Здравствуйте.Несколько месяцев назад мне был поставлен диагноз ХЛЛ. Я пережила шок.Мне всего 47 лет,и у меня есть сын,которому всего 10 лет. Больше всего я переживаю,за то,что не смогу вырастить и поставить на ноги своего ребенка.Доктор сказал,что я болею уже примерно 5 лет, так как симптомы появились уже 3 года назад.Затем я переболела 3 раза ковидом,и состояние мое ухудшилось, но я думала,что это постковидный синдром,пока на УЗИ, а затем КТ не были обнаружены увеличенные лимфоузлы. Это моя история.
Я хотела бы узнать информацию по питанию,что можно есть,что нельзя.Есть ли рекомендации по питанию больным ХЛЛ.Мой доктор говорит,что я должна очень хорошо питаться,так как у меня уровень железа находится на нижнем уровне.
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Nadegda
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Hello Nadegda, bitaem. Is that Belarusian? Do you have a translator person or app that can translate your post to English?
Most people on the forum are English speakers and will not be able to understand your post and give you answers or feedback if that’s what you are looking for. If you can translate your post, you might get more helpful responses.
This is the translation from Belarusian to English which I had to do in parts as it exceeds google translation limits.
‘Hello. A few months ago, I was diagnosed with CLL. I experienced a shock. I am only 47 years old, and I have a son who is only 10 years old. What worries me the most is that I will not be able to raise and put my child on his feet. The doctor said that I have been ill for about 5 years, because the symptoms appeared already 3 years ago. Then I got sick with covid 3 times, and my condition worsened, but I thought it was post-covid syndrome, until an ultrasound scan and then a CT scan revealed enlarged lymph nodes. This is my story.I would like to know information on nutrition, what is possible, what is not. Are there recommendations for nutrition for patients with CLL. My doctor says that I should eat very well, since my iron level is at a low level.’
Hi Newdawn! Nadegda wrote in Russian, which I understand. The translation is perfect. I will send her a private message and will offer any help. Thank you for your great help already.
Would you mind replying to Nadegda's post here, along with an English translation? That way others can share and become involved. I'm sure a private message would also be welcome.
I do not mind at all. So far I just wrote to her that it is a heterogeneous disease and would be very nice to get a CLL specialist.
And also that no food would cure this disease, but would help to be healthy overall. But some foods may help with iron levels. That's all so far. I wanted to suggest FISH test but have a lot of doubts if it is available in Belorussia. Do not want to stress her more than she is.
Я дал линк на брошурра , которая дают на русскоязычных людей с хроническая лимфолеукоза.
Я тебя приветствую в етот форум.
Если вы хотите, чтобы мы помогли вам больше, то публикуйте больше данных о своем заболевании — например, результаты предыдущих исследований.
Это заболевание хроническое, и все происходит относительно медленно.
Мне нравится твое имя.
Ялокин
-------------------------------------------------------------------------------------------------------------------I gave a link to a brochure that is given to Russian-speaking people with chronic lymphocytic leukemia.
I welcome you to this forum.
If you want us to help you more, then publish more data about your disease - for example, the results of previous studies.
This disease is chronic, and everything happens relatively slowly.
Hello. thank you so much for your support. I thank you for the link to the brochure in Russian, it is very useful for me. It contains all the necessary information about CLL. It is very comfortable.
Hello. Thank you for your support. I apologize for my Russian. I mistakenly thought that the translation of the message is automatic, since I read messages in Russian. On this forum, I find a lot of useful information for myself. I can not always get this information from my doctor. Our healthcare system in Belarus is not perfect, especially medicine in the periphery, it is necessary to break into the republican scientific and practical centers, where the level of specialists is high. We have available cytogenetic studies and FISH, but I probably haven't done them yet. Our doctors are reluctant to initiate the patient into the course of examinations, you have to ask everything. And to ask, you need to have information about the methods of research and treatment. Next month I have an appointment with a hematologist, and I will ask about it. While I do not know my status, but the doctor said that I will live happily ever after. I have not yet been able to find out from her on the basis of what she thinks so. I did not see the results of the studies, the only thing that the doctor told me over the phone was that the bone marrow was affected by 38%. I had a lymph node biopsy, before the diagnosis, followed by blood immunophenotyping and bone marrow testing.
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