Newbie

[Aruss]

Hi, new to the community. Was diagnosed with CLL, Oct. 2016, w&w. Wanting to learn from others.

[Jacksc06]

Hello and welcome. You are now in the best possible place for support & advice. This family is invaluable as I am sure you will discover. You may wish to browse my journey, Good days & bad days, warts & all. I do hope it gives you strength Regards.

[ap64]

Welcome. Read, listen to the videos and ask questions. Always happy to bring in new travelling companions who share our desire to learn and share our trip in the CLL train.

[Elliot43]

Arrus check out the related posts on the right hand side and below in the pinned posts. Or..put a question into the top rt search box.

Otherwise ask away here... anything that's on your mind, there are some knowledgable and marvellous people on this site who will have answers to most worries and concerns.

[Kathp]

Morning Arrus and welcome to our club! I endorse all that has been said above and we must have got the same tickets as I joined in October too!

So much help and humour on these pages, and I seriously don't know where I would be without everyone.

As has been mentioned, dark days and good days. It has taken me a few months to compute everything but now for me I can see light at the end of the tunnel.

Kind regards, Kath

[Loves2walk]

Welcome Arus! So sorry you had to find this group but you're in excellent hands.

I am the "wife of", my husband diagnosed just over a year ago, he too is on W&W. I have received so much support and knowledge here, and I'm sure you will as well.

[RJR1]

Welcome aboard. You'll learn things here. But most importantly... you'll know you aren't alone.

[Aruss]

Thank you all for your kind remarks. Having people understand my thoughts, feelings, aches and pains, makes the journey less lonely. Blessings to each of you!

[pkpayne]

Welcome Aruss. I know you'd prefer not to be here but this is the best place to learn get inspiration and support.

[Richard_TX]

Hello Aruss, I was diagnosed Sept 2016. Also on w&w.

[Peggy4]

Hi Arus. I'm coming up two years now and like you, I was eager to learn. You are so in the right place. For myself, I'd rather worry about what I know than what I don't know-this forum has been a life saver for me and I'm sure will be for you too.

In the short time since I've been disgnosed, so much has been happening in the CLL world and we have every reason to be hopeful.

Peggy

[MichelleM61]

Welcome! I joined last year as I too am W&W. This is a Great group of people with a lot of information to share.

[Hoffy]

Keep learning.

See a CLL specialist.

Don't get any treatment without looking at all options and their trade offs.

30% if patients never have to get treatment.

[tryandtry]

Hi Aruss:

You'll get LOTS of advice & support here, as well as lots of stories. I've told mine before, but basically diagnosed since 2003; on W&W for 7 years, then 6 series of Rituxan infusions over the last 7 years. Some problems, but mostly positive - no pain, & few side-effects.

Mostly, though, look at the TREMENDOUS gains they've made in new drug therapies over the last few years! By the time you'll need treatment (if at all), you may be on some new drug (then) that we've never even thought of today. I'm now taking Imbruvica, only approved for US use in 2013 - and even then, clinical trials first.

Too: Search for "Newbie" for MANY other archived replies (scroll to the bottom of this page).

Welcome aboard!

[GeriGi]

Hi! Learn everything that you can about your disease. I am 11 years still in watch and wait. It's definately a monkey on your back but I'm still doing good. Make sure you have the proper testing done on your blood abnormalities and eat a diet high in vegetables! Keep a positive outlook there are so many treatment options if necessary and I believe we are now at a point where we are seeing durable remissions. Remember things can always be worse, and believe in God. Sorry you have this!