Minor node swelling

[Njff]

I’m new to this forum but figured it can’t hurt to get help. I was diagnosed just over 3 years ago at age 45. The whole panel of blood and genetic testing confirmed cll. My doctor told me I had all of the positive genetic factor for a good outcome so that made me feel moderately better. I now have to go for a PET scan because she wants to check some nodes in my groin. She mentioned Richters but said she wasn’t worried just wanted to make sure. This disease is terrible for sure

[Panz]

This is a great community and can be very helpful. It is a very supportive group caring, loving and intelligent. I only bring support to the group as I have had CLL for 30+ years with 27 years of off and on treatment....I am now on Imbruvica 420mgs and doing great. Bring on your questions and I assure you you will get some very good answers from this community. ☘️🙏💕

[Njff in reply to Panz]

Thank you. It’s tough to get a hold of mentally

[MsLockYourPosts Passed Volunteer]

Better to have a doctor who is thorough than one who writes things off. I hope that you can get the scan done ASAP, so you have results and can move forward.

[Njff in reply to MsLockYourPosts]

Only have to wait a week for my scan so it’s pretty quick. Thanks

[Kokobean]

Don’t panic. My husband went through a similar experience and timeline. His nodes swelled in his neck and turned out to be sll; still on W&W. Things can change with this disease and should be checked out.

[Njff in reply to Kokobean]

Great to know. Mine are in my groin area. Maybe 1 or 2 others. It’s such a confusing disease. Hearing from others helps more than I can explain. I really don’t think it’s anything. No symptoms of RS. Thanks for your help

[MsLockYourPosts Passed Volunteer]

You don’t have to explain about how comforting it is to connect with other CLL patients. We’ve all been there. It’s only the outsiders who don’t “get it”.

[RJR1]

I’m 4 years in nearing three on Imbruvica. Checking nodes is pretty common often to include a biopsy. I went through blood work, scan and mri, bone marrow biopsy and lymph node biopsy ( removed from groin). Tests were all a piece of cake..no problems with any of them. The nodes in my neck were like golf balls ( anyway they sure seemed that way to me). All the tests confirmed CLL.

You’ll get through this... it’s a process. The process is the worst part

[Njff]

Thanks. I am learning that now. My nodes are like 2cm. Pretty sure they have been there all along but still wants the scan. Just always a shock when something new happens