Posts - CLL Support | HealthUnlocked

CLL Support

23,140 members • 39,744 posts

All posts for October 2022

nhs shingrix vaccination?

I am diagnosed with CLL on W&W. It appears Shingrix is only available to over 70’s (irrespective of health status). I am 55. It appears in the US where...

I am diagnosed with CLL on W&W. It appears Shingrix is only available to over 70...

jusa19

•2 years ago

36 Replies

Flu Shot

I was wondering if I have covid can `I still get the flu shot or I have to wait till I am negative.

I was wondering if I have covid can `I still get the flu shot or I have to wait ...

Kmegood

•2 years ago

4 Replies

Fred Hutchinson Cancer Center receives $710.5 million gift to accelerate cancer and infectious disease research.

This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior...

This gift will enable Fred Hutch to recruit about 36 new researchers from a vari...

gardening-girl

•2 years ago

2 Replies

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Just started Calquence

I was feeling great before starting this medication, going about as normal and doing housework etc now dread taking the tablet in the morning as thats when...

I was feeling great before starting this medication, going about as normal and d...

Westie11-

•2 years ago

32 Replies

Venetoclax

I’ve been on Venetoclax for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I...

I’ve been on Venetoclax for 14 months now and would just like to say that this d...

Racing1961

•2 years ago

18 Replies

started Acalabrutinib 3 weeks ago..

Hi, I’ve been checking in on this site frequently but this is my first post. I started Acalabrutinib 3 weeks ago and so far I have only experienced mild side...

Hi, I’ve been checking in on this site frequently but this is my first post. I ...

Tofa80

•2 years ago

12 Replies

platelets down to 118

was in remission for a few year after venetoclax and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on...

was in remission for a few year after venetoclax and retuximab combo. Platelets ...

CM19

•2 years ago

5 Replies

Paxlovid in U.S. News

The news yesterday (Oct. 12, 2022) was about the contraindications of heart meds with Paxlovid. Just a heads up for knowing about your needs to get...

The news yesterday (Oct. 12, 2022) was about the contraindications of heart med...

cllady01

Former Volunteer•2 years ago

28 Replies

CVS® pharmacists can now prescribe Paxlovid to treat COVID-19

https://www.cvs.com/content/covid-antiviral?eval=YJsOqFadgjWaVb+GURMukIuCgEtHn/YSoA1qNoKvLuM=&CID=EM_EC_ERP_20221012#:~:text=CVS%C2%AE%20pharmacists,a%20MinuteC

https://www.cvs.com/content/covid-antiviral?eval=YJsOqFadgjWaVb+GURMukIuCgEtHn/Y...

lankisterguy

Volunteer•2 years ago

3 Replies

RISK OF DYING OF COVID DURING THIS OMICRON PHASE

Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from...

Hi, Covid Mortality Rates, I am wondering about the reality. I've read ever...

skipro

•2 years ago

86 Replies

CT thorax results: borderline lymphs

Hi everyone, My father has CLL/SLL from 2018 and had his first treatment at 2019 with Bendamustine and Rituximab because of very enlarged lymph nodes. After...

Hi everyone, My father has CLL/SLL from 2018 and had his first treatment at 20...

TOFK

•2 years ago

14 Replies

Moderna and Merck Melanoma Vaccine

Knowing we have a much greater risk of Melanoma figured I’d share this news: “Moderna's messenger RNA vaccine is being studied in combination with Merck's...

Knowing we have a much greater risk of Melanoma figured I’d share this news: ...

Rando21

•2 years ago

2 Replies

Evusheld-Flu-Covid Injections In Two Weeks Timeframe

15 days ago, I received my second round of Evusheld. It had been 6 months since my first round of injections and the effectiveness was wearing down....

15 days ago, I received my second round of Evusheld. It had been 6 months since...

DanBro1

•2 years ago

6 Replies

Going from MRD Negative to MRD Positive in 3 Months

Hi Everyone - I achieved MRD negative status in February 2022 after being on V+O for 12 months. I was told that my July 2022 MRD test is now MRD positive. I...

Hi Everyone - I achieved MRD negative status in February 2022 after being on V+O...

kerrysligo

•2 years ago

11 Replies

Evusheld Today's Parliamentary Debate

I don't know how many people watched this this morning. Daisy Cooper made a brilliant case on behalf of 500,000 immune compromised people, supported by many...

I don't know how many people watched this this morning. Daisy Cooper made a bril...

RogerPinner

•2 years ago

7 Replies

Referral to haematologist by my GP

I have been diagnosed with CLL in 2014. I saw a haematologist/oncologist for 5 years, but as my blood tests were fairly stable he said my GP could take over...

I have been diagnosed with CLL in 2014. I saw a haematologist/oncologist for 5 y...

Feestvarken

•2 years ago

22 Replies

Acalabrutinib + Ruxolitinib interactions

Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both...

Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr m...

antonb

•2 years ago

3 Replies

Diverticulitis treatment and CLL

I have been diagnosed with diverticulitis and prescribed a 10 day regime of Cipro and Flagyl. I am on a low dose of imbruvica for CLL. I'm aware of the side...

I have been diagnosed with diverticulitis and prescribed a 10 day regime of Cipr...

sheilamarie

•2 years ago

23 Replies

Calquence First Week

I just started taking calquence, after three days my blood test showed my White Blood Count went from 95 to 253. Has anyone had their White Blood Count go up...

I just started taking calquence, after three days my blood test showed my White ...

helenolton

•2 years ago

28 Replies

Hydroxychloroquin

Does anyone use chlorine hydroxide (Dr Andreas Kalcker) or quinine (together they make HCQ)?

Does anyone use chlorine hydroxide (Dr Andreas Kalcker) or quinine (together the...

sharksalive

•2 years ago

2 Replies

BMJ article re Evusheld

This morning's update from the "Evusheld for the UK" FB group includes a link to an article published in the British Medical Journal, yesterday. It summarises...

This morning's update from the "Evusheld for the UK" FB group includes a link to...

Michaeljohn50

•2 years ago

3 Replies

nitric oxide and cll

Are nitric oxide supplements good for cll?

Nugent666

•2 years ago

2 Replies

flu and COVID vaccine at the same time (or few days apart)?

Some sources indicate that it's safe to receive a flu and COVID vaccine at the same time - and as a possible downside, cite modest side effects in a small...

Some sources indicate that it's safe to receive a flu and COVID vaccine at the s...

mantana

•2 years ago

12 Replies

Prostate CA

I'm looking for input from our group on facing Prostate CA and also having CLL. Do we have any information on whether or not those of us with CLL are going to...

I'm looking for input from our group on facing Prostate CA and also having CLL. ...

wizzard166

•2 years ago

10 Replies

Acalabrutinib and social life

I'm about to start taking acalabrutinib and I belong to quite a few social groups. Do I have to take any special precautions. My consultant expects me to be...

I'm about to start taking acalabrutinib and I belong to quite a few social group...

Artlover1908

•2 years ago

12 Replies

shingles vaccination

when you had shingles ( not bad) should you get vaccinated? And when?

mickimauser11

•2 years ago

6 Replies

MPs will hold a debate on procurement of Evusheld in UK

The petition “Fund Evusheld the preventative COVID19 antibody for immunocompromised' seems to have borne fruit, although it's well short of the 100,000...

The petition “Fund Evusheld the preventative COVID19 antibody for immunocompromi...

bennevisplace

•2 years ago

14 Replies

Copper Bracelets

Various bracelets are advertised for lymph drainage, would these or simply massaging lymph nodes be of any benefit to us.

Various bracelets are advertised for lymph drainage, would these or simply massa...

Buttons42

•2 years ago

8 Replies

LOW BLOOD PRESSURE

A somewhat new development for me has me wondering if there could be any relationship to our illness, so I'm seeking comments. My Blood Pressure has been...

A somewhat new development for me has me wondering if there could be any relatio...

wizzard166

•2 years ago

25 Replies

Heightened Immune System Causing Rebound COVID-19 also Note CDC announcing going to Weekly reports of COVID cases

https://www.ajmc.com/view/what-we-re-reading-covid-19-rebound-explained-teen-vaping-continues-racial-disparities-in-monkeypox-rates Heightened Immune System...

https://www.ajmc.com/view/what-we-re-reading-covid-19-rebound-explained-teen-vap...

cllady01

Former Volunteer•2 years ago

18 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2022

nhs shingrix vaccination?

Flu Shot

Fred Hutchinson Cancer Center receives $710.5 million gift to accelerate cancer and infectious disease research.

Just started Calquence

Venetoclax

started Acalabrutinib 3 weeks ago..

platelets down to 118

Paxlovid in U.S. News

CVS® pharmacists can now prescribe Paxlovid to treat COVID-19

RISK OF DYING OF COVID DURING THIS OMICRON PHASE

CT thorax results: borderline lymphs

Moderna and Merck Melanoma Vaccine

Evusheld-Flu-Covid Injections In Two Weeks Timeframe

Going from MRD Negative to MRD Positive in 3 Months

Evusheld Today's Parliamentary Debate

Referral to haematologist by my GP

Acalabrutinib + Ruxolitinib interactions

Diverticulitis treatment and CLL

Calquence First Week

Hydroxychloroquin

BMJ article re Evusheld

nitric oxide and cll

flu and COVID vaccine at the same time (or few days apart)?

Prostate CA

Acalabrutinib and social life

shingles vaccination

MPs will hold a debate on procurement of Evusheld in UK

Copper Bracelets

LOW BLOOD PRESSURE

Heightened Immune System Causing Rebound COVID-19 also Note CDC announcing going to Weekly reports of COVID cases

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