Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2022

CLL patient cured a decade after gene therapy

In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy that transformed some of his blood cells into cancer killers. More than a...

In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy...

•2 years ago

New and better antibody test results? Should I celebrate?

After my second vaccination last year I did a Roche Anti-SARS-CoV-2 Total Antibody Test and it registered 12 U/mL. The accompanying literature indicates...

After my second vaccination last year I did a Roche Anti-SARS-CoV-2 Total Antibo...

•2 years ago

Life after Covid-19

What was life like before Covid-19 I was diagnosed during it and so I know how cautious I have to be while it’s here but what are the risks without it ??

What was life like before Covid-19 I was diagnosed during it and so I know how c...

•2 years ago

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Does anyone have any comments on the CNN report? T-cell immunotherapy tied to 10-year remission in two leukemia patients, study finds

https://www.cnn.com/2022/02/02/health/cancer-t-cell-therapy-remission-study/index.html

https://www.cnn.com/2022/02/02/health/cancer-t-cell-therapy-remission-study/in...

•2 years ago

4th vaccine side effects while on Venetoclax

Hello has anyone had bad side effects while on venetoclax after 4 th booster vaccine, my partner had his vaccine last Saturday but still not doing great 😕...

Hello has anyone had bad side effects while on venetoclax after 4 th booster vac...

•2 years ago

Question about Covid symptoms and the vaccine response

I have a pretty basic question about what to expect with the vaccine, and whether symptoms show themselves at all, but I can't find any articles on the topic....

I have a pretty basic question about what to expect with the vaccine, and wheth...

•2 years ago

Now Received Priority Home PCR Test (To access new treatments Sotrovimab Molnupiravir & Paxlovid)

Apologies to all those I've just replied to about Home PCR tests. I have now just received the "Priority" version of the test (After the first one I got was an...

Apologies to all those I've just replied to about Home PCR tests. I have now jus...

•2 years ago

First Pcr now THE email!

Things are looking up, got an email from NHS today with all the info. on what to do if I get covid. John

Things are looking up, got an email from NHS today with all the info. on what to...

•2 years ago

Go to the wedding, or not?

My husband and I are struggling to make a decision - his younger cousin is getting married at the end of February, in Dallas. There will be about 180 guests,...

My husband and I are struggling to make a decision - his younger cousin is getti...

•2 years ago

Looks like WW is finally over

I have been WW since a 2016 diagnosis. I am a 52 year old male and in good health aside from CLL. I work out daily and I’m in good shape and have no other...

I have been WW since a 2016 diagnosis. I am a 52 year old male and in good heal...

•2 years ago

BTK inhibitor therapy for patients with CLL/SLL- treatment barriers BTK inhibitors in CLL/SLL & adverse events- Dr. Javier Pinilla Ibarz

This video was intended for medical professionals and is delivered as a fast paced recap of current state of the art in CLL. IMO experienced CLL patients that...

This video was intended for medical professionals and is delivered as a fast pac...

Volunteer•2 years ago

coronavirus in a person with cll on active treatment

Hello from Poland I have chronic leukemia for three years I am 65 years old i have been on zanubrutinib for three years. I was vaccinated three times moderna....

Hello from Poland I have chronic leukemia for three years I am 65 years old i ha...

•2 years ago

Has any had Evushield injections or know anything about these antibodies?

My doc ordered these for me because I didn’t get antibodies from the vaccine and with CLL I am high risk for Covid.

My doc ordered these for me because I didn’t get antibodies from the vaccine and...

•2 years ago

Blood cancer uk explain why some CLLers are finally getting priority PCR tests

❗📢 Recently, the NHS wrote to people who were eligible to be assessed for whether they qualify for new treatments if they contracted Covid. In England, these...

❗📢 Recently, the NHS wrote to people who were eligible to be assessed for wheth...

•2 years ago

how can i prevent muscle cramping

what causes muscle cramping ? exercise is very important to my good health. leg cramps are scary when i am open ocean swimming which builds good health, an...

what causes muscle cramping ? exercise is very important to my good health. le...

•2 years ago

Ibrutinib and a chronic cough

Hello! My husband has been on Ibrutinib for 5 months and has developed a terrible chronic cough. His bronchial tubes seems to have become inflamed and there is...

Hello! My husband has been on Ibrutinib for 5 months and has developed a terribl...

•2 years ago

can't get a letter for a priority PCR with CLL.

Tearing my hair out and getting nowhere trying to get myself a priority PCR! I am starting to feel forgotten and about by both my CNS and surgery. I have CLL...

Tearing my hair out and getting nowhere trying to get myself a priority PCR! I a...

•2 years ago

iNews posts about removing of PCR requirement

"Officials have now altered the rules so that a positive lateral flow test (LFT) result online will be enough to qualify for the treatments – but the change...

"Officials have now altered the rules so that a positive lateral flow test (LFT...

•2 years ago

Racial Gap in uptake of 3rd vaccine in immune compromised

https://bloodcancer.org.uk/news/alarming-racial-inequality-in-third-vaccine-doses-for-the-immunocompromised/ “Much of the public debate around lower...

https://bloodcancer.org.uk/news/alarming-racial-inequality-in-third-vaccine-dose...

•2 years ago

TSH ?

CLL, age 87, IMBRUVICA: Doing well after 3 years. My hematologist offered me to come every month for labs, and I asked him to include TSH to monitor my...

CLL, age 87, IMBRUVICA: Doing well after 3 years. My hematologist offered me to ...

•2 years ago

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