CLL Group

[Letarosella1966]

Reading some of your posts on here. I feel mine is so minimal. Right now I just bruise easily. I wish you all the best and stay strong.

[Spark_Plug]

Well don't worry, it isn't a contest where we get different medals for just how bad off we are 🙂.

It is ok to feel happy that you're not suffering no guilt in that.🌼

[MisfitK]

Long may you feel as great as you do now!

PS - If you lock your post to the community (under the edit your post option), more folks will probably comment.

[ChristyAnne_UK]

It's not nothing; it's a symptom we tell others to look out for.

Last night, I was watching one of those medical 'fly on the wall' documentaries, and two nurses were chatting.. the male commented on a bruise on the female's arm.. "You bruise like a peach!" he said. Neither seemed to recognise it as a possible warning.

I wanted to yell.. "Get yourself checked over!"

Anyway, I'm W&W, too.. Nearly 11 years. Low, stable numbers. Only fatigue. If you're looking for competition, we can compete on how well we're doing! 😉

[AnneHill]

It is shocking to find out you have cll. Those who have been diagnosed a while and been on treatment may have forgotten that you need reasurance and kindness.There are many folk who are really scared and also need information. I was lucky that I didnt need treatment for 9 years and I wish I hadnt been diagnosed so early.

If you click on the more arrow you can choose to restrict your post to this community.

If you have worries dont be afraid to ask for help, Anne uk

[Moma64 in reply to AnneHill]

I understand your wish of not being diagnosed so early. I was fortunate in that regard....my CLL was discovered when I was sent for blood work ordered by an ophthalmologist for a problem I was having with my eye. Up until then, any "symptoms" I may have had were easily explained away by aging as I was in my early 60's. When my CLL was diagnosed, I was at treatment level, and I developed enlarged lymph nodes and an enlarged spleen around the same time, so I had probably had it for years without knowing. And after 6 years on Imbruvica, I'm still feeling well with some random bruising and skin issues being my only side effects. I'm also on meds for Afib, which is under control, but my mother and sister were both treated for it, so unsure if it has anything to do with my CLL or not.

[AnneHill in reply to Moma64]

I have just lost my reply! After 23 years I feel my luck is running out. My platelets were 65 2 weeks ago. I had my blood tested today and the haematologist will ring tomorrow. There are a few other numbers I dont understand. I have had fcr and Ibrutinib. I am in remission but things are changing. Like you I have other issues, its never ending. Anne uk