CLL Support Association
10,612 members16,468 posts

involuntary catch or "shuddering" breath intake- just a survey

I was wondering if anyone else has experienced this, kind of like when a small child has been crying/sobbing and is recovering and they have a shuddering, stuttering or "catching" intake of breath? Related to Imbruvica? it doesn't happen all the time, coming in spells at times. My P.A. says the it happens sometimes when red cells are being destroyed, but blood work shows nothing. First noticed when my white blood cell count got high >90K. It is a little disconcerting and I decided to actively search, a "shuddering breath" search shows lots of questions and not many answers.

Cheers!

3 Replies
oldestnewest

Sounds like gasping breathing... you need to talk to your Imbruvica (ibrutinib) prescribing doctor and get referred to a cardio-oncologist...

Atrial fibrillation or flutter, might cause this... on Imbruvica (ibrutinib).

Could be a diaphragm issue as well...

en.m.wikipedia.org/wiki/Ago...

~chris

2 likes
Reply

I’ve been getting that exact symptom for 15 years off and on. I’m not on any meds for SLL/CLL. My doctor tells me its from palpitations skipped heart beats. The feeling is like you loss your breath for a split second sometimes just one somtimes several in a row. Then I feel strange after , kinda nervious kinda worried it’s going to happen again so I do slow breathing. In through my nose for a count of 4 hold my breath for 3 sec and exhausting slow for 5 seconds. I do this for 5 min and I feel very relaxed. When it first happened I went to the ER it was happening on and off for an hour. I was hooked up to an ekg for a while and every thing was fine. I then followed up with a stress test a few months after because it was happening on and off , nothing abnormal showed up. In closing if you drink coffee or other stimulants along with your new meds may be causing the the symptoms that sound like skipped heart beats that are taking your breath away as you described.

1 like
Reply

I had that happen a lot when I woke up in morning about 12 years ago, exactly like I had been crying. I usually recall my dreams and not were upsetting, no physical evidence of tears. It was a stressful period and following a few weeks of the sensation I developed shingles. Stress is the only link in my case, no heart rhythm issues. It disappeared as oddly as it appeared. Doctor had no ideas.

Reply

You may also like...