Some nice people here yesterday suggested I try selenium and organic oil of oregano (on toothpaste while brushing) for my painful tongue sores and lip blister. I bought both and hope they work asap. Also hoping the Meloxicam I started taking on Friday kicks in soon. This pain is awful. Rinsing with baking soda and hot water helps, but I work full time and only do that at home.
I have an appointment with my oncologist tomorrow and of course, with discuss all this with him.
I'm going on a cruise in six weeks and really want these physical issues to be gone by then.
I was diagnosed with CLL in 2011 but didn't need anything more than two check-ups a year until my WBC and other markers caused my oncologist to put me on Imbruvica on Dec. 19. Since then, my markers have improved and lymph nodes and spleen have decreased in size and my doc is optimistic. But Imbruvica is causing major pain.
I prefer natural remedies instead of all these damn pills but whatever alleviates the pain, I will do.
Also, the nurse who calls me bi-monthly and works with Imbruvica knew nothing about the mouth sores/lip blister side effect. Are you kidding me? I Googled "Imbruvica and mouth sores" and got back many results.
I hope, as my late grandmother said, "This too shall pass," is true in this case.
Thanks for listening and my best to others in my situation...I know there are many.