UK only - COVID Cancer Antibody Survey

[Jm954]

The NHS has launched a national COVID Cancer Antibody Survey to assess antibody responses to the COVID-19 vaccines among cancer patients and is calling on cancer patients to sign up now.

You can sign up here: covidcancersurvey.uk/

Vaccination is an important strategy to protect society from the effects of COVID-19, but there is emerging evidence that a small number of cancer patients , including CLL patients, have lower levels of antibody response than the general population. They don’'t yet fully understand what lower levels of antibodies mean in terms of outcomes, but means that some people with cancer are not as protected from COVID-19.

The COVID Cancer Antibody Survey is one of the first surveys of its kind that will help them to understand what protection people with cancer develop following COVID-19 infection and/or vaccination.

It will also help them understand whether and how antibody response differs between different cancer types and whether any particular treatments affect response to vaccination.

The survey is open to people aged 18 or over living in England who have either been diagnosed with cancer in the last year or are currently receiving cancer treatment. Participants will be sent a finger-prick blood test that looks for antibodies against COVID-19 in the blood. It will be sent in the post and comes with everything needed to complete and return the test.

By signing up for this survey, you can help to develop the understanding of what antibody levels mean for people with cancer and help the NHS to provide the best treatment, care and support for patients, as well as finding out about your own antibody levels.

You'’ll fill in a short form with your details before being automatically redirected through to the NHS Test & Trace antibody test booking page where you'’ll be able to book your free test. There are 10,000 places on this survey and the NHS expects to be recruiting participants for the next two to three months.

You need to visit covidcancersurvey.uk/ to sign up to the survey before ordering your antibody test.

For more information, please use the ‘contact us’ section of the survey website: covidcancersurvey.uk/contact/

Jackie

[mrsjsmith]

Thank you Jackie,

And if anyone had problems registering I eventually got as far as registering for a test yesterday. Incorrect coding was an issue. Thought one question the Cancer Survey people didn’t answer was why we can only register 1 or 2 vaccinations. I would have thought some of us participating would have now had 3 that must affect the results ?

Regards

Colette x

[RosettaClapp in reply to mrsjsmith]

I had had my third dose but As I couldnt register more than 2 I put 2 ..sadly still came back negative ..this test is in fact two a spike test and a neucleocapsid one so pretty comprehensive

[Psmithuk]

I registered, and then reread your post, which specified living in England - I’m in Wales. Not sure if I’ll be included or not.Chrisx

[Peggy4]

I registered and was accepted but then got a text saying it could not be processed at this point please try again. After 4 times I gave up!Peggy

[Jm954 Administrator in reply to Peggy4]

Disappointing! 😕

[Peggy4 in reply to Jm954]

It was! 😢

[mrsjsmith in reply to Peggy4]

Try again Peggy it worked for me yesterday, and after two attempts because the first time I got as far as the address to send kit and then the next button went blank, so I tried again and succeeded. Testing kit has appeared this morning so that bit is quick.

Colette

[Peggy4 in reply to mrsjsmith]

Just tried once more. Says I’ve been selected followed by a text saying not processed and try again. I also followed instructions to then ring 119 and do it through them quoting my acceptance code. They said they have no idea why people keep ringing them over this.

[mrsjsmith in reply to Peggy4]

Peggy,

Sorry to hear that ! I was told that was a problem with coding and the woman I spoke to at 119 was also baffled. Try emailing the cancer charity organisers I did and I have been asked to let them know if the site has improved !

[RosettaClapp in reply to mrsjsmith]

the results came back for me after 2 days too so swift all round

[Peggy4]

Perhaps I’m on a different one? gov.uk/register-coronavirus...

[Poodle2]

I registered but then couldn't order the test as it required an ID number that was meant to be emailed to me and...it wasn't 🤷🏻‍♀️any ideas? Shall I try again?

[RosettaClapp in reply to Poodle2]

I got an email saying I had been accepted and the package came through 24 hours later

[mrsjsmith in reply to Poodle2]

Yes try again the 16 digit number is sent by text.

Colette

[teakbank12]

We applied numerous times before being text a code to enter, we processed this order and it arrived recently.We sent it back earlier this week and await the results.

This was the NHS test that blood cancer charity gave us the option of doing.

Also sent back the Birmingham trial test we had to do three weeks after the third primary dose.

Dave

[9876]

I have also applied and test has arrived but I had my third dose yesterday,does anyone know how long I should wait after the vaccine to do the test .?

[Poodle2 in reply to 9876]

I think they say it takes about 3 weeks for the vaccine protection to kick in so I think I would wait 4 weeks.

[9876 in reply to Poodle2]

Thanks, how are you feeling now ; has the iron infusion helped?

[Poodle2 in reply to 9876]

I don't feel much of a difference yet to be honest with you. I believe it takes a few days/week(s) to feel any difference? From what I have read. I think I'm going to bed with the kids tonight 🙂 not feeling exhausted though. Thanks for thinking of me xxx

[terryI_uk]

Hi Jackie, as I'm in remission does that mean I can't participate, thanks, Terry

[very]

done, thank you.jenny uk

[Mtk1]

I have tried, but not received code, 3 times now.

[Poodle2 in reply to Mtk1]

Same for me. Not receiving the code .

[mrsjsmith in reply to Mtk1]

Keep trying ! Mine worked on 5th attempt.

[Poodle2 in reply to mrsjsmith]

Ok, will do!

[Poodle2 in reply to mrsjsmith]

Received my code today! 🙂

[mrsjsmith in reply to Poodle2]

Hurrah !

But do read the instructions and watch the video. I was going to do this morning and then stopped when it said I should be drinking water for two days ( something I am rubbish with ) so trying again tomorrow.

Colette

[Poodle2 in reply to mrsjsmith]

Colette, what do you drink then?!😀

[mrsjsmith in reply to Poodle2]

🤫

[Fran57]

Thanks Jackie.I have signed Paul up… just waiting to get a text/ test.

Stay safe,

Fran 😷

[Fran57]

Hi Jackie.Paul has just received his invitation to do the NHS covid antibody survey.

Stay safe,

Fran 😷

[Jacksc06]

Received my invitation to take part yesterday.

[Peggy4]

Put code in and accepted on 4 separate occasions only to receive a text 10 mins later saying it could not be processed, try again. Last attempt this morning and so far so good.