Positive news: Feeling very lucky and happy had... - CLL Support

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Positive news

Palace profile image
Palace
•11 Replies

Feeling very lucky and happy had my consultants appointment today and all my blood counts were down 😃 This has been the case for the last two years so feeling very positive!!

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Palace profile image
Palace
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11 Replies
•
baq724 profile image
baq724

Awesome! So very glad for you! I had the same happen to me last week. I have only been diagnosed since October, but it was a relief no doubt!

Palace profile image
Palace• in reply tobaq724

So pleased for you too,with the watch and wait it's so hard as we never know what we're walking in to on consultant days. It's always in the back of your mind is time for treatment. But I'm also very aware there are so many people in a far worse position and that often makes me feel guilty for thinking that

Apricot77 profile image
Apricot77• in reply toPalace

Great news! Anything you have been doing to lower these numbers...diet,supplements etc??

Palace profile image
Palace• in reply toApricot77

No not really but I do take vitamin D, eat healthy and excise. Thanks!

ygtgo profile image
ygtgo

Great news Palace ....

Jacksc06 profile image
Jacksc06

Great news really happy for you.

Peggy4 profile image
Peggy4

Lovely news.

Peggy

Aruss profile image
Aruss

Have others experienced this? Diagnosed Oct 2016, went for my 1st blood draw in Jan. My wbc was 9.9, well within normal range. Hasn't been that low in 2 years. When I asked my Dr what it means....all he could say was I still have CLL. What kind of an answer is that? So confused.

AussieNeil profile image
AussieNeilPartnerAdministrator• in reply toAruss

Sadly CLL is incurable and spontaneous remissions rare. All you need for a CLL diagnosis is a monoclonal B-lymphocyte count (part of your WBC count) of over 5. There are many different white blood cells in our WBC and each type can vary up and down with changes in our health (infections can increase or lower them and allergies increase some of them). Due to these variations, CLL specialists don't bother tracking for doubling time until the lymphocyte count exceeds 30 (roughly corresponding to a WBC of 35 to 40).

Neil

Aruss profile image
Aruss

So I should expect ups and downs with all numbers?

jchays1 profile image
jchays1

Wonderful News :-) :-) :-)

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