Posts - CLL Support | HealthUnlocked

CLL Support

22,631 members • 38,860 posts

All posts for October 2021

Hi All Anyone had and issues with liver bloods when on O&V treatment

My partner had his last obinutuzumab treatment today but his bloodwork showed a spike in his liver count , first time this has happened, he was poorly from...

My partner had his last obinutuzumab treatment today but his bloodwork showed a ...

Hd07

•3 years ago

4 Replies

UK Government announce that supplies of Molnupiravir and Ritonavir against Covid 19 have been secured.

Thousands of vulnerable patients could be taking ground-breaking COVID-19 antivirals this winter after the government announced deals to secure 2 new...

Thousands of vulnerable patients could be taking ground-breaking COVID-19 antivi...

Jm954

Administrator•3 years ago

18 Replies

3rd jab!!

I just received a text message on Monday saying that my consultant had written to my GP recommending that I have a 3rd covid jab and to attend the medical...

I just received a text message on Monday saying that my consultant had written t...

kitchengardener2

•3 years ago

5 Replies

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Lymphoma patient had the longest documented COVID-19 infection.

The patient had a lymphoma and had been successfully treated with CAR-T cell therapy, 3 years earlier. It took her over a year to clear covid from her...

The patient had a lymphoma and had been successfully treated with CAR-T cell t...

Jm954

Administrator•3 years ago

Be the first to reply

AZD7442 gets a name!

Earlier this month Astrazeneca applied to the FDA for an emergency use authorisation (EUA) for its long-acting monoclonal antibody cocktail AZD7442. The...

Earlier this month Astrazeneca applied to the FDA for an emergency use authorisa...

bennevisplace

•3 years ago

4 Replies

Red blood cells may be immune sentinels

Jm954

Administrator•3 years ago

2 Replies

UK only - COVID Cancer Antibody Survey

The NHS has launched a national COVID Cancer Antibody Survey to assess antibody responses to the COVID-19 vaccines among cancer patients and is calling on...

The NHS has launched a national COVID Cancer Antibody Survey to assess antibody ...

Jm954

Administrator•3 years ago

33 Replies

IVIG infusion

When do patients get started on IVIG infusion please?

Vocals

•3 years ago

21 Replies

Early stage CLL

I have been diagnosed wit CLL stage A this week. I am on W&W. Where do I find good dietary advice please? Any supplements good for slowing the progress?

I have been diagnosed wit CLL stage A this week. I am on W&W. Where do I find go...

Vocals

•3 years ago

7 Replies

Vaccination

3 weeks after 3rd vaccination had antibody test and my numbers are in excess of 2,500 - have a little more confidence now

3 weeks after 3rd vaccination had antibody test and my numbers are in excess of ...

Grad99

•3 years ago

22 Replies

Valneva COVID vaccine

I have heard very little about this vaccine (manufactured in Scotland?) and wondered if anyone knew more about it and whether it would be useful for us...

I have heard very little about this vaccine (manufactured in Scotland?) and wond...

camper2

•3 years ago

6 Replies

nightmare

had a letter of NHS for my 3rd covid vaccine ,it states the 3rd vaccine is different than the booster vaccine ,,,,joke when i rung the nhs booking line they...

had a letter of NHS for my 3rd covid vaccine ,it states the 3rd vaccine is diffe...

kel555

•3 years ago

42 Replies

Unusual issue

A few days ago I woke up at about 4:50AM with night sweats. I had just gotten over a season of night sweats that lasted from July to mid September. I took...

A few days ago I woke up at about 4:50AM with night sweats. I had just gotten o...

Rando21

•3 years ago

13 Replies

CLL and Allergies

Has anyone experienced severe allergies to dander, pet hair and certain foods since CLL diagnosis? If so what steps have helped you deal w/this?

Has anyone experienced severe allergies to dander, pet hair and certain foods s...

Naisy

•3 years ago

7 Replies

Tingling Legs and CLL

Recently diagnosed on watch and wait and my legs have been tingling from knees down for approx 6 weeks now. Uncertain if this is due to the second pfizer...

Recently diagnosed on watch and wait and my legs have been tingling from knees d...

Glandore2021

•3 years ago

16 Replies

Experience in Discontinuing Calquence

After Effects of Discontinuing Calquence: Anyone experienced dizziness?

cll2013

•3 years ago

5 Replies

Restart Ibrutinib 3 days after (still bleeding) tooth extraction?

I'm a CLL patient on Ibrutinib for 2 years and doing good. Three days ago I had a molar extraction. My doctor told me to stop Ibrutinib 3 days before and three...

I'm a CLL patient on Ibrutinib for 2 years and doing good. Three days ago I had ...

misterbee

•3 years ago

7 Replies

The 3rd vaccine injection

Just to let people know I had my 3rd primary AZ vaccine injection this morning,and at the centre they were familiar with this situation. Judy make sure when...

Just to let people know I had my 3rd primary AZ vaccine injection this morning,a...

studi

•3 years ago

9 Replies

Get Regeneron Today or Wait To Ask Oncologist Monday?

It finally happened our daughter-in-law not vaccinated was here on Wednesday and Thursday she tested positive for Covid. Results in on Saturday. Question is I...

It finally happened our daughter-in-law not vaccinated was here on Wednesday and...

Palmetto

•3 years ago

25 Replies

Neil here's my fish study

Good morning to everyone .. we are enjoying a beautiful Sabbath morning here in southern oregon . with fresh air and blue skies after weeks of smoke filled...

Good morning to everyone .. we are enjoying a beautiful Sabbath morning here in ...

craterlake

•3 years ago

2 Replies

Offering hope

Today is my dad's birthday, and I am just thinking of him wanting to offer hope to those on here. Two years ago, on his birthday, I was diagnosed with stomach...

Today is my dad's birthday, and I am just thinking of him wanting to offer hope ...

beanlake14

•3 years ago

16 Replies

Prof Dr Susan O'Brien - Lessons Learned From the CAPTIVATE Trial of Ibrutinib Plus Venetoclax in CLL

From CLL In Focus October 2021 Excellent interview with Prof Dr Susan Obrien on the results and information from the CAPTIVATE Study...

From CLL In Focus October 2021 Excellent interview with Prof Dr Susan Obrien on ...

Jm954

Administrator•3 years ago

7 Replies

Runners & CLL

I am seeing a lot of runners posting on various CLL sites. Has there been any studies on this? I am a older marathon runner recently diagnosed. It seems a...

I am seeing a lot of runners posting on various CLL sites. Has there been any s...

SantaZia

•3 years ago

19 Replies

vit b12 ,high 2000

hi all just been for my bloods review ,,wbc9.0,,,hb123,,,plts59,,,,nuets3.7,,,,,i ask the nurse if she would check my vitamin b12 levels,,,,they come...

hi all just been for my bloods review ,,wbc9.0,,,hb123,,,plts59,,,,nuets3.7,,...

kel555

•3 years ago

2 Replies

COVID 3RD Jab

Has anyone had a reaction to their 3rd jab my partner who has CLL and on active treatment was hospitalised with temp full screening done now home but feels...

Has anyone had a reaction to their 3rd jab my partner who has CLL and on active ...

Hd07

•3 years ago

15 Replies

Recent blood test

Had new elevated para proteins and, subsequently, a detailed urine analysis. Consultant wants to rule out amyloidosis. I googled it and it doesn’t sound good....

Had new elevated para proteins and, subsequently, a detailed urine analysis. Con...

Mijoed

•3 years ago

1 Reply

Neutropenia as a side-effect of Covid vaccine

When I had my second Covid vaccine in May, I had immediate and dramatic side-effects: an enlarged lymph node the size of a tennis ball under my vaccinated arm,...

When I had my second Covid vaccine in May, I had immediate and dramatic side-eff...

JackieMcC

•3 years ago

10 Replies

Third vaccine antibody update

Thank you for all you share in this community. I am 3 years on W&W and I received my Quest Spike protein antibody test results today, just 7 weeks after my...

Thank you for all you share in this community. I am 3 years on W&W and I receive...

Lasweetpea

•3 years ago

6 Replies

Cracked fingers and sore scalp

I had the issue with cracks from the corner of my fingernails into my fingers. I put superglue on them with the doctors blessing and it helped a lot. My...

I had the issue with cracks from the corner of my fingernails into my fingers. ...

deesil

•3 years ago

12 Replies

The roll-out of the third dose of Covid vaccines to the immunocompromised has been a chaotic failure

From the many reports on this forum, we gathered that all has not gone to plan. This survey says 44 % of blood cancer patients were invited to have a third...

From the many reports on this forum, we gathered that all has not gone to plan. ...

bennevisplace

•3 years ago

40 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2021

Hi All Anyone had and issues with liver bloods when on O&V treatment

UK Government announce that supplies of Molnupiravir and Ritonavir against Covid 19 have been secured.

3rd jab!!

Lymphoma patient had the longest documented COVID-19 infection.

AZD7442 gets a name!

Red blood cells may be immune sentinels

UK only - COVID Cancer Antibody Survey

IVIG infusion

Early stage CLL

Vaccination

Valneva COVID vaccine

nightmare

Unusual issue

CLL and Allergies

Tingling Legs and CLL

Experience in Discontinuing Calquence

Restart Ibrutinib 3 days after (still bleeding) tooth extraction?

The 3rd vaccine injection

Get Regeneron Today or Wait To Ask Oncologist Monday?

Neil here's my fish study

Offering hope

Prof Dr Susan O'Brien - Lessons Learned From the CAPTIVATE Trial of Ibrutinib Plus Venetoclax in CLL

Runners & CLL

vit b12 ,high 2000

COVID 3RD Jab

Recent blood test

Neutropenia as a side-effect of Covid vaccine

Third vaccine antibody update

Cracked fingers and sore scalp

The roll-out of the third dose of Covid vaccines to the immunocompromised has been a chaotic failure

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