Vaccination: 3 weeks after 3rd vaccination had... - CLL Support

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Grad99 profile image
22 Replies

3 weeks after 3rd vaccination had antibody test and my numbers are in excess of 2,500 - have a little more confidence now

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Grad99 profile image
Grad99
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22 Replies
NaderE profile image
NaderE

Great. After my third shot my antibody test is negative, no antibodies. Somewhat discouraging but thankful and learning to live with the mask.

in reply toNaderE

To give a prospective to your comment, where are you in CLL progression, compromised immune system, or treatment?

NaderE profile image
NaderE in reply to

After being a marathon runner, I was diagnosed with B-PLL in Oct 2017 by a physician in Augusta GA. I was started on Ibrutinib which helped me for a couple of years, but then it was no longer effective. I visited Sloan in NYC in Feb 2020 where I was accepted in the LOXO trial. As of my last visit all my #s are or near perfect except for the low hemoglobin and an enlarged spleen. The enlarged spleen is due to CLL and the vaccine. Nader

Grad99 profile image
Grad99 in reply to

Still watch snd wait - no treatment yet - wDiagnosed 1998 - 20 years dormant then many many serious stresses and on the move last 2 years … next check up in 4 weeks

Davidcara profile image
Davidcara

Wow, this is so great! Happy for you Grad99

Grad99 profile image
Grad99 in reply toDavidcara

At least I feel a little safer for the time being

bennevisplace profile image
bennevisplace

Congratulations. Which vaccines and which antibody test please? Earlier test to compare?

Grad99 profile image
Grad99 in reply tobennevisplace

TDLLaboratories did test - 2 X Astra Zeneca and 1 X Pfizer - on watch and wait 20 years dormant - daughter got cancer and many other stresses and now on move …. Next check up In four weeks

Grad99 profile image
Grad99 in reply toGrad99

Also after second vaccination antibody score .(same lab) 989

bennevisplace profile image
bennevisplace in reply toGrad99

Thanks for that. Best wishes.

bennevisplace profile image
bennevisplace in reply toGrad99

Thanks. Like several other providers, TDL uses the reputable Roche Elecsys semi-quantitative spike antibody test.

Sorry to hear of these troubles besetting you and your family. It must be very stressful all round.

New-bee-cell profile image
New-bee-cell

Fantastic! Great news.

Good news!

GMa27 profile image
GMa27

That's great. 🎉 I have same results. I am able to get out & enjoy more.

Jamyang profile image
Jamyang

That's so great to hear I'm so pleased for you. Do you live in uk ?

Nhs say I should have a 3rd vaccine but I can't get it anywhere!.

Where did you get yours.

Thanks

Lizlashley1 profile image
Lizlashley1 in reply toJamyang

I'm the same!!!!! My hospital even wrote to my GP insistingvi get my booster soon but still no booster!! Last night sajid javid was questioned about how come the blood cancer group haven't been able to get theirs....he didn't really answer!!!

Grad99 profile image
Grad99 in reply toJamyang

My GP called me

jendur profile image
jendur in reply toJamyang

Exactly, going slightly crazy! Numerous phone calls, emails and e-messaging to GP with evidence to back up that I should be getting the 3rd primary vaccine, letter from consultant asking them to refer me... nothing. Booster due next month. Why is it so difficult when they are begging other people to get it?

Grad99 profile image
Grad99 in reply toJamyang

My GP called me

Annie1920 profile image
Annie1920

Wow that's good.. Sadly mine were negative after 3x jabs but I'm on OV and I didn't expect much effect.. That was the UK nhs test which is spike and neucleocapsid test.. Luckily my gp did respond to phone call and I was offered one the day after I phoned and directly I got two invitations from health authority to go for 3rd jab.. Still v chaotic.. Just heard on radio that severely immunocompromised should be invited by hospital team (BMA spokesman on radio 4)

Sojomama13 profile image
Sojomama13

Happy for you!!!

casanova profile image
casanova

Really pleased for you.Maureen

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