Hearing Loss

[Geta]

I have posted recently while still in hospital.

My diagnose for hearing loss is due to virus infection? I went to hospital with balance problems and occasionally verbalising, only during stay there lost R side hearing totally. I have noticed loss of balance a while ago but vere thinking that this is caused by my low blood pressure. Got some kind of could 7 weeks ago, that is coming and going every few days but breathing problem is constant-blocked nose. In mean time has 3 lots of antibiotics. While in hospital informed my hematologist but he was not concerned. Since I left hospital 23.03 I have lost hearing totally and while waiting for various appointment came across interesting article that will attach: hindawi.com/journals/crihem...

Hope that link is going to work.

As I am living in Sydney does anybody have any recommendations for hematologist,

wouldn't heart to have second opinion.

Hope you'll coping well with this beauty that we have to dealt with!!!

Miro

[TinyTattooedToes]

Can’t offer recommendations unfortunately but I too caught a virus and permanently lost my hearing. Happened about 3 years ago, I just woke up one morning, feeling like I’d been hit by a bus and no hearing in my left ear. They put it down to a virus, which I caught due to a weakened immune system with CLL, and there was nothing they could do. I was offered a hearing aid but I am only in my 30s and was too vain to accept. To be honest I have adapted really well, no longer feeling imbalances or unsteady on my feet. I work in a nursery with upto 50 under 4 year olds and the noise can be tremendous!! On those occasions I take a moment outside the room to adjust then get back to it. I hope you find a good doc in the meantime ❤️ Wishing you good health ❤️

[Big_Dee in reply to TinyTattooedToes]

I don’t know that it will make you feel better, but I have been hard of hearing since I was 4 years old give or take, as I was not diagnosed until it was determined that I was not learning to speak correctly. My hearing lost is also from nerve damage due to mild case of German measles. I have 135 db correction in my right ear which is like being deaf because I cannot distinguish spoken speech. I have 86 db correction in my left hear. I finally received my first working set of hearing aids when I was 53 years. The new hearing aids with sound filters greatly helped me, as they will you. Be aware that unlike glasses, hearing aids can actually cause additional hearing loss. I wear my aids when involved in important discussions with others who I cannot effectively read their lips. Best lip readers can still only pick up about 35% of spoken words and your brain fills in the blanks. I would also be first to note that it requires some getting used to hearing aids, but it can be done. A world without sound is nerve racking, but being blind is a lot worse. I have always enjoyed good health throughout my life and said, “God said to me you will be hard of hearing all your life, so I will bless you with good health”, Then I was diagnosed with CLL nine months ago. Everyone has some health issues in life. May God bless you in life travels.

[gardening-girl]

Geta, this may or may not be relevant to your hearing loss, but a presenting symptom of my CLL diagnosis was sudden sensory neural hearing loss and loss of balance. Sudden for certain..over night. All sorts of tests with several specialists revealed no cause. They all said that my hearing would never be restored. Several months later a rheumatologist ordered a blood test due to Raynaud's symptoms and discovered that I had CLL. Lymphocyte count was only about 11K so treatment was not recommended.

I found a paper in the medical literature which convinced my oncologist to start treatment with FR. Within the first two months of treatment my hearing was restored!!!! Over the 20+ years since, each time my lymphocyte count gets up to about 10K I suffer hearing & loss of balance which is restored upon treatment.

Here's an abstract of the paper that convinced my oncologist to treat:

Leuk Lymphoma. 1993 Feb;9(3):269-71.

Sudden onset deafness as a presenting manifestation of chronic lymphocytic leukemia.

Nageris B1, Or R, Hardan I, Polliack A. Izhar Hardan

Benny Nageris, Department of Otolaryngology/Head and Neck Surgery, Hadassah University Hospital, PO. Box 12000, Jerusalem, 91120, Israel

Abstract:

An unusual patient with typical Rai Stage 2 (Binet Stage A) chronic lymphocytic leukaemia (CLL), who presented with sudden onset deafness as the initial manifestation of disease is reported. This sensorineural hearing loss improved dramatically after the administration of chemotherapy. This unique observation was also associated with reduction of the circulating B-CLL cells and with the achievement of a partial response, lasting for almost three years. Recently there was another episode of sudden deafness, associated with a rising leukocyte count, and disease activity followed once again by recovery after chemotherapy. Audiograms were recorded showing positive findings on presentation and recovery after therapy. This very rare manifestation of CLL was presumed to be due to infiltration of the cochlear duct or the 8th cranial nerve although all imaging techniques were negative, because of the rapid relief and recovery achieved after specific chemotherapy. The importance of early diagnosis and therapy is stressed in the light of the rapid clinical recovery observed here.

I wish you the best and hope that your hearing can be restored.

gardening-girl

[duffymcgrif]

Ear conditions, vertigo, skeletal/muscle aches, you name it, I think I've just had about all the side affects. Hope there's no more out there. Going into my third year with meds. Just hang in there, hopefully all will fade away within a week or so. Mine did. Took allot of tylenol for the aches and just dealt with the vertigo and ear inbalance. Fades away too. Good Luck