Posts - CLL Support | HealthUnlocked

CLL Support

22,987 members • 39,473 posts

All posts for February 2019

Immune fight cancers

Immune stimulant molecule shown to prevent cancer February 15, 2019 by Etty Coffman, University of Louisville Would you like to receive trending story...

Immune stimulant molecule shown to prevent cancer February 15, 2019 by Etty Cof...

Alaoun

•6 years ago

2 Replies

The Long Island CLL Patient Support Group.

The CLL Society invites all to attend our Long Island Support Group for those afflicted by CLL and/or caregivers. We meet monthly at the Syosset Public...

The CLL Society invites all to attend our Long Island Support Group for those af...

SusanBo

•6 years ago

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Blotches

Anyone on here have any red blotches come up on their skin ? Been on ibrutinib for 2 years, and haven't noticed anyone else at clinic with them, they start as...

Anyone on here have any red blotches come up on their skin ? Been on ibrutinib f...

Aarree

•6 years ago

5 Replies

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Shingle shot!

Is the shot for shingles ok to get or is it a big no no!!

Nanatoo4

•6 years ago

11 Replies

Thanks for info on Rotary house and I+V trial results

Thanks to everyone that responded to my post about the Rotary House recently. Every ones help is much appreciated. Trial participants comments about their...

Thanks to everyone that responded to my post about the Rotary House recently. Ev...

GumboKing

•6 years ago

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CLL since 2014

I have had CLL for nearly five years and am on ibrutinib wich I am tolerating well I am 68yr old male I do get quite a few chest infections but usually take...

I have had CLL for nearly five years and am on ibrutinib wich I am tolerating we...

Anthonyparr

•6 years ago

2 Replies

Do you know what today is?

From my heart to yours !!!! HAPPY VALENTINE DAY! ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️ Mimi in GA

From my heart to yours !!!! HAPPY VALENTINE DAY! ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️♥...

Mimi4times

•6 years ago

8 Replies

Newbie here, a CLL oldie there

I was diagnosed in 2008 and didn't start chemo until 2012. I'm now 64. We've been full time RVers since 2007 so I have had oncologists all over the country....

I was diagnosed in 2008 and didn't start chemo until 2012. I'm now 64. We've ...

Liv4books02

•6 years ago

2 Replies

ASH 2018: Dr. John Byrd on Acalabrutinib in CLL and Free Upcoming CLL Educational Forums

Hi, Things keep getting better for CLL patients Hopefully acalabrutinib will be approved in the next 12 months offering another strong choice. The data is...

Hi, Things keep getting better for CLL patients Hopefully acalabrutinib will be ...

bkoffman

CLL CURE Hero•6 years ago

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New Oxford-developed tool reads the life histories of cancer cells - how subclones develop

"..a team of Oxford researchers has developed a way to track the genetic "life histories" of thousands of individual cancer cells at once, which may lead to...

"..a team of Oxford researchers has developed a way to track the genetic "life h...

AussieNeil

Administrator•6 years ago

1 Reply

CLL/catching colds

I am on watch and wait. 47 years old unmutated cd 38 positive but my numbers are good at this point. WBC almost normal and slightly anemic. My question is why...

I am on watch and wait. 47 years old unmutated cd 38 positive but my numbers are...

Bryanb

•6 years ago

3 Replies

Minor node swelling

I’m new to this forum but figured it can’t hurt to get help. I was diagnosed just over 3 years ago at age 45. The whole panel of blood and genetic testing...

I’m new to this forum but figured it can’t hurt to get help. I was diagnosed jus...

Njff

•6 years ago

9 Replies

Awful mouth sores, lip blister from Imbruvica

Some nice people here yesterday suggested I try selenium and organic oil of oregano (on toothpaste while brushing) for my painful tongue sores and lip blister....

Some nice people here yesterday suggested I try selenium and organic oil of oreg...

Hidden

•6 years ago

18 Replies

Question - how many different varieties of antibodies can B-cells make? Hint - it's hypermutation (IGHV mutation) that makes it possible

Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to a team led by Drs. Bryan Briney and Dennis R. Burton at Scripps Research examined...

Answer, 1 quintillion or 1,000,000,000,000,000,000 or 10^18 according to a team ...

AussieNeil

Administrator•6 years ago

9 Replies

Latest Blood Work

Three weeks since first B&R. —Lymphocytes still dropping and down under low normal to .8 WBC now under low normal to 3.5

Three weeks since first B&R. —Lymphocytes still dropping and down under low norm...

Estate1

•6 years ago

11 Replies

Follow up blues

Was hoping for a steady number My last three follow ups which are ever four months were pretty steady but a little spike so hopes for a 6mth or longer...

Was hoping for a steady number My last three follow ups which are ever four mon...

Superdad3

•6 years ago

11 Replies

Ibrutinib side effects

Hello everyone, My dad is 78 year old and started Ibrutinib Since past 3 months. He is having severe diarrhea like 30-35 stools. His appetite has gone down. He...

Hello everyone, My dad is 78 year old and started Ibrutinib Since past 3 months....

Vick07

•6 years ago

12 Replies

Today’s best news

I had blood control today’s morning. My numbers decreased. My doctor said these are good signs, but we still have to wait untill FISH results...I do not know...

I had blood control today’s morning. My numbers decreased. My doctor said these ...

tomster

•6 years ago

11 Replies

Green tea ( ECGC ) recommend by some oncology specialists

http://matchapowered.com/10-benefits-of-matcha-tea/

Alaoun

•6 years ago

10 Replies

I don't have CLL

I can't get out. I don't have CLL. I take some of the medicine CLL patients take. I wish you all the best in recovery. I have RA.

I can't get out. I don't have CLL. I take some of the medicine CLL patients ta...

Jmarieob

•6 years ago

1 Reply

Adding photos in postings

How many photos can be added to a post? Will .PDF work or do I need JPEG?

Riven8

•6 years ago

6 Replies

Holy Tired

Hello, 50 year old male. Diagnosed with cll nearly 2 years ago. I see cll specialist every 3 months. 13q deleted. W and W. Dr. Not concerned about my...

Hello, 50 year old male. Diagnosed with cll nearly 2 years ago. I see cll spec...

Dew77

•6 years ago

63 Replies

Persistent cough

Hi after seeing the consultant for my husband's 6monthly check all bloods are good. He examined him for any enlarged lymph nodes none found so all looks good....

Hi after seeing the consultant for my husband's 6monthly check all bloods are g...

very

•6 years ago

15 Replies

Good to know

https://www.eatthis.com/expert-approved-immune-improving-foods/

Alaoun

•6 years ago

4 Replies

How do you treat joint pain?

I’ve been having pretty bad pain in my hands and knees. Besides having CLL, I’m a Type 2 diabetic (though my A1C is near normal). I had joint pain before...

I’ve been having pretty bad pain in my hands and knees. Besides having CLL, I’m ...

Hidden

•6 years ago

42 Replies

Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!

Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - what a great community, which I have found really helpful. I was diagnosed...

Hi All Have been reading lots of posts since my diagnosis of CLL 9 months ago - ...

Buddhababy

•6 years ago

7 Replies

Cll specialist Sydney Australia

Hi all. What a great page so much useful info. I have been w & w for 10yrs. Last appt my wbc was 42 & lymph was 47..lots of nodes in neck, groin etc. Have been...

Hi all. What a great page so much useful info. I have been w & w for 10yrs. Last...

Marieb21

•6 years ago

7 Replies

I am concerned

I recently had a lab test that i am concerned about. I have not seen the doctor yet appt. in two weeks.I believe it was a CBC. The following showed low or...

I recently had a lab test that i am concerned about. I have not seen the doctor ...

ewat

•6 years ago

2 Replies

Does weight gain tendencies go along with Imbruvica?

Just wondering if weight gain tendencies go along with Imbruvica....I find myself struggling more to hold the line then I did before Imbruvica. I am actually...

Just wondering if weight gain tendencies go along with Imbruvica....I find mysel...

Panz

•6 years ago

12 Replies

Disability allowance in Ireland

I have just been diagnosed as having cll. I am on watch and wait. Feeling tired all the time. I do get job seekers allowance. Is there a certain cretia for...

I have just been diagnosed as having cll. I am on watch and wait. Feeling tired ...

Jimmy789

•6 years ago

8 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2019

Immune fight cancers

The Long Island CLL Patient Support Group.

Blotches

Shingle shot!

Thanks for info on Rotary house and I+V trial results

CLL since 2014

Do you know what today is?

Newbie here, a CLL oldie there

ASH 2018: Dr. John Byrd on Acalabrutinib in CLL and Free Upcoming CLL Educational Forums

New Oxford-developed tool reads the life histories of cancer cells - how subclones develop

CLL/catching colds

Minor node swelling

Awful mouth sores, lip blister from Imbruvica

Question - how many different varieties of antibodies can B-cells make? Hint - it's hypermutation (IGHV mutation) that makes it possible

Latest Blood Work

Follow up blues

Ibrutinib side effects

Today’s best news

Green tea ( ECGC ) recommend by some oncology specialists

I don't have CLL

Adding photos in postings

Holy Tired

Persistent cough

Good to know

How do you treat joint pain?

Seeking people with experience of Stem Cell Transplant for Richter's - I have a decision to make!

Cll specialist Sydney Australia

I am concerned

Does weight gain tendencies go along with Imbruvica?

Disability allowance in Ireland

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