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CLL Support

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All posts for February 2022

Time to take a BiTE? Bispecific T-Cell Engagers (BiTEs)

Bispecific antibodies are one of the newest treatments currently being trialled and offer the promise of a new type of treatment but it’s not without risks....

Bispecific antibodies are one of the newest treatments currently being trialled ...

Jm954

Administrator•2 years ago

8 Replies

Evusheld

For those of you have been able to get the Evusheld shots? Have any of you had any side effects?

For those of you have been able to get the Evusheld shots? Have any of you had ...

BeckyLUSA

•2 years ago

26 Replies

Shingles vaccine for cll patients

I'm a high-risk cll thriver on ibrutinib for 6 years with no ill effects and great blood counts. To encourage you, I will add I survived severe covid after a...

I'm a high-risk cll thriver on ibrutinib for 6 years with no ill effects and gre...

Splashes

•2 years ago

25 Replies

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Understanding Acalabrutinib

I have been on ibrutinib for 2 years with the only side effect being frequent rashes of varying types, but they are annoying and make sleeping difficult when...

I have been on ibrutinib for 2 years with the only side effect being frequent ra...

CCgroup

•2 years ago

8 Replies

Turkish man wirh leukemia sets record for longest covid19 infection.

Keep safe everyone https://www.standard.co.uk/news/world/muzaffer-kayasan-covid-positive-fourteen-months-turkey-record-b982898.html

Keep safe everyone https://www.standard.co.uk/news/world/muzaffer-kayasan-covid-...

Bartlet

•2 years ago

1 Reply

Anti Vaccine or Personal Choice

I notice a post here from a person who has CLL who has decided not to take the vaccine. That’s a brave choice for someone who is immunodeficient. However that...

I notice a post here from a person who has CLL who has decided not to take the v...

MovingForward4423

•2 years ago

8 Replies

Good news on evusheld for usa. Now what about other countries?

CLL society report on news usa govt is buying more evusheld...

Bartlet

•2 years ago

1 Reply

Occasional wine

Is a glass of wine okay with imbruvica

Ashley222

•2 years ago

1 Reply

I hear "remission" ?

During my monthly labs at the cancer clinic , I heard the word "remission" - as a quite commentary and afterthought from the P.A. of my hematologist. (In the...

During my monthly labs at the cancer clinic , I heard the word "remission" - as ...

janvog

•2 years ago

7 Replies

Covid

I live in Ohio, no one has suggested I get a fourth shot. I've had 3 full doses. How do I get the fourth?

I live in Ohio, no one has suggested I get a fourth shot. I've had 3 full doses....

Josephine233

•2 years ago

14 Replies

Huge reaction to 4th jab!

As a 77 year old with CLL - diagnosed in 2003 and never treated - currently working in South Greece, and having had my previous jabs here, I managed(at last)...

As a 77 year old with CLL - diagnosed in 2003 and never treated - currently work...

stavropigio

•2 years ago

16 Replies

Acalabruitinib and Obinutuzumab

Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it. The Acalabrutinib is my 3rd BTK inhibitors I started with Ibrutinib...

Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more ab...

Porter01

•2 years ago

12 Replies

Onclive update on cll treatments

Dr burger on the changing treatment landscape for us: https://www.onclive.com/view/dr-burger-on-the-changing-treatment-landscape-of-cll

Dr burger on the changing treatment landscape for us: https://www.onclive.com/v...

Bartlet

•2 years ago

3 Replies

It’s not just about covid. How to reduce your infection risk.

Patient power program on how to avoid getting sick https://patientpower.info/strategies-to-limit-infection-risk-for-patients-with-cll/

Patient power program on how to avoid getting sick https://patientpower.info/str...

Bartlet

•2 years ago

1 Reply

Skin rash

I have been on Calquence for about two months. Came down with a rash on my body. It itches a lot. My oncologist stopped the medication and put me on...

I have been on Calquence for about two months. Came down with a rash on my body...

Zsuzsika

•2 years ago

18 Replies

Anybody using Arizona Health Care Cost Containment System (AHCCCS)

Hi is anybody using AHCCCS in Arizona to get medications for CLL and IVIG treatments?

Hi is anybody using AHCCCS in Arizona to get medications for CLL and IVIG treatm...

pragnar

•2 years ago

1 Reply

Cost of Venetoclax

Hello, just wondering if anyone has ever purchased cheaper venetoclax drugs from another source other than their own country?

Hello, just wondering if anyone has ever purchased cheaper venetoclax drugs from...

Driverps1

•2 years ago

19 Replies

Radiation and CLL?

I had my second lumpectomy last Friday. Had a reoccurrence after two years. Drs said I now need radiation to my left breast. They removed two more lymph nodes...

I had my second lumpectomy last Friday. Had a reoccurrence after two years. Drs ...

1962jns

•2 years ago

7 Replies

Itchy skin

I have been in remission for a couple of years still very tired and getting the sweats but now I have periods where I get really itchy skin , usually on my...

I have been in remission for a couple of years still very tired and getting the ...

dandelup

•2 years ago

5 Replies

Zanubritinib for CLL, started yesterday.

Hello all! I'm back after a 2-year remission. Dr. Thompson at MD Anderson prescribed Zanubrutinib because Ibrutinib and Venetoclax were pretty toxic for me on...

Hello all! I'm back after a 2-year remission. Dr. Thompson at MD Anderson presc...

LeeAnnLA

•2 years ago

9 Replies

Any advice on shingles misery?

I’ve been diagnosed with oral shingles (and a big thank you to Bellabee for recognising the symptoms and making me go to the doctor). I’m 6 days into aciclover...

I’ve been diagnosed with oral shingles (and a big thank you to Bellabee for reco...

Mandy56

•2 years ago

19 Replies

Last day to respond to UK government survey (re Covid vaccines for health workers)

I wrote about this a few days ago, but this is just a reminder. The survey is NOT just asking for opinions on revoking mandatory vaccines for NHS care...

I wrote about this a few days ago, but this is just a reminder. The survey is ...

PaulaS

Volunteer•2 years ago

Be the first to reply

Sotrovimab or Paxlovid with Ibrutinib

Should one stop taking Ibrutinib if receiving Sotrovimab or Paxlovid for COVID? Just a precautionary question.

Should one stop taking Ibrutinib if receiving Sotrovimab or Paxlovid for COVID?...

RobertCLL

•2 years ago

9 Replies

IDK NEED HELP

Got test results back from Hemoglobins. Main issue Igm is high 989 range for lab is 70-775. What is the level indication

Got test results back from Hemoglobins. Main issue Igm is high 989 range for lab...

Family2017

•2 years ago

6 Replies

Leukemia & Lymphoma Society (USA) provides a LLS Clinical Trial Nurse Navigator to assist you throughout the entire clinical trial process

CLINICAL TRIAL SUPPORT CENTER (CTSC) https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be...

CLINICAL TRIAL SUPPORT CENTER (CTSC) https://www.lls.org/support-resources/c...

lankisterguy

Volunteer•2 years ago

Be the first to reply

Ibrutinib Resistance

Hello Everyone, I have been a long time reader of this forum and it has been extremely helpful. My mother (73 yrs old) was diagnosed with CLL about 8 years...

Hello Everyone, I have been a long time reader of this forum and it has been ext...

Adel1

•2 years ago

10 Replies

Brian Koffman's tribute to Tom Henry and the family's memorial fund in lieu of flowers

bkoffman has posted a moving tribute and at the family's request set up a memorial fund: https://cllsociety.org/2022/02/tribute-to-tom-henry/

bkoffman has posted a moving tribute and at the family's request set up a memor...

Bartlet

•2 years ago

5 Replies

Zanbrutnib

Zanbrutnib treatment

Mackiec1108

•2 years ago

5 Replies

Evusheld and masks

I’ve tested negative for all 4 covid vaccines and have finally been offered Evusheld. Will more activities be safe after the shots?

I’ve tested negative for all 4 covid vaccines and have finally been offered Evus...

Atds

•2 years ago

12 Replies

Response to itching

Dear Opal, I went through the exact same issue whilst on W&W specialist advised me that they had seen it in a few CLL patients,I used to get itchy welts all...

Dear Opal, I went through the exact same issue whilst on W&W specialist advised ...

CocoMolly

•2 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2022

Time to take a BiTE? Bispecific T-Cell Engagers (BiTEs)

Evusheld

Shingles vaccine for cll patients

Understanding Acalabrutinib

Turkish man wirh leukemia sets record for longest covid19 infection.

Anti Vaccine or Personal Choice

Good news on evusheld for usa. Now what about other countries?

Occasional wine

I hear "remission" ?

Covid

Huge reaction to 4th jab!

Acalabruitinib and Obinutuzumab

Onclive update on cll treatments

It’s not just about covid. How to reduce your infection risk.

Skin rash

Anybody using Arizona Health Care Cost Containment System (AHCCCS)

Cost of Venetoclax

Radiation and CLL?

Itchy skin

Zanubritinib for CLL, started yesterday.

Any advice on shingles misery?

Last day to respond to UK government survey (re Covid vaccines for health workers)

Sotrovimab or Paxlovid with Ibrutinib

IDK NEED HELP

Leukemia & Lymphoma Society (USA) provides a LLS Clinical Trial Nurse Navigator to assist you throughout the entire clinical trial process

Ibrutinib Resistance

Brian Koffman's tribute to Tom Henry and the family's memorial fund in lieu of flowers

Zanbrutnib

Evusheld and masks

Response to itching

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