Cost of Venetoclax: Hello, just wondering if... - CLL Support

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Cost of Venetoclax

Driverps1 profile image
19 Replies

Hello, just wondering if anyone has ever purchased cheaper venetoclax drugs from another source other than their own country?

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Driverps1 profile image
Driverps1
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19 Replies
morepork profile image
morepork

Hi Driverps1 you may already know this but here in NZ the drug has been funded since 2019 - see criteria in link below in case you didn't know -

pharmac.govt.nz/news-and-re...

Regards 😊

Driverps1 profile image
Driverps1 in reply to morepork

Hi, Hope you are well?Yes i do know that its funded for those that qualify but not for me. My cost is 10k nz per month for 12 months course and 22k nz for 3 months of Ibrutinib combo so approx 140k =nz for total therapy. I have heard of others getting it abit cheaper from abroad.

Nelka profile image
Nelka in reply to Driverps1

I have 2 months supply of imbruvica (2 packages) that I don't need and will be happy to give you. Each package is sealed, 420 mg per tablet. I've had them since Aug 2019. I'm in Chicago. Let me know.

Driverps1 profile image
Driverps1 in reply to Nelka

Hello Nelka, are you sure you don't need them? is there an expiry date on the packet?This is very kind of you to offer! Thanks Stuart.

Nelka profile image
Nelka in reply to Driverps1

I'm sure. I recently went through the CAR-T trial and am currently in complete remission. Ask your doctor about the expiration date. I'll be happy to send you the pictures of the packages. I don't know anything about sending the prescription drugs to another country. If your doctor approves, please, find out the best way to send it.

Nelka profile image
Nelka in reply to Nelka

Oops, so sorry. Just saw the expiration date - Dec 2020. I'll send them if you still want them.

Driverps1 profile image
Driverps1 in reply to Nelka

Thanks for thinking of me, very kind of you. Hope you have a very long remission!

Nelka profile image
Nelka in reply to Driverps1

Thank you. Good luck!!

beanlake14 profile image
beanlake14 in reply to Driverps1

I have a bottle of venetoclax that I took 4 of. It’s good til October

Driverps1 profile image
Driverps1 in reply to beanlake14

Thankyou so much this is so generous of you to offer! How much do you want for this ?

beanlake14 profile image
beanlake14 in reply to Driverps1

Can you send me your addresss? Nothing.

Ellieoak profile image
Ellieoak

You can always call Leukemia/ Lymphatic society. They will usually help you out.

marrix profile image
marrix

Hi Driverps1, I'm in the US and on medicare and was on Venetoclax for 16 months (discontinued Oct 2021 as I became uMRD). I received financial assistance from both LLS and Healthwell, and never paid anything out of pocket for the Venetoclax. The qualifier for me was I had to meet the financial criteria established by the foundations. If you have any questions please respond.

Driverps1 profile image
Driverps1 in reply to marrix

Thankyou for your reply, here in Nz we have to pay for literally every medication. It’s very hard in this country to get funded . Hope you are doing well ?

dj02 profile image
dj02

Kiora Driver... I am about to start ventoclax but need to import a generic but its minefield knowing which ones are most cost effective. Did you have any luck importing it

Driverps1 profile image
Driverps1 in reply to dj02

Hi, are you not funded in NZ?

SofiaDeo profile image
SofiaDeo

I get mine directly from the company, they have a patient assistance program. The website in the US at least, has links. Perhaps Google "venetoclax patient assistance".

Also am seeing this, but not sure if it applies to you. It states NZ is "funding" the drug.

pharmac.govt.nz/news-and-re...

A Canadian place claims to fill prescriptions for NZ

canadadrugsonline.com/DrugM...

Maybe lock your post, it's open to the entire Internet.

Driverps1 profile image
Driverps1 in reply to SofiaDeo

Hi, The only funding you get in NZ is if you are 17p deletion or tried everything else and it doesn't work. I dont think the prime minster is doing enough in this country to help those with cancer or any other illness that seems to be funded in every other country but NZ.

dj02 profile image
dj02

Some people are . I am not which is why Im looking for an effective generic

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