I am new to this site and hello to all of my CLL comrades.
I am on a clinical trial of ibrutinib (for two months) and then adding venetoclax until I achieve MRD negative. I started ibrutinib 3 weeks ago and so far doing fine, except some minor side effects. Now, my CLL specialist wants me to start acyclovir (400 mg) for several months (or a long time) until my blood numbers reach normal. You see, I had a bad case of shingles 4 years ago (after my FR) and she is afraid of recurrence. I googled "side effects of long term use of acyclovir" and some scary stuff came up. Has anyone of my fellow ibrutinib users been on acyclovir for several months and what has been your experience?