Has anyone used Venetoclax?

[bbrowning84]

My ex was diagnosed with CLL about 6 years ago and was at stage zero until this year. She is starting Venetoclax and immunotherapy this week and I was just checking to see if anyone had experience with this? TIA

[PennyLane2024]

I finished my Ob immunotherapy today and have 6 more months of Venetoclax. Amazing treatment. Saved my life. First four months are tough since you have ten 8 hours days giving blood, meeting with doctor/nurse, getting 4 hours of infusions. Well worth it.

[ArtistBlacksmith]

I had V+O 12 month course completed 19 months ago. I tolerated the course really well with no major impacts on life and work. A few minor things. Unfortunately relapsing now but I have a complicated case. Most people get a long durable remission.

[Classicaljazz]

I have had 3 years remission so far after completing a year of venetoclax with obinutuzmab also given just for the first 6 months. I went from being really sick to being OK again!

[Pearlpink]

hi. It’s a great treatment. I got clinical remission a year ago and shrank my very big spleen back to normal. I was so grateful that I was able to have it instead of normal chemo. I had a bit of reaction at beginning but they watch for it and treat it instantly. Good luck both of you! Xxxx

[lankisterguy Volunteer]

Hi bbrowning84,

Venetoclax is one of the most commonly used targeted drugs for CLL and we have over 3000 past postings that mention it: healthunlocked.com/cllsuppo...

I was on it for 6 years starting in 2016.

Most patients, now, get it for 12 months or 2 years and reach the point where there is no detectable CLL in their blood (and some even none in the bone marrow). They the can be drug free for 2 years to 10 or more years.

Len

[Adlucy]

I finished this treatment in July and found that I tolerated it well. The hardest thing once the infusion stage was over, I found, was organising myself so I remembered to take the tablets daily. I won't know about my MRD status until October but I am currently in remission. I hope it goes well for her.