A visit to the hospital: A visit to the hospital... - Ataxia UK

Ataxia UK

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A visit to the hospital

Knittlng profile image
7 Replies

A visit to the hospital. After not seeing my consultant for a year I now have an appointment at the end of the month. I am wondering what questions I should ask. Reading through all your letters it appears that there might be something that could be given to help the problem getting any worse.

Thank you in advance Dee

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Knittlng profile image
Knittlng
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7 Replies
PatsyIpswich profile image
PatsyIpswich

If you haven't already, I'd ask appointment with neurophysio.Good luck x

PatsyIpswich profile image
PatsyIpswich

Have you been to your appointment Dee? I'm interested to know how you got on.Sometimes it can be quite an anticlimax. Patsy x

Knittlng profile image
Knittlng in reply to PatsyIpswich

Yes, my neurologist seems very knowledgeable about Ataxia and feels it is progressing too fast so is Sending me for more blood tests and more scans. No magic cure I’m afraid

Knittlng profile image
Knittlng in reply to Knittlng

Dear Patsy, I forgot to mention that depending on what the blood tests show there might be a drug that can help me. It is called. ACETAZOLAMIDE. Does anyone know anything about this drug? Dee

PatsyIpswich profile image
PatsyIpswich in reply to Knittlng

Fingers crossed for you x

7151 profile image
7151 in reply to Knittlng

Hi i ve just looked up Acetazolamide ! Cant see anything about it helping ataxia

Knittlng profile image
Knittlng

I have just looked up this medication and found a little that does mention Ataxia I think it was after a stroke Dee

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