Posts - CLL Support | HealthUnlocked

CLL Support

23,137 members • 39,744 posts

All posts for October 2022

car t trials CLL

are there any trials of car t for CLL? When’s the best time to try it?

Corin850

•2 years ago

3 Replies

CLL testing

hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till...

hi relatively new in here. I cannot see a pinned post on this subject but apolog...

Saju21

•2 years ago

7 Replies

Aussies treated for their CLL - Paid Survey. Please help researchers explore treatment goals and provide opinions on treatment options

Currently, Australia is going through a generational change in CLL treatments with the move to targeted therapies. If you've had your CLL treated, your...

Currently, Australia is going through a generational change in CLL treatments wi...

AussieNeil

Administrator•2 years ago

2 Replies

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Canada's National Patient Conference on Lymphoma & CLL

This is day one of Canada's National Patient Conference on Lymphoma and CLL. Sorry I didn't notify this group earlier. You can register here....

This is day one of Canada's National Patient Conference on Lymphoma and CLL. ...

RSilver

•2 years ago

5 Replies

Leukemia arthritis

Recently I have been having severe pain and swelling in my wrists and fingers joints and it comes and goes. Travels to other places in my body. I have not...

Recently I have been having severe pain and swelling in my wrists and fingers jo...

BePositive22

•2 years ago

24 Replies

Hypothetical Question About Various Treatments

Hi everyone, Just wondering here, trying to chart out various future scenarios. (You know how it goes.) Say someone's treated with Venetoclax and...

Hi everyone, Just wondering here, trying to chart out various future scenarios....

DRM18

•2 years ago

7 Replies

How long after last vaccine can the bivalent vaccine be received?

I was at my CLL doc in early August. She wanted me to get my fifth vaccine shot (second booster) but I asked her about waiting for the bivalent one that...

I was at my CLL doc in early August. She wanted me to get my fifth vaccine shot...

Greenon60

•2 years ago

4 Replies

BQ.1.1, highly immune invasive, headed to U.S.

https://fortune.com/well/2022/10/15/bq11-bq1-omicron-covid-variant-immune-evasive-cases-rising-us-fall-winter-wave-forecast-pandemic/ Perhaps, the link will...

https://fortune.com/well/2022/10/15/bq11-bq1-omicron-covid-variant-immune-evasiv...

Yuck

•2 years ago

1 Reply

Omicron variants challenge Evusheld, etc.

https://www.statnews.com/2022/10/18/biden-scramble-covid-variants-threaten-evusheld-immunocompromised/ Wish I were posting something else. Best, Yuck

https://www.statnews.com/2022/10/18/biden-scramble-covid-variants-threaten-evush...

Yuck

•2 years ago

8 Replies

covid vaccination confusion (uk only)

Thanks to everyone who supports and contributes to this site. I have read that those with CLL should have 3 primary courses then two boosters - or 2x 2...

Thanks to everyone who supports and contributes to this site. I have read that...

Saju21

•2 years ago

4 Replies

my precious Papa has passed ❤️👨🏻 Thank you to the forum for your support

Dear all, My dearest, precious, loving Papa has passed and I would like to share this message for all, but especially children and carers of those that have...

Dear all, My dearest, precious, loving Papa has passed and I would like to shar...

ButterflyRose

•2 years ago

63 Replies

Hypercalcemia Calcium levels shot up to 26

Has any of the CLL patients faced this issue? My husband was having episodes of unexplainable fatigue since a fortnight.. continuing fall in weight and...

Has any of the CLL patients faced this issue? My husband was having episodes of...

theoptimistduo

•2 years ago

8 Replies

obinutuzumab + acalaibrutinib + Venitoclax

Is someone else in the community taking this combination of treatment altogether? My husband has been having multiple issues sver since he has started this...

Is someone else in the community taking this combination of treatment altogether...

theoptimistduo

•2 years ago

1 Reply

CLL and Lymphedema

CLL and Lymphedema in forearm while taking Acalbrutinib (Calquence). This appeared without any warning about 6 months ago after a year and half on the drug?...

CLL and Lymphedema in forearm while taking Acalbrutinib (Calquence). This appea...

Okeefish

•2 years ago

5 Replies

paxlovid interactions-statins, thinners

I was prescribed statins and eloquis both mentioned in this article as contraindicated for Paxlovid. But i did not take them for other reasons. I am getting C...

I was prescribed statins and eloquis both mentioned in this article as contrain...

onu1tadi2

•2 years ago

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Lumbar injection after shingles CLL

Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left...

Hi everyone, I had shingles six months ago, leaving me with nerve problems in my...

TOMMOHOODIE

•2 years ago

5 Replies

Obinutuzumab and Venetoclax

Hi all He is the second half of Todd Dunn’s live treatment. You can skip ahead to the part where how well he feels after treatment. It was mostly uneventful...

Hi all He is the second half of Todd Dunn’s live treatment. You can skip ahea...

426hemi

•2 years ago

2 Replies

Obinutuzumab and Venetoclax

Hi everyone, I start my Obinutuzumab infusion on October 26th. I’ve read most everyone’s experiences on the upcoming treatment. Been quite a help. Put me at...

Hi everyone, I start my Obinutuzumab infusion on October 26th. I’ve read most ...

426hemi

•2 years ago

8 Replies

A backward step.

The abdominal abscess that has been plaguing me has decided to make an unwelcome return. I noticed a swelling a couple of days ago and the site where the...

The abdominal abscess that has been plaguing me has decided to make an unwelcom...

Jacksc06

•2 years ago

33 Replies

Sll/Acalabrutinib/lymph nodes

I am a month into treatment with Acalabrutinib and I can still see and feel many lymph nodes. I’ve been reading on this site that many seem to have had much...

I am a month into treatment with Acalabrutinib and I can still see and feel many...

Tofa80

•2 years ago

13 Replies

Диета при хлл

Здравствуйте.Несколько месяцев назад мне был поставлен диагноз ХЛЛ. Я пережила шок.Мне всего 47 лет,и у меня есть сын,которому всего 10 лет. Больше всего я...

Здравствуйте.Несколько месяцев назад мне был поставлен диагноз ХЛЛ. Я пережила ...

Nadegda

•2 years ago

14 Replies

What is next if Acalabrutinib AFIB wont stop?

My heart wasn't in the best of shape (2 valves replaced) to start with when I started on Ibrutinib. Ibrutinib really exacerbated my AFIB, but after a year of...

My heart wasn't in the best of shape (2 valves replaced) to start with when I st...

barger1951

•2 years ago

11 Replies

An interesting article on Covid

Pretty good information with links.. Just more information about the newest variant and its ability to escape antibody immunity. " BQ.1.1 is already known...

Pretty good information with links.. Just more information about the newest vari...

KMac1969

•2 years ago

10 Replies

HU CLL Support Community Guidelines along with further recommendations to keep you and our community safe

This pinned post provides important information that sets out our community’s posting guidelines, advice about maintaining community safety and personal online...

This pinned post provides important information that sets out our community’s po...

CLLerinOz

Administrator•2 years ago

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Good News After Doc Visit

Ever since last January when the flow cytometry came back undetected minimum residual disease along with a negative bone marrow biopsy in November my...

Ever since last January when the flow cytometry came back undetected minimum re...

Palmetto

•2 years ago

5 Replies

Calquence, please continue taking calquence. I love you calquence once a day! You keep me smiling. I hope you take it too!

I survived stage 4 CLL because of calquence. I could tell you more but I am super busy enjoying my life again. Please do the same and just ask your doctor for...

I survived stage 4 CLL because of calquence. I could tell you more but I am sup...

CLLStage4survivor

•2 years ago

38 Replies

Evusheld Reaction?

Got Evusheld today after waiting > 2 hours at St Jude for the paper work for something that was ordered 2 months ago. The shot is delivered in both gluteus...

Got Evusheld today after waiting > 2 hours at St Jude for the paper work for som...

bkoffman

CLL CURE Hero•2 years ago

33 Replies

Paxlovid and new Covid variants

Has anyone seen any data on how effective Paxlovid is against the new and up and coming Covid variants? john

Has anyone seen any data on how effective Paxlovid is against the new and up and...

johnliston

•2 years ago

7 Replies

Pirtobrutinib

Just putting some feelers out there. Has anyone experienced Pirtobrutinib (BTKi) other than in a trial and if so how successful was/is it. I would be...

Just putting some feelers out there. Has anyone experienced Pirtobrutinib (BTKi...

Nicebaps

•2 years ago

25 Replies

Thank you

Thank you everyone who gave me their thoughts and advice on preparing for blood tests. I was so grateful. I am going to bring it up at my next consultation...

Thank you everyone who gave me their thoughts and advice on preparing for blood ...

Adlucy

•2 years ago

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

car t trials CLL

CLL testing

Aussies treated for their CLL - Paid Survey. Please help researchers explore treatment goals and provide opinions on treatment options

Canada's National Patient Conference on Lymphoma & CLL

Leukemia arthritis

Hypothetical Question About Various Treatments

How long after last vaccine can the bivalent vaccine be received?

BQ.1.1, highly immune invasive, headed to U.S.

Omicron variants challenge Evusheld, etc.

covid vaccination confusion (uk only)

my precious Papa has passed ❤️👨🏻 Thank you to the forum for your support

Hypercalcemia Calcium levels shot up to 26

obinutuzumab + acalaibrutinib + Venitoclax

CLL and Lymphedema

paxlovid interactions-statins, thinners

Lumbar injection after shingles CLL

Obinutuzumab and Venetoclax

Obinutuzumab and Venetoclax

A backward step.

Sll/Acalabrutinib/lymph nodes

Диета при хлл

What is next if Acalabrutinib AFIB wont stop?

An interesting article on Covid

HU CLL Support Community Guidelines along with further recommendations to keep you and our community safe

Good News After Doc Visit

Calquence, please continue taking calquence. I love you calquence once a day! You keep me smiling. I hope you take it too!

Evusheld Reaction?

Paxlovid and new Covid variants

Pirtobrutinib

Thank you

Search posts

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Latest poll

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

car t trials CLL

CLL testing

Aussies treated for their CLL - Paid Survey. Please help researchers explore treatment goals and provide opinions on treatment options

Canada's National Patient Conference on Lymphoma & CLL

Leukemia arthritis

Hypothetical Question About Various Treatments

How long after last vaccine can the bivalent vaccine be received?

BQ.1.1, highly immune invasive, headed to U.S.

Omicron variants challenge Evusheld, etc.

covid vaccination confusion (uk only)

my precious Papa has passed ❤️👨🏻 Thank you to the forum for your support

Hypercalcemia Calcium levels shot up to 26

obinutuzumab + acalaibrutinib + Venitoclax

CLL and Lymphedema

﻿paxlovid interactions-statins, thinners

Lumbar injection after shingles CLL

Obinutuzumab and Venetoclax

Obinutuzumab and Venetoclax

A ﻿backward step.

Sll/Acalabrutinib/lymph nodes

﻿Диета при хлл

What is next if Acalabrutinib AFIB wont stop?

An interesting article on Covid

HU CLL Support Community Guidelines along with further recommendations to keep you and our community safe

Good News After Doc Visit

Calquence, please continue taking calquence. I love you calquence once a day! You keep me smiling. I hope you take it too!

Evusheld Reaction?

Paxlovid and new Covid variants

Pirtobrutinib

Thank you

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

paxlovid interactions-statins, thinners

A backward step.

Диета при хлл