Treatment

[Haggar]

I’ve been in Acalabrutinib for 3 months now. At first I had a few side affects ie Headaches, Light headed. Feeling a little nauseous . But most of that has passed now. The worst were my headaches. But believe it or not I started taking iced coffee and it cleared it. Better than paracetamol . Seeing my Heamatologist soon to see if my white blood count has lowered . The treatment is manageable . Few aches in my legs. But I’m coping quite well .

Shona.

[Bobby9toes]

I, too, had headaches at first with Acalabrutinib. Caffeine definitely got rid of them. I’ve been on it since January and feel great. So far no leg pain, only an occasional red rash on my face that disappears within a day or two. A small price to pay for a drug that works so well. Best of luck to you, Jan

[Haggar in reply to Bobby9toes]

I’m getting pains in my legs . Also I’m on antibiotics with this tablet. I was having dizzy spells. Which I sometimes still get them . But I feel better in myself not so tired anymore. I have been going in an Oxygen chamber which helps me a lot . Good luck . Hope you continue to feel well. I’ve only been on my medication 8 weeks. But I feel better than I did.

Shona

[Bobby9toes in reply to Haggar]

Wow, you do have a lot going on. Glad you are feeling better. Hope it continues. Wishing you the best. Take care.

Jan

[Suzie42]

That's just great. I'm 7 months in and still feel dizzy has my hb is still low. I cannot wait to feel better

[Haggar in reply to Suzie42]

My hg is low and my white count is up. My Heamatologist told me it is to be expected. Just starting my medication. But hopefully I get a better result Tuesday when I see him🙏🏼. Take care and I wish you well.

Shona

[Suzie42]

Yes my consultant said the last thing that will happen is hb will rise. My wbc was over 200 after 1 month of treatment now its 50 so going the right way

[CoachVera55]

Hello & Congrats on 3 months!!!🎉🎉🎉 I was in the Hospital 3X in 3 months when I started with Zanubrutinib. I did 10.5 weeks with Acalabrutinib too & them headaches ain’t no joke. They say caffeine & extra fluids work best, which you have discovered. Yes I felt muscle/bone pain & fatigue also but moving really helps. It seemed that sitting around intensified the pain & fatigue. Just walk & you will walk the pain right off. And with fatigue find your routine & leave room for naps to recharge if needed 😴 GODSPEED 🙏🏾