Cll specialist Sydney Australia

[Marieb21]

Hi all. What a great page so much useful info. I have been w & w for 10yrs. Last appt my wbc was 42 & lymph was 47..lots of nodes in neck, groin etc. Have been thinking it's time to get 2nd opinion. Can anyone recommend a haemotogist. Currently under the care of one at Concord. Thanks

[seelel]

I don't live in Sydney, but am aware of the name of Prof. Stephen Mulligan who is a haematologist specialising in CLL.

He is at the Royal North Shore Hospital.

[Marieb21 in reply to seelel]

Thanks for that will look into it..

[Puckie]

HI Marien21,

Yes Mulligan at RNS or his wife Freeman at the SAN.

I was looking at a Second opinion at Concord myself with Trotman but she is on LSL, so I was going to see Verner.

In the end I gave up on a second opinion as I got results back from a microarray test and it showed that the FCR is looking the best option.

So, 1st time treatment for me starts on Monday. I’m scared of the unknown.

[BSMI in reply to Puckie]

Depends where you are in Sydney, but I see Jane Freeman at the SAN at Wahroonga & have been happy overall.

Best of luck Puckie!

[Qualicum in reply to BSMI]

I also see Jane freeman also we have just started my journey I am in the watch and wait stage.

[BSMI in reply to Qualicum]

I’m a few years ahead of you & Jane Freeman has been with me all through the journey. I might have been silly but as I had confidence with her from day 1 I didn’t look for a second opinion.

W&W for 5 years then full-on treatments – chemo etc, & then for me at least Ibrutnib came along just in time & I’ve been on it & OK for the past 3 years.

And other treatments are coming out all the time. So just based on my sole experience, if you’re just into W&W now you should have a very good long term outlook.

Regards,

[Qualicum in reply to BSMI]

Thanks I’m hoping it’s a while on w&w I like her and she pseems to be really thorough. I’m glad you are confident with her. Makes me feel good about it.