CLL Support Association
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New to this site

Hi everyone,

Just found out about this site and I’m so happy to know I’m not alone. I was diagnosed with CLL sept 2016. Very early not even stage one but I was 40 y/o which is a little troubling.

I haven’t heard much talk about marijuana as I live in a state where medical marijuana is allowed. I have heard good things if taken properly( tinctures). Your thoughts?

Also, I was at a reputable psychic the other day. The first thing he said when I sat down was your battling an illness... then said herbs will arrest your illness and specifically mentioned Bloodroot.

Has anyone tried or heard of it?

Thank you for any help ahead of time!

I’m very thankful to have knowledgeable people to turn to. You guys are awesome!

Be well

Drew

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Welcome Drew, your psychic must be working overtime. I was just communicating with someone else about this very subject. Was at a CLL meeting a little over a week ago and Dr. Keating brought up the subject of medical marijuana. He stated that he wish there was more research into it but it is a money issue. It costs mega-dollars for research. I am going to email my doctor about it , who is a colleague of his to ask his thoughts. I have heard much about it and what it can do. In fact, I have a sister-in-law that uses a form of it for severe pain and says it works wonders. As for Bloodroot, heard of it but that is as far as it goes. STAY STRONG J.R

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Thank JR, let me know what your doctor says. I have taken MM in the past with my numbers staying stable but that might be cause of my age. Since I’ve stopped taken MM my numbers have gone up a little more than when I was on it. Who knows could be the norm from reading other people’s experience from this site.

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Hi Drew,

Welcome. I live in California where just about everything is legal but I wouldn’t try anything before discussing it with a CLL specialist. How did you find that you have CLL? You may be one of those people that will never need treatment. Do you have symptoms? I would recommend getting a second opinion with a CLL specialist before doing anything else. We are very susceptible to so many scams because of our vulnerability. Do your research. There are a lot of knowledgeable people on this forum and maybe someone knows about bloodroot and or tinctures. I don’t, but knowledge is power. Keep searching and best of luck. Sally

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Hi Sally,

I found out through blood tests, then was forwarded to an oncologist who I see every 3-4 months to monitor my counts. I don’t not have an symptoms as the doctor says was caught very early on. Just trying to find something natural to take to slow down CLL. I see diet, eating healthy, and exercise of course helps as it does for every part of life. I’m already doing that and was when I got diagnosed. There has to be something else out there...

Be well

Drew

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Hi Drew,

Sounds like you are on the right track. I’m sure that when scientists come up with a cure, it has to be something so very simple that we are missing. Please continue to keep us updated on your journey. All questions are good ones. An inquisitive mind is a good thing to have. Best of luck, Sally

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Hi Drew,

There's not much reputable research about bloodroot and CLL. The only (kind of) relevant paper I could find was with respect to in vitro studies on a lymphoblastoid human erythroleukemia cell line (which is not the stem cell line from which CLL originates), where it increased cytokine production. We typically already have too much of that with CLL, which is a major factor in us experiencing fatigue:

ncbi.nlm.nih.gov/pmc/articl...

Memorial Sloan Kettering has this to say:

mskcc.org/cancer-care/integ...

And finally: healthunlocked.com/cllsuppo...

With respect to marijuana, it is recognised as being of use to manage nausea during treatment and with pain relief. With regard to actually helping control CLL, there has been some promising research with another leukaemia, where it has shown to enhance the effectiveness of chemotherapy, but the relevant apoptosis receptors don't seem to be active in CLL patients, or if they are, only in a very small percentage of us.

More here: healthunlocked.com/cllsuppo...

Neil

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Hi Neil,

Thank you for all your help! Your knowledge is much appreciated and is helping so many on this site.

Drew

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