answer to your questions (continued) I have no insurance (for the last two ye...

•6 years ago

Advice please friends

Should have known better than to chance things with my recent record !! Both my grandkids went down with Chicken pox and rather than miss seeing them I...

Should have known better than to chance things with my recent record !! Both my...

•6 years ago

Newbie to SLL

I have just been diagnosed with SLL. Met first time yesterday with Hemotoligist and he said to W&W. Still trying to digest what is happening. Have swollen...

I have just been diagnosed with SLL. Met first time yesterday with Hemotoligist ...

•6 years ago

CLL ALL CML AML

Hi, How often and where can I find info on CLL becoming ALL; or CML becoming AML? Are ALL and AML different diseases or are they the same thing just at a later...

Hi, How often and where can I find info on CLL becoming ALL; or CML becoming AML...

•6 years ago

A Little Late In the Game, now I'm cramming for info

As I lie here looking at the bottle of Imbrivica my husband just picked up for me; i am in a complete meltdown. Since my CLL diagnosis 4 years ago i have...

As I lie here looking at the bottle of Imbrivica my husband just picked up for m...

•6 years ago

Weight

Hi All, I'm curious to know whether or not anybody has experienced weight gain following six plus months of taking Ibrutinib? Thanks

Hi All, I'm curious to know whether or not anybody has experienced weight gain f...

•6 years ago

Remission -- Yippee!

My CLL relapsed last year in a very rare form: presentation in the central nervous system, brain lining, and eyes. Partial blindness and localized seizures...

My CLL relapsed last year in a very rare form: presentation in the central nervo...

•6 years ago

internal vibration & sensation

my wife is suffering from internal vibration and sensation in both the legs from last 8 months. we consult neurologist and spine surgeons but no body...

my wife is suffering from internal vibration and sensation in both the legs from...

•6 years ago

Night sweats are back

Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but over the past couple of weeks the night sweats have returned. Contacting my...

Finished 6 rounds of FCR last May. Follow-ups have been good and I feel good but...

•6 years ago

Bowel issues after BR

Anyone had any embarrassing issues with their bowels after BR?

Anyone had any embarrassing issues with their bowels after BR?

•6 years ago

I am confused on what we can post on this site.

I feel bad for all people with Cll Leukemia. I sometimes posted things that were natural should we just never post anything like that. When I see someone...

I feel bad for all people with Cll Leukemia. I sometimes posted things that wer...

•6 years ago

ZAP-70 information

Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 week monitoring session for my extended Clinical Trial using PCI-32765...

Hi All, I am posting from the Cafe Kerouac In Columbus OH awaiting another 12 we...

•6 years ago

Imbruvica changes

Curious about the recent change in dosage availability and pill form only. Is it about$?

Curious about the recent change in dosage availability and pill form only. Is i...

•6 years ago

Honokiel

Hi All, I was wondering whether anyone else had come across ww.cancerfightingstrategies.com website as they seem to have a wealth of information on cancer...

Hi All, I was wondering whether anyone else had come across ww.cancerfightings...

•6 years ago

Chemo

Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected courses. CT scan coming too. My question is. For those of you who dine this...

Hi guys. Just out of my apt with the doctor. I’m getting FCR. Oral and injected...

•6 years ago

CLL and Myeloma anyone?

I've had CLL with no treatment for 11 years but recently broke my collarbone and xray and CT scan revealed multiple myeloma. Treatment for myeloma started 4...

I've had CLL with no treatment for 11 years but recently broke my collarbone and...

•6 years ago

FANTASTIC SUPPORT,THANK YOU

I am sorry it has taken so long to say thank you for all the support you gave me when I lost by beloved Colin. It is hard to believe he has been gone four...

I am sorry it has taken so long to say thank you for all the support you gave me...

•6 years ago

Imbruvica and arm pain

Anyone had bad arm pain in the muscle while on imbruvica? It hurts to touch the muscle. I have been on imbruvica for 16 months but never had muscle pain like...

Anyone had bad arm pain in the muscle while on imbruvica? It hurts to touch the ...

•6 years ago

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