Happy day / complete remission: I received my... - CLL Support

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Happy day / complete remission

Dinasantos profile image
36 Replies

I received my results after finishing my FCR/Duvelisib trial treatment August 20th. And I wanted to share my good news with you all. I had a bone marrow biopsy done 2 weeks ago and the result is a have achieved a complete remission. I am so happy. I am glad I did not give up, because many days I did not think I would finish the treatment. So for anyone needing treatment, just "believe" and have faith and don't give up.

I am still taking duvelisib daily, and because I am on a trial, I will need to take it for a total of 2 years.

I want to thank everyone who posts here, as I always look forward to reading everyone's posts. This was my lifeline many days, and it helped me understand and decide what treatment was best for me.

If anyone has any questions about this trial I will be very happy to answer your questions.

Dina

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Dinasantos
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36 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

Wonderful news...! 😄 Dina... thank you for entering the trial.

For those who have never heard of duvelisib, it is a PI3K delta and gamma BCR inhibitor... similar target to idealisib which is a PI3K delta only...

~chris

Justasheet1 profile image
Justasheet1

Dina,

Awesome stuff!!!!!!!!

You must be so happy 💃🎉

Jeff

nonna profile image
nonna

So happy for you !!

Nonna

Salohcin profile image
Salohcin

Fantastic news!!!!😀

Cammie profile image
Cammie

Yahoo!

Well done hope for many years free of cll

terryI_uk profile image
terryI_uk

That's great news Dina, long may it last, best wishes, Terry

ABloor profile image
ABloor

Such fantastic news 😀🎉👍

prosecco1 profile image
prosecco1

Brilliant news, so happy for you 😃😄

Elle x

Jacksc06 profile image
Jacksc06

Hi Dina. So very happy for you. Best wishes for the future.

Jenferdog profile image
Jenferdog

Excellent news !!! x

luckyackerl profile image
luckyackerl

Brill! Thanks for sharing, gives us all a boost!...

Loves2walk profile image
Loves2walk

That's wonderful news!

Newdawn profile image
NewdawnAdministrator

There's no better news to hear Dina and you must feel like a huge weight has been lifted!

Fabulous news and well done for keeping the faith and persevering through the tough times.

Newdawn

Dinasantos profile image
Dinasantos in reply to Newdawn

Thank you Newdawn, some days it was hard, but I am glad I pushed through the treatment even though at one point I was offered " chemo light" and I decided against it. Just hoping for a nice long remission or even better yet, a cure would be my dream, but who knows, God is looking over all of us.

Dina

Foggymind profile image
Foggymind

That’s excellent news Dina, congratulations and many thanks for sharing with us. We all like to hear good news like this and let’s hope there is more of it in the future.

Take care

Kevin – Essex, UK

pumpkin48 profile image
pumpkin48

Thank you for sharing your most wonderful news and thank you for doing the trial that sets a path for so many of us.Pumpkin

Bethan49 profile image
Bethan49

This is just fabulous news! wonderful! fantastic ! delighted for you snd thanks for sharing... just finished round 5 fcr and it all feels quite onerous so to read your post is so encouraging .

Well done you!!!

Dinasantos profile image
Dinasantos in reply to Bethan49

One more and you will be done, wishing the very best!

Have faith and stay strong.

Dina

MonD profile image
MonD

Hi Dina. Congratulations! Such wonderful news. Where was the trial held? Thank you!

Dinasantos profile image
Dinasantos in reply to MonD

Thank you! Dana Farber in Boston, Doctor Mathew Davids. I think they are still recruiting.

MonD profile image
MonD in reply to Dinasantos

Thank you!

nvp815 profile image
nvp815

Congratulations!! That is absolutely wonderful news. Thank you for sharing your excellent results and for your participation in the trial:).

Nan

mocat profile image
mocat

Brilliant! Gives hope to us all.

wroxham-gb profile image
wroxham-gb

Great news Dina.

Sue

pkpayne profile image
pkpayne

Kudos to you Dina! Fantastic news! And thanks for sharing it with the rest of us!

Paula

louise66 profile image
louise66

Brilliant news - well done.

Louise :)

Seven6 profile image
Seven6

Adding to everyone else's comments, well done for staying with the treatment and for the success. You must be over the moon.

Seven6

Peggy4 profile image
Peggy4

Fantastic to hear and many thanks for doing the trial.

Very best wishes

Peggy

ygtgo profile image
ygtgo

complete remission .... our favourite two words.

ygtgo

SandiC profile image
SandiC

Congratulations... great news indeed!

romarin profile image
romarin

How long were you on the treatment before this biopsy result? Thanks!

Dinasantos profile image
Dinasantos in reply to romarin

I had 6 infusions of FCR over a period of 7 months. My treatment was delayed 2 times, a total of 4 weeks, due to neutropenia. Bone marrow biopsy was done 2 months after the last treatment.

KellyM profile image
KellyM

Awesome news! As a young cll patient on w&w, your post gives me hope for when/if I need treatment. Congratulations!

Tamv profile image
Tamv in reply to KellyM

Kelly , my daughter is on w and w. CLL trisomy 12. 37 years old.

KellyM profile image
KellyM in reply to Tamv

Hi, Tamv. CLL is definitely not something anyone wants to deal with but I like to say we have youth on our side. With all of the new treatments and trials going on, hopefully we'll see a cure or something close to it before we need treatment. Many well wishes to your daughter...as well as you...I know my Mom wishes it was her instead of me, that's so natural as a parent.

marge9mid profile image
marge9mid

So happy for you for persevering, and achieving complete remission. We all are hoping for the same and your experience gives us hope. Thanks for sharing.

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