Posts - CLL Support | HealthUnlocked

CLL Support

22,864 members • 39,227 posts

All posts for February 2019

Hi

Just being diagnosed with cll Just like to say hi

Jimmy789

•5 years ago

8 Replies

"Whole bacterial" pneumonia vaccine approaches human trials

"Professor James Paton, a director at GPN Vaccines and Director of the University of Adelaide's Research Centre for Infectious Diseases, says that the...

"Professor James Paton, a director at GPN Vaccines and Director of the Universit...

AussieNeil

Administrator•5 years ago

8 Replies

First Appt

Tomorrow is my husbands first hematology appointment since his diagnosis in September! Went in Wednesday for a ton of blood work! Can’t sleep thinking of...

Tomorrow is my husbands first hematology appointment since his diagnosis in Sept...

Nanatoo4

•5 years ago

5 Replies

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CAR-T cell immunotherapy in the UK

Just read this, which mentions that while for CLL this still has a way to go, it seems to be the future for treatment....

Just read this, which mentions that while for CLL this still has a way to go, it...

deveritt

•5 years ago

2 Replies

Cramp!

Hi All ,I’m on ibrutinib and venetoclax and I am having terrible cramp ,has anyone else experienced this ?

Hi All ,I’m on ibrutinib and venetoclax and I am having terrible cramp ,has anyo...

Workers

•5 years ago

24 Replies

Any side effects

Just wondering what side effects anyone on this site have had on: IBRUTINIB ? Mimi in GA

Just wondering what side effects anyone on this site have had on: IBRUTINIB ? ...

Mimi4times

•5 years ago

30 Replies

UPDATE

TOO MUCH RIGHT NOW..ENDED IN THE HOSPITAL..JAN19 ..PAIN IN THE PELVIS AREA,SWOLLEN LEGS..TESTS WERE DONE..THE SMALL GROWTH IN THE ABDOMINAL WALL HAD GROWN TO...

TOO MUCH RIGHT NOW..ENDED IN THE HOSPITAL..JAN19 ..PAIN IN THE PELVIS AREA,SWOLL...

tlcladygiraffe

•5 years ago

5 Replies

Blood work almost perfect.

12 days after first BR my blood work is nearly perfect. I’m feeling better today than anytime in the last few years! Hopefully I won’t need 6 chemo sessions....

12 days after first BR my blood work is nearly perfect. I’m feeling better today...

Estate1

•5 years ago

2 Replies

No email

No email since Saturday

NancieS

•5 years ago

1 Reply

Laymen’s genetic markers, fish test etc

Wondering where or maybe here someone can enlighten me about genetic markers involved in cll! Plan on starting treatment next month after almost 11 years W/W....

Wondering where or maybe here someone can enlighten me about genetic markers inv...

haposwald

•5 years ago

21 Replies

Curious Kids - Why do we need soap?

Mary-Louise McLaws, Professor of Epidemiology Healthcare Infection and Infectious Diseases Control, UNSW answers 4 year old Claire. I expect many of us...

Mary-Louise McLaws, Professor of Epidemiology Healthcare Infection and Infectio...

AussieNeil

Administrator•5 years ago

5 Replies

We complain about the cost of drugs - but it's nothing new

"WalletHub looked into the true per-person cost of smoking in each of the 50 states and the District of Columbia. We calculated the potential monetary...

"WalletHub looked into the true per-person cost of smoking in each of the 50 sta...

AussieNeil

Administrator•5 years ago

3 Replies

Email Notifications

I have not had my usual daily email today anyone else had a problem? thanks Jenny UK

I have not had my usual daily email today anyone else had a problem? thanks Jenn...

very

•5 years ago

23 Replies

Venetoclax plus Rituximab

Hi, I'm new to this forum and am wondering if anyone knows of any trials of Venetoclax plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano...

Hi, I'm new to this forum and am wondering if anyone knows of any trials of Vene...

greenvert

•5 years ago

6 Replies

Diet & Vitamins ??

Thank you ALL for your kind words, support, experiences, thoughts, and advice. Truly appreciate it and I wish you that you all continue to remain in the best...

Thank you ALL for your kind words, support, experiences, thoughts, and advice. T...

CouldBworse

•5 years ago

15 Replies

LLC WHat causes it

what are the causes that cause lymphatic cancer LLC for more than I have read are not known the causes that originate it, someone has more information about...

what are the causes that cause lymphatic cancer LLC for more than I have read ar...

Jackie2019

•5 years ago

8 Replies

What Should I Do ?? Sit and wait ????

Hello Group. I am a 60 year old Man who was recently diagnosed with CLL in May 2018. I have had multiple blood test and Scans. My WB is double what the...

Hello Group. I am a 60 year old Man who was recently diagnosed with CLL in May ...

CouldBworse

•5 years ago

11 Replies

SupportGroup

Is there a support group for cll patients? I live in Nebraska. I do love this site and have learned so much😊

Is there a support group for cll patients? I live in Nebraska. I do love this s...

Dawn-Marie

•5 years ago

7 Replies

Chemo Finished

At long last my final cycle of FCR has been completed, and looking back on the last six months it has been a pretty eventful journey, but I will say to all of...

At long last my final cycle of FCR has been completed, and looking back on the l...

dandelup

•5 years ago

8 Replies

MPN/MDS ??

Anyone familiar with MPN/MDS. This is my secondary cancers. Cannot find a lot of info on internet. Mimi in GA

Anyone familiar with MPN/MDS. This is my secondary cancers. Cannot find a lot...

Mimi4times

•5 years ago

16 Replies

low dose antibiotics/life after Ibrutinib?

Hi talking recently to fellow CLL person they mentioned that it was possible to be on low dose antibiotics for a long time without becoming resistant. I'd like...

Hi talking recently to fellow CLL person they mentioned that it was possible to ...

splashsplash

•5 years ago

10 Replies

CLL Counts Reducing.

Hi, I am new to this site. I was diagnosed with CLL about 5yrs ago. I am watch and wait, with no signs of any symptoms. On 3/04/2017 my white cell count was...

Hi, I am new to this site. I was diagnosed with CLL about 5yrs ago. I am watch a...

cartnpeg

•5 years ago

5 Replies

Clinical trial for Imbruvica/Ibrutinib , Gazyva/Obinutuzumab +/- Venclexta/Venetoclax at 97 sites USA

A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obinutuzumab Versus Ibrutinib and Obinutuzumab in Untreated Younger Patients With...

A Randomized Phase III Study of the Addition of Venetoclax to Ibrutinib and Obin...

lankisterguy

Volunteer•5 years ago

2 Replies

Frontline treatment recomations.

Dx 2012, trisomy 12, need frontline treatment, in USA, Central PA. 76 yrs old

dennycll

•5 years ago

2 Replies

Leukocytosis

I chronic urinary tract infections and have had sepsis as a result of these twice. hospitalized recently and diagnosed with leukocytosis. I went to the...

I chronic urinary tract infections and have had sepsis as a result of these twic...

Moses123

•5 years ago

2 Replies

What are Detox Diets and Cleanses and Does Anyone Need Them?

"In 2009, a group of early career scientists called The Voices of Young Science, created "The Detox Dossier." They went to the manufacturers of 15...

"In 2009, a group of early career scientists called The Voices of Young Science,...

AussieNeil

Administrator•5 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2019

Hi

"Whole bacterial" pneumonia vaccine approaches human trials

First Appt

CAR-T cell immunotherapy in the UK

Cramp!

Any side effects

UPDATE

Blood work almost perfect.

No email

Laymen’s genetic markers, fish test etc

Curious Kids - Why do we need soap?

We complain about the cost of drugs - but it's nothing new

Email Notifications

Venetoclax plus Rituximab

Diet & Vitamins ??

LLC WHat causes it

What Should I Do ?? Sit and wait ????

SupportGroup

Chemo Finished

MPN/MDS ??

low dose antibiotics/life after Ibrutinib?

CLL Counts Reducing.

Clinical trial for Imbruvica/Ibrutinib , Gazyva/Obinutuzumab +/- Venclexta/Venetoclax at 97 sites USA

Frontline treatment recomations.

Leukocytosis

What are Detox Diets and Cleanses and Does Anyone Need Them?

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