RSV vax and Brukinsa: I have CLL and have been... - CLL Support

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RSV vax and Brukinsa

Silvafoxe profile image
6 Replies

I have CLL and have been on Brukinsa about a year now. I wonder if anyone on Brukinsa has taken the RSV vax?

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Silvafoxe profile image
Silvafoxe
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6 Replies
gardener58 profile image
gardener58

i've been on zanu for about a year and had the RSV vax about a month ago without incidence.

Samm22 profile image
Samm22

I am on Brukinsa and also had the RSV vaccine. My specialist recommended it. I’m not sure if I built up an immune response but I feel the benefit outweighs any risk.

Silvafoxe profile image
Silvafoxe in reply toSamm22

Thank you. I got the shot. Seem to be ok today.

mrgreentea profile image
mrgreentea

Since I was planning to travel to the EU, my Mayo team recommend several shots including RSV. I had the Flu, RSV and Covid shots at the start of Sept... on the same day, which now I wouldn't do again because I felt quite tired for about 5 days. Btw, I also had a lymph node response (got a little enlarged and tender in the arm pit of the arm where the shot was given) which I am told is normal.

Silvafoxe profile image
Silvafoxe in reply tomrgreentea

When we first were mandated to get Covid shots I got huge lymph nodes that didn’t go away. Biopsy showed the CLL and so here I am. I had gotten swollen nodes before with vaccines but they usually went away in a few days. Anyway I went and got the flu shot and the RSV yesterday. I was knocked out and after eating I went to bed. I feel fine today other than sore arms. I haven’t checked for swollen nodes. I’m afraid to get another Covid booster. The last one I got gave me a swollen node but it disappeared after a couple weeks. Thank you for your response.

TruthJunkie profile image
TruthJunkie

Yes, I received RSV vaccine about 8 months after I had begun Zanubrutinib. No issues.

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